Convince Non-LL Doctor to help?

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Rocko9999
New Member


Date Joined Mar 2018
Total Posts : 3
   Posted 3/5/2018 11:57 AM (GMT -6)   
I have what I think is lymes. I am very healthy active 44yo male. I do a lot of backpacking/camping in San Diego mountains and deserts. I went backpacking in brushy area near game trails in the local mountains. A week later my knees started hurting like I have never felt-burning, then my neck became very stiff, headache, chills, night sweats, joint pain and stiffness moved to feet, elbows, hands, wrists, etc. This was all within 2 weeks of my trip. Saw a general doctor as I couldn't see my regular doctor. Told her my symptoms and mentioned lymes, she said there is no lymes in San Diego... I argued and she said lets do some blood tests and go from there. I will be seeing my regular doctor in 3 days and waiting for blood test results-not sure what she tested for. I am terrified that all this waiting, future appointmens, etc. is pushing me toward a point of extremely difficult recovery.

I don't have the money to see the few LL doctors in my area. I do have insurance and my medical group is generally pretty good. Does anyone have suggestions on how I can talk to him correctly about this?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32601
   Posted 3/5/2018 12:37 PM (GMT -6)   
Rocko9999 - Sorry, but it sounds like you have lyme disease.

So, it's only been a few weeks at this point?

I doubt if your regular Dr. will treat you long enough and with the right doses of abx.
Those symptoms you have - won't go away with a week or two of abx. You will need to be treated for months and maybe longer...you need to treat until all symptoms are gone...plus several more weeks.

I know it's not what you want to hear...and I hope your regular Dr. will be able to help you...but there are LL Dr.'s for a reason.

Here are ILADS guidelines - scroll down to antibiotic dosages...and also for minimum treatment time.
Show your Dr. these guidelines. The dosages are on page 18/19 and treatment time on page 20.





www.lymenet.org/BurrGuide200810.pdf
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

jrpsf
Veteran Member


Date Joined Aug 2014
Total Posts : 1682
   Posted 3/5/2018 12:43 PM (GMT -6)   
What Girlie said is unfortunately true. Lyme is rampant in California and yet there are still practitioners that ignore all the studies and go with "there is no Lyme here". Your best bet is a LL doc and if my memory serves there is one in that area that takes insurance. That's rare. You'd need to call around. If you can't find one see if there is a functional medicine doc in group. They tend to be much more open minded.

If you haven't already read up on Lyme tests and false negatives it might be a good thing to do.

LymeSick 🌟
Regular Member


Date Joined Aug 2017
Total Posts : 234
   Posted 3/5/2018 12:48 PM (GMT -6)   
This is what I do because I can't afford LLMD's either, you just have to find the right doctor and be completely honest about your financial situation.


I brought Dr. Horowitz's book (How can I get better) to my doctor and we've been working with it.

Rocko9999
New Member


Date Joined Mar 2018
Total Posts : 3
   Posted 3/5/2018 12:53 PM (GMT -6)   
Girlie said...
Rocko9999 - Sorry, but it sounds like you have lyme disease.

So, it's only been a few weeks at this point?

I doubt if your regular Dr. will treat you long enough and with the right doses of abx.
Those symptoms you have - won't go away with a week or two of abx. You will need to be treated for months and maybe longer...you need to treat until all symptoms are gone...plus several more weeks.

I know it's not what you want to hear...and I hope your regular Dr. will be able to help you...but there are LL Dr.'s for a reason.

Here are ILADS guidelines - scroll down to antibiotic dosages...and also for minimum treatment time.
Show your Dr. these guidelines. The dosages are on page 18/19 and treatment time on page 20.





www.lymenet.org/BurrGuide200810.pdf


Thanks. I was camping on 2-3 to 2-4. Symptoms started on 2-7 or 2-8 with the knees. 2-16 is when the symptoms really ramped up-neck stiff/pain, headache, etc.

I started taking some leftover doxy on 3-2. Problem is I only have a couple left.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32601
   Posted 3/5/2018 1:21 PM (GMT -6)   
I'd try and get to a LL dr. a.s.a.p.

In the meantime, see what your regular Dr. will provide you - go armed with documents to back up the longer treatment with the higher doses of abx.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

acarined
Regular Member


Date Joined Jul 2015
Total Posts : 175
   Posted 3/5/2018 1:25 PM (GMT -6)   
The CDC has confirmed cases (check county-level) of Lyme in San Diego.

Rocko9999
New Member


Date Joined Mar 2018
Total Posts : 3
   Posted 3/5/2018 1:37 PM (GMT -6)   
Girlie said...
I'd try and get to a LL dr. a.s.a.p.

In the meantime, see what your regular Dr. will provide you - go armed with documents to back up the longer treatment with the higher doses of abx.


Thanks, will do.
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