Super shaky and panicky

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tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 3/5/2018 1:03 PM (GMT -6)   
Hello again, I was so hoping last night that my herx/flare was getting better but no such luck! I feel so incredibly shaky and panicky this morning, feel like I'm having a hard time breathing but not sure if that's the anxiety/ panic talking! I've been detoxing so much not sure what else to do! I'm really scared! I'm always amazed how each herx can be so different, I think that's what makes it terribly scary since I never know what could be something more! Just want to feel normal, I don't need to feel great, just normal!!!

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5081
   Posted 3/5/2018 1:12 PM (GMT -6)   
the best instant instant calmer is niacin. Get the kind that flushes your face. non-flushing will not work.
this works better than the usual supplements for anxiety and adrenal surges.

It works fast as a band aid. That said, tou need to use something else for the long run, adrenal adaptogens. google niacin , goggle the flushing part to understand this..

Post Edited (astroman) : 3/5/2018 12:10:14 PM (GMT-7)


Szabo246
Veteran Member


Date Joined Sep 2017
Total Posts : 501
   Posted 3/5/2018 1:34 PM (GMT -6)   
I have recently started a supplement called cortisol calm for my anxiety, I think it’s helping although not sure if it’s just a placebo effect, it contains ashwaghanda, rhodiola and magnolia bark.

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 3/5/2018 2:59 PM (GMT -6)   
Thanks Astroman and Szabo246. I have some niacin ( the flush kind) might give it a try, I'll look into the cortisol calm too. It's super bizarre how my symptoms this weekend kept changing, one minute it's my head, then my neck, back, achy, dizzy, shaky, panicky, also pins and needles in hands and feet, but the shakiness this am was definitely scary, felt a bit like I was going to pass out. It's a bit better now but that is how it's been all weekend, one minute I think it's better then the next it's so bad! Ugh! So sorry to all of you who feel as awful as I do...I so hope we all heal and can move on with our lives (I'm so, so ready for my health back)!

Szabo246
Veteran Member


Date Joined Sep 2017
Total Posts : 501
   Posted 3/5/2018 3:49 PM (GMT -6)   
You’re not alone, I have days where I have a low grade fever, that disappears and then I get pain in my ribs, an hour or so and that’s gone and my anxiety kicks in... makes me wonder if some of it is in my head sometimes!! But I know what I feel! Trying to explain it to my husband is another story, I’m sure he must think I’m exagurating some of these things sometimes!!

Stay positive. We will get there smile

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 3/5/2018 4:53 PM (GMT -6)   
THanks Szabo246! Yes, it's so hard for my family and friends to relate, especially how quick it comes on out of no where! This herx/ flare is probably the worst I've had though, I thought it was getting better but now it's so much worse. What worries me is I had my hair cut on Friday and I felt super uncomfortable in the wash bowl they put you in, so I can't tell right now if the excruciating neck pain I'm having is do to a herx or something different. I really can't afford to go to the ER, nor do I want to since they will roll there eyes at my diagnosis but at the same time I don't want to ignore some really scary symptoms! How does one ever no what is normal and what is not is what I'm' wondering?

Tigerrr
New Member


Date Joined Mar 2018
Total Posts : 1
   Posted 3/5/2018 5:21 PM (GMT -6)   
Hi tonyraven! I'm so sorry you're going through this. I dealt with a similar thing for 13 years, and the diagnosis turned out to be post-polio syndrome, which may or may not have been correct. I did finally find a way out though, and the solution I found has helped people with Lyme, too! I'd be glad to share more, but too much to write here. If you're interested, check out this YouTube video. https://tinyurl.com/y9ykfksq

Szabo246
Veteran Member


Date Joined Sep 2017
Total Posts : 501
   Posted 3/5/2018 6:44 PM (GMT -6)   
That’s the million dollar question, what’s normal?? I was convinced my organs were swelling as I had bad tummy pains and tenderness on my abs about two weeks ago, went to the doctors in a panic and they felt around and sent me home, told me there’s nothing there!! Made me feel like I’m going nuts!! And then of course got the ‘i told you so’

I had heart palpitations too and went to ER at midnight, had to drag my husband and my 21 month old with me, waited 4 hours to be told it’s nothing and sent me home.

