I'm better now

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OriolCarol
Veteran Member


Date Joined Dec 2017
Total Posts : 730
   Posted 3/3/2018 9:58 AM (GMT -6)   
I want to comment something, but please do not let anyone take these words as something true ... it's just my own experience.

I have been on antibiotics for several months and tired of getting worse, stopping antibiotics, detox, renaming antibiotics ...

These last weeks I had little hope that one day I could improve, and sunk in despair decided to try the 'protocol' recommended by the controversial sarah vaughter on his blog.

Take 400mg of minocycline, in a single dose until today, took two and a half weeks. The first days I thought I was going to die, my legs were paralyzed, I lost feeling in my hands etc ... but these last three days something impressive has happened ... I no longer have that feeling of clenching in my body that has been accompanying all these months ... I have sensitivity in the face ... I think I'm improving ... I'll continue in this dose plus rifampin as much as I can. I found something that works

goshawk
Forum Moderator


Date Joined Sep 2016
Total Posts : 2302
   Posted 3/3/2018 10:49 AM (GMT -6)   
It good you have found something that works for you and keep detoxing since it sounds like you were herxing.
Take care and I wish you the best of continued healing,Jo

OriolCarol
Veteran Member


Date Joined Dec 2017
Total Posts : 730
   Posted 3/3/2018 12:27 PM (GMT -6)   
Thank you goshawk.

Another point is that now on 400mg, i've had symptoms that I've never had experienced, except the first month when i started to be ill... like pain back my head, when i started to have vertigo and now the same thing is happening but inverse... pain back my head and less vertigo...

ravenhome777
New Member


Date Joined Mar 2018
Total Posts : 5
   Posted 3/3/2018 12:34 PM (GMT -6)   
wow - very encouraging oriolcarol! I tried mino. It's very strong.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33957
   Posted 3/3/2018 1:19 PM (GMT -6)   
Oriol - I’m glad you are noticing improvements but I am concerned about that dosage.

The usual dose for Lyme is 100 mg twice daily.

Plus you are taking the 400 all at once - not divided doses?

Because of it’s good penetration of b/b barrier, Minocycline has a lot of listed side effects that involve the head/brain and the fact that you are taking this amount without a Dr overseeing it does concern me.
I take multiple abx so it’s not that I don’t support abx - but I’ve not heard of that amount - and all at one time.

Please be careful Oriol
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33957
   Posted 3/3/2018 1:21 PM (GMT -6)   
ravenhome777 said...
wow - very encouraging oriolcarol! I tried mino. It's very strong.


Hi ravenhome - welcome to our community.
Please feel free to start a thread and introduce yourself to the forum.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Spanish
Regular Member


Date Joined Sep 2017
Total Posts : 146
   Posted 3/4/2018 11:30 AM (GMT -6)   
Oriol, I am happy you found something that works!! But as Girlie said that is a high dosage.

Maybe just being consistent with a lower dosage will work? There will be ups and downs so just stick with it and dont change treatment as soon as you feel bad again.

LymeSick 🌟
Regular Member


Date Joined Aug 2017
Total Posts : 234
   Posted 3/4/2018 12:21 PM (GMT -6)   
That reminds me of those people who accidentally overdosed on Dapsone and got cured from Lyme.

It makes me wonder if for Lyme maybe even the higher dosages of antibiotics aren't high enough.

Although I do share Girlie's advice, please be careful.

OriolCarol
Veteran Member


Date Joined Dec 2017
Total Posts : 730
   Posted 3/5/2018 6:33 AM (GMT -6)   
Don't worry Girlie and Spanish, i'm not going to be at this dose for a lot of time. Now, that I'm better i could try to reduce it to 300mg per day. My blood exams are good and i don't feel pressure or headaches that could indicate intracraneal.
300mg at one dose is simillar to 600 of doxy really?

Hoagie
Veteran Member


Date Joined Jul 2017
Total Posts : 806
   Posted 3/5/2018 6:54 AM (GMT -6)   
I'd be very wary of Sarah Vaughter. I just looked at the site and her Lyme story. Her protocol looks to be one that she has tested on herself after years and years of unsuccessful treatment. And she is still not better.

She also seems rude to people with differing ideas than her own.

I hope you find what works.

OriolCarol
Veteran Member


Date Joined Dec 2017
Total Posts : 730
   Posted 3/5/2018 7:09 AM (GMT -6)   
I'm only feeling one thing but i don't know if it's related to mino or lyme/bart/babesia. My nose burns inside, my throat and mouth and when it happens i can't breath enough... but i was feeling it at normal doses like 100mg twice a day... What do you think guys? It's a strange feeling like pressure, burn and shortness of breath into the sinus face... all together... except it all other things are improving

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2925
   Posted 3/5/2018 8:29 AM (GMT -6)   
not surprising given rifampin and minocycline are a very powerful combo to knock out not just bartonella but other pathogens. add in bactrim and do this trifecta over many months and i guarantee if you can get past the herxes from hell and such you'll get better.

can't say 100% since everyone is different but this 3 abx cocktail hits so many things its bound to being some relief.

also carol no offense but you haven't been at this for very long. i'm going on 3+ years and i've tried every abx in the book and most combos and have had too many 'i feel better must be permanent' moments only to get worse again. this has happened dozens of times so while i do hope and pray your gains are permanent you need to be mentally prepared that you aren't done yet.
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