UPdate with dapsone

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Regular Member

Date Joined Dec 2014
Total Posts : 258
   Posted 3/6/2018 7:36 AM (GMT -6)   
Been two weeks now using dapsone once daily with tindemax once daily and clarithmyocin (perhaps misspelled)

Had a slight die off. labs which are required are normal.

first time in two years my twitching has been reduced to almost nothing in my legs. My ankles which were so bad I couldnt put socks or shoes on are very close to normal again.

I think my protocal is for another month of this...

Veteran Member

Date Joined Mar 2017
Total Posts : 528
   Posted 3/6/2018 8:52 AM (GMT -6)   
So glad to hear you are making progress with this!! Can you tell us what symptoms remain?
Very sick starting around 07/2016
Started treatment 03/2017
Bixain & Cefdinir - 3 months - plateaued
Then Biaxin & Minocycline - 3 months - did not improve
Tinidazole - 500MG 2x a day - 2 weeks
Now taking:
Mepron 5mL 2x a day
Cats Claw - 30 drops 2x a day
Gou Teng - 30 drops 2x a day
CSA - 40 drops 2x a day
Japanese Knotweed - 40 drops 2x a day

Regular Member

Date Joined Feb 2017
Total Posts : 209
   Posted 3/6/2018 9:02 AM (GMT -6)   
That is great news. Keep updating!
Is dapsone iv or oral drug?
Lyme, CPN, Yersinia, Coxsackie, CMV and Bartonella after LLMD visit.
CD57 0, 2, 0, 3

Started treatment in May 2017
Currently on Azithromycin, Doxycycline, Plaquenil, Rifampicin, Delimmun

Regular Member

Date Joined Dec 2014
Total Posts : 258
   Posted 3/7/2018 8:39 AM (GMT -6)   
Dapsone 25 pill once daily. Dr said I could go with more but because of the dangers of the drug I am staying put.

Regular Member

Date Joined Feb 2017
Total Posts : 148
   Posted 3/7/2018 9:19 AM (GMT -6)   
I hear this is a very effective treatment, good for you for finding it works for you.

Forum Moderator

Date Joined May 2014
Total Posts : 30344
   Posted 3/7/2018 11:43 AM (GMT -6)   
Glad to hear of your improvements,tcoach...and how soon they happened.

Are you getting regular blood work while taking it?

Please keep us updated!
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Veteran Member

Date Joined Jun 2015
Total Posts : 2800
   Posted 3/7/2018 1:47 PM (GMT -6)   
i've been doing dapsone and daraprim since monday first time using these two. i don't feel much of anything from them. the rifabutin which i'm also taking (and have taken) is causing some head and nerve issues.

Regular Member

Date Joined Dec 2014
Total Posts : 258
   Posted 3/8/2018 12:03 PM (GMT -6)   
symptoms lingering after two weeks are the slightest of twitches only in lower legs. A little fatigue at times probably due to die off.. Working though.
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