Tested High for Babesia Antibodies - What next?

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Kris K
New Member


Date Joined Mar 2018
Total Posts : 4
   Posted 3/1/2018 3:59 PM (GMT -6)   
Hello! I am new to this forum and do not know much about Lyme or its co-infections unfortunately. Please bear with me for a slightly long post. smile

I had routine lab work in the beginning of February and my doctor always tests for Lyme since I live on Long Island and frequently visit upstate NY... both places I have had ticks crawling on me, but never saw one embedded. I have 2 dogs who I have had to pull ticks off many times. So the exposure is definitely there, I just never saw any indication of a bite.

The lab work showed that I had a Babesia microti IgG titer of 1:40, but was negative for Lyme with only 2 bands present on the western blot, 41 and 66. My doctor brushed it off and said it could have been a lab error and that we would retest in a month. At that point, I had only been feeling really tired which is nothing new and I blamed that on battling depression which always spikes in the winter. I had been having a lot of tummy troubles, but attributed that to ongoing IBS with stress. I also had been having night sweats, but attributed that to all the hot yoga I was doing.

However, in the beginning of last week more symptoms popped up in addition to the night sweats and upset stomach. I began feeling flu-like symptoms without the congestion - feverish and flushed, body aches, some nausea, and crazy fatigue. I also began to have intense joint pain in my knees - I have never had problems with my knees before even after working out. Having the first results in my head and feeling this way, I made an appointment with the doctor and we re-tested everything slightly earlier than planned along with several other tests just to rule everything out.

These second test results were similar - I still had the 2 bands on the western blot present and the Babesia microti IgG titer went up to 1:80. I also tested positive for Antinuclear Antibodies, IFA with a Speckled Pattern of 1:640. My doctor referred me to a rheumatologist whom I have an appointment with next week. I am definitely willing to see what the rheumatologist says of course, but after doing a little research I am nervous about letting this go too long without a proper diagnosis if it is in fact Babesia.

Does anyone have advice on what the next step should be? Can you have Babesia without Lyme? Is it common to catch this that early on where I have only had symptoms for 2 weeks? My doctor doesn't seem worried about it, but I feel like I haven't been given much information.

Thank you in advance for your help. Any little tips would be awesome!

Kris

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33798
   Posted 3/1/2018 4:51 PM (GMT -6)   
Hi Kris K, welcome.


First of all - I would retest with an Igenex Lab test. Get a Lyme IgM and IgG done for $250.
Would your Dr. sign the forum?
Call Igenex and order the test kit.

Second - Can Babesia travel alone? Probably. But, with your history of exposure and your symptoms...I think it's likely that you do have Lyme disease.

Many people with lyme do have the autoimmune marker ANA show up on lab tests.

If you do see the Rheumatologist - they may want to put you on steroids...just a warning: Steroids used for treating autoimmune disease is contraindicated when you have lyme. They will suppress your immune system and can cause an increase in severity of your current disease state.

My advice is you do the lyme test I indicated above and/or find a LLMD and schedule an appt. (LLMD = Lyme Literate Dr.)
Some people like to have their Igenex test results to take to the first appt...since it's often several weeks to months to get into the LLMD.
So while waiting for the appt., you can get the testing done.

Please feel free to ask any/all questions you have.

We do encourage our members read through the information contained in the thread: "New to Lyme?..Start Here!" It's packed full of useful information including detoxing suggestions, test interpretations, etc.

We can help you find a LLMD - start a new thread: "looking for LLMD in/near ______" and fill in the blank. There aren't many - if any good options on LongIsland...so you may need to go to an area close - New York city has a lot.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Kris K
New Member


Date Joined Mar 2018
Total Posts : 4
   Posted 3/2/2018 9:25 AM (GMT -6)   
Hi Girlie, Thank you for your reply and for all your great advice.

My doctor finally called and admitted I have Babesia so she is putting me on 2 antibiotics for 10 days. Then we can retest. I will definitely ask if she will sign off on the Igenex Lab test because like you mentioned, I am scared Lyme is also lurking in the shadows.

I no longer have to go to the rheumatologist so thankfully I don't have to throw all that into the mix.

NYC would be fine to travel to see a specialist if the time comes - I will reach out after this next step.

Thanks again, I really appreciate it.

Kris

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33798
   Posted 3/2/2018 1:33 PM (GMT -6)   
You know with a Babesia positive result - you really don't need a re-test of lyme if you see a LLMD.
If you see a LLMD - he/she should accept the Babesia result and will know that lyme and co-infections come with it.

10 days? Well, it might stir up something...but not even close to healing.

Please post an update - when you're finished the treatment (or sooner?)
Hope you seek out a LLMD.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Post Edited (Girlie) : 3/2/2018 12:07:21 PM (GMT-7)


k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2537
   Posted 3/2/2018 1:47 PM (GMT -6)   
Hi Kris. You may find the below link helpful for babesia treatment. Babesia lives in the red blood cell and takes at least 3 months to get rid of. The goal is to treat until you have no symptoms and then treat an extra month past that.

www.treatlyme.net/treat-lyme-book/kills-babesia-a-brief-guide/

Kris K
New Member


Date Joined Mar 2018
Total Posts : 4
   Posted 3/2/2018 2:25 PM (GMT -6)   
Girlie - that is what I was afraid of - 10 days doesn't seem like a long time, but since it seems like I caught it pretty early on I wasn't sure. My doctor feels very dismissive about it and I agree with you 100% - I just posted seeking out a LLMD.

Hi k07, thank you for the link! That is very good to know. 10 days did sound crazy.

Kris
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