Cusp of MSA-C SCA-? Diagnosis - Igenex test

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arcavasion
New Member


Date Joined Mar 2018
Total Posts : 1
   Posted 3/2/2018 9:17 AM (GMT -6)   
Longish story started last september with walking wobbles, slurred speech, face droop, tremors, and trip to the emergency room. Of course thought it was a stroke, but after three MRI's, CT Scans, more bloodwork than blood, standard lyme test (neg), heart monitor for a month, there is no answers and only getting worse, brain fog, bad memory are new. By ruling out everything you get to the point of a diagnosis for MSA-C or SCA-? to be determined, both are fatal, non curable/treatable, horrible end games.

I know all my symptoms could be lyme (and some symptoms of msa-c i dont have), but i had a negative test, and doing research i saw how many false negatives there are, so i looked up a lyme specialist in bridgeport ct, took a test he sent to igenex in cal, and guess what, i am positive for lyme on igenex, but not cdc. +23, +31, I41, not strong but positive, i got those results the same day i was to get my nero diagnosis.....This is great news right?

Then i do research, and see igenex tests to make more people positive, could lead to more money for treatments, etc. etc. and now I feel bamboozled. Please tell me some stories and give me hope that you were treated based on igenex tests and its real, its my only real hope.

I go to see the lyme guy tomorrow, and want to have a positive not cautious attitude, but the internet has me off track. i'm ready to take iv treatments for a month or more, and not sure if insurance will pay, but at this point, its the only treatment option i have.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33895
   Posted 3/2/2018 1:24 PM (GMT -6)   
arcavasion - welcome!

You are positive for lyme. Please accept those test results to back up your devastating symptoms.


I haven't heard of msa - c - but will look it up.


Yes, it's great news that you were diagnosed with a treatable condition.

Igenex wouldn't get more money by making people positive. They are a lab, and don't treat patients.

I am not fully healed but I have/had close to 40 symptoms...and am down to less than 10 now. It's been a long road for me to get to this point...but as long as I'm going in the right direction...I hope to be symptom free one day.

My question: What IV antibiotic are you taking? And will you be on Ursodiol ? It's a medication to protect your gallbladder when taking IV abx.

And will you be adding an oral antibiotic to it?

We encourage our new members to read through the information contained in the thread: "new to Lyme?..Start here!"
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33895
   Posted 3/3/2018 12:08 AM (GMT -6)   
Bump
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

mudshark
Regular Member


Date Joined Aug 2017
Total Posts : 121
   Posted 3/3/2018 12:30 AM (GMT -6)   
If Igenex were in conspiracy with big pharma they'd be handing out negative lyme tests by the thousands.

Facts to consider:

1. Antibiotics are cheap.
2. The maintenance drugs for MS, ALS and whatever other life-long, life-threatening diseases are out there cost far more than antibiotics
3. Big pharma makes far more off these other drugs than they do antibiotics


Still think there is a conspiracy? If you answered yes then you are correct. It's just not the conspiracy you think.
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