Wish we all had access to a 24 hour Dr!! That understood lyme and didn’t charge... wishful thinking!

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 3/5/2018 8:28 PM (GMT -6)   
Yes! Wouldn't that be nice! Even better would be to just get over this already! THe best would be if there was a one solution that worked for everyone, so we could just do it and get better! My youngest is 6 yrs, I can't imagine going through this with a toddler! So sorry! Although as I say this I forgot that when i got sick my youngest was 3, so I guess I can sort of imagine!!

MooseSafari
Regular Member


Date Joined Jan 2018
Total Posts : 78
   Posted 3/6/2018 9:07 AM (GMT -6)   
Hope it is some comfort there are many co-sufferers around here that know what you are going through and channeling a lot of sympathy an compassion for your hardships. Although I must agree with previous speaker and say that an eaven better comfort would have been finding a remedee to this nightmare.

There was one sentence in the youtube clip that almost made me laugh, a cynical laugh. I quote:
"don't you just hate it when you go to the doctor, and they cant help you, but they make it all about you"

Quite exactly pinpoints my experience here in Sweden. During 18 months I have suggested at least 5 times this sickness must have to do with this horrible tick-bite late 2014. The answer every time is this is 100% impossible.
So if someone is thinking the health care blindness towards lyme would be due to americas corporation culture or something, the situation isnt one ounce better eaven in the social wellfare country of Sweden.

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 3/6/2018 9:42 AM (GMT -6)   
Yes, it's very sad! I don't understand why Le isn't taken seriously, it seems there are enough sufferers! Every time I meet someone that I tell what I'm going through they say they have a friend that has it and I live in a small town in California. Either there are an incredibly large amount of people that have been given a wrong diagnosis of Lyme or the medical system is just blind to it. I love to when I ask a MD if I don't have it then please explain what is wrong with me and they just shrug there shoulders, maybe it's Fibromyalgia! Ugh, something has to change it's not fair that we have to suffer like this and the insurance companies won't cover a dime! So sorry you to are struggling MooseSafari, but thanks for sharing that I'm not alone...because it is a very lonely disease!

MooseSafari
Regular Member


Date Joined Jan 2018
Total Posts : 78
   Posted 3/6/2018 10:45 AM (GMT -6)   
it sure is a very lonesome sickness and I imagine more so here in Sweden. Lyme wasnt almost not occuring here until like 10-15 years ago, and the cases are still very low. feel like a pioneer here (although not the wild west cool ones...)

Also that babesia and bartonella diseases has not come here yet, but there was a tick found in 2015 containing it....Maybe I am the first case, I wouldnt be surprised...

This forum has been great though, it is a big candle in the dark night...

borrelioburgdorferii
Regular Member


Date Joined Feb 2017
Total Posts : 243
   Posted 3/7/2018 7:23 AM (GMT -6)   
Well if it's any consolation I have trembling episodes like this. I have a few supplements that sometimes help: magnolia bark extract, L-theanine (when I remember or have enough funds to buy some), magnesium citrate, magnesium sulfate towel bath, taurine. And a more exotic one: tianeptine sodium that works very well to stabilize mood.

And this disease takes often depression and anxiety to another level unfortunately.
Bb+Co bite ~10+ years ago, bullseye rash
severe sleep apnea/restless leg syndrome/tachycardia/low grade fevers/migrating joint pain/myalgia/insomnia
neuropsych problems
Supplements
IgG via IgeneX 31-IND, 41++, 58+ (Sep-2016)
IgM via IgeneX 31+, 41-IND (Sep-2016)
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