Feedback on Dr F in NJ

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sierraDon
Regular Member


Date Joined Aug 2016
Total Posts : 279
   Posted 3/3/2018 8:39 AM (GMT -6)   
Hello, i was curious if any one can comment on Dr F in West Caldwell NJ.

Some questions I had:
- Does she follow ILADS guidelines with regard to treatment
- she prescribe Tindamax or Flagyl for persisted / cyst forms
- does she pulse any medications
- Does she believe in treating past when symptoms resolve

thank you

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33821
   Posted 3/3/2018 2:53 PM (GMT -6)   
bump
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

sierraDon
Regular Member


Date Joined Aug 2016
Total Posts : 279
   Posted 3/3/2018 6:39 PM (GMT -6)   
any comments anyone? thanks

goshawk
Forum Moderator


Date Joined Sep 2016
Total Posts : 2293
   Posted 3/3/2018 6:48 PM (GMT -6)   
I have no knowledge of this llmd but I would suggest calling them and asking them your questions. If they are a good reputable llmd their office should not mind answering those questions.

I would also keep checking back for responses , since sometimes a member that might have an response to your post just may not be on today.


Take care, jo

sierraDon
Regular Member


Date Joined Aug 2016
Total Posts : 279
   Posted 3/3/2018 6:51 PM (GMT -6)   
OK thanks a lot, i am having a hard time finding the 'ideal' LLMD, i guess that is par for the course.

some are good one thing, then bad at another thing. i simply want to follow a defined protocol, and treat past symptom resolution.

I will give a call on monday to see what they have to say.

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2922
   Posted 3/3/2018 7:33 PM (GMT -6)   
no idea but i heard that office is a mess, she first orders many thousands of dollars in all sorts of testing regardless of what you've already done.

overall i've heard more negative than positive about her. i believe she's a Rheumatologist. she's one of the old school doctors so unsure if she's up on any of the latest treatment protocols. i went to someone similar in NYC and he put me on daily meds for almost a year, didn't do any baseline blood work or safety labs. i wasn't happy so left and eventually ended up at Dr. J in DC.

sad too because this doctor is 5 minutes from my job.

sierraDon
Regular Member


Date Joined Aug 2016
Total Posts : 279
   Posted 3/3/2018 7:52 PM (GMT -6)   
Thanks Rikky1. seems like there is no one real good in the PA or NJ area. seems like it shouldnt be too hard to atleast follow guidelines under ILADS (like burrescano or horowitz)

I am leaning to toward DrJ in DC at this point. what i dont like about them is their supportive care. maybe that wont be so much as a concern once i am in a routine with them.

Rikky1
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Date Joined Jun 2015
Total Posts : 2922
   Posted 3/4/2018 12:19 AM (GMT -6)   
there are more than a few doctors that will tell they're ILADS certified and all they did was attend some 1 day conference. yes they can follow what horowitz or burrescano says but that is not what you want. you want someone with experience with this disease because its so individual.

with Dr. J in DC they give you your protocol and tell you to come back in 3 months. if you have issues you call their nurse triage line. they can take 3 days to get back to you. bottom line you're not going to get personal supportive care from them, at least not in a timely, highly interactive way.

sierraDon
Regular Member


Date Joined Aug 2016
Total Posts : 279
   Posted 3/4/2018 7:45 AM (GMT -6)   
Thanks, from what i hear tho, DrJ is not really individual, its cookie cutter. a lot of people running the same protocol.

i may have no choice but to go to DrJ, but what is concerning to me is that, i am managing two other health issues with specialists, that require coordination of meds. it just sucks playing the game with JSC, when i can call my specialists and get answer on something right then and there or in a few hours. when with DrJ, you have no real time frame of a response, so it could take more than week to make to make adjustments. i anticipate major headache from this everytime my protocol changes...shouldn't be that hard

also, i believe there is more than one way to get on top of this. just from my short time learning about this, it seems that treatment duration is key, being on the right meds/dosages, and sequence of protocols.

sierraDon
Regular Member


Date Joined Aug 2016
Total Posts : 279
   Posted 3/4/2018 7:46 AM (GMT -6)   
anyhow, since lack of response on Dr F in NJ, it sounds like she is a no go to. i assume all her testing that she requires is out of pocket, for both the tickborne tests as well as all the blood tests she orders.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33821
   Posted 3/4/2018 3:15 PM (GMT -6)   
sierraDon said...
Thanks, from what i hear tho, DrJ is not really individual, its cookie cutter. a lot of people running the same protocol.

i may have no choice but to go to DrJ, but what is concerning to me is that, i am managing two other health issues with specialists, that require coordination of meds. it just sucks playing the game with JSC, when i can call my specialists and get answer on something right then and there or in a few hours. when with DrJ, you have no real time frame of a response, so it could take more than week to make to make adjustments. i anticipate major headache from this everytime my protocol changes...shouldn't be that hard

also, i believe there is more than one way to get on top of this. just from my short time learning about this, it seems that treatment duration is key, being on the right meds/dosages, and sequence of protocols.


Don - when you get a protocol from Dr. J or his practitioners...if you give them your list of meds you're taking and what they're for - will they not make sure that the meds they are prescribing are fine to take with your other meds?

If your other Dr. changes something afterwards - then wouldn't he/she be able to let you know if the abx/antimalarials you're taking are contraindicated?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33821
   Posted 3/4/2018 3:19 PM (GMT -6)   
Yes, it's partially cookie - cutter...but not everyone takes the same meds...there is some flexibility.
Certainly there are set protocols - as in the days of the week you take them...and when you take the anti-malarials and cyst busters...etc..but within those parameters - the individual antibiotics do change from person to person...somewhat.

I think the cookie-cutter approach is because those protocols have given results...so it's not random - there is a method.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

sierraDon
Regular Member


Date Joined Aug 2016
Total Posts : 279
   Posted 3/4/2018 3:22 PM (GMT -6)   
Thanks, yes that is process i am going through now. however i didn't have my specialist medications at the time of my visit. I got my medication list from DrJ, now have to take that list to my specialist. In some cases my specialist will not be able to change their prescription to align with DrJs prescription, i.e. DrJ will have to adjust my lyme medications.

thats where the headache comes in, since i cannot simply discuss this to a 'live' person instead have to leave voicemails, wait for call backs, then respond to my specialist, and rinse and repeat again with DrJ.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33821
   Posted 3/4/2018 3:52 PM (GMT -6)   
sierraDon said...
Thanks, yes that is process i am going through now. however i didn't have my specialist medications at the time of my visit. I got my medication list from DrJ, now have to take that list to my specialist. In some cases my specialist will not be able to change their prescription to align with DrJs prescription, i.e. DrJ will have to adjust my lyme medications.

thats where the headache comes in, since i cannot simply discuss this to a 'live' person instead have to leave voicemails, wait for call backs, then respond to my specialist, and rinse and repeat again with DrJ.


Oh, I feel your pain, believe me. That is one of their downfalls...is the Admin side of things.
I don't know why they don't fix that aspect...I even had trouble figuring out which local I should be calling...and there's that 'threating message' - "Do not leave multiple messages. Multiple messages may delay our response" (or something like that)

My appt. was on the 5th of Feb. and the med prescription didn't get faxed to the pharmacy until the 12th. But, I was calling the pharmacy every day....bugging them...and I called the clinic no less than 3 times.

Then they wanted lab work to be done...but didn't send my appt. notes until almost 3 weeks later. I had wanted to take the notes to my Dr. so she was 'on board' with all the lab work I needed to have done. So she had the information that I indeed went to the clinic and was going to be taking multiple abx. and needed labs done.

So, yes...the office/Admin side of things is lacking for sure...and very frustrating.

my husband mentioned a few times that they should know better than to create stress for lyme patients.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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