Permanent nerve damage.

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OriolCarol
Veteran Member


Date Joined Dec 2017
Total Posts : 563
   Posted 3/6/2018 11:37 AM (GMT -6)   
Is it common with lyme and co's or inflammation is more prevalent?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32652
   Posted 3/6/2018 11:52 AM (GMT -6)   
There have been a few people on here who have stated they have nerve damage and are taking IVIG to try to repair it.

I'm not sure about prevalence.

At this point you're still early in the game...and I would try not to worry about damage at this point..just keep treating.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4880
   Posted 3/6/2018 12:20 PM (GMT -6)   
girlie- whats the IG in the IV?

DMSO is documented to repair nerves in some cases.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32652
   Posted 3/6/2018 12:29 PM (GMT -6)   
astroman said...
girlie- whats the IG in the IV?

DMSO is documented to repair nerves in some cases.


Immunoglobulin

It's used for Guillain barre syndrome
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

OriolCarol
Veteran Member


Date Joined Dec 2017
Total Posts : 563
   Posted 3/6/2018 12:57 PM (GMT -6)   
I'm little worried because i have a permanent numbness in my stomach and it's annoying but i want to think that it will go away with treatment

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32652
   Posted 3/6/2018 1:12 PM (GMT -6)   
OriolCarol said...
I'm little worried because i have a permanent numbness in my stomach and it's annoying but i want to think that it will go away with treatment


You've only recently started treating...so you really need to give it time.

Lyme..and bart...and perhaps even babesia can affect the nerves...it doesn't mean it's permanent.

I've had several nerve issues clear up since treating.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Psilociraptor
Veteran Member


Date Joined Jul 2016
Total Posts : 1228
   Posted 3/6/2018 1:17 PM (GMT -6)   
A lot of my nerve damage has healed over time. I had it all over my body. I still have some mild neuropathy in my legs but I'm pretty sure my nerves are still infected because that is the first symptom that flares after i stop antimicrobials

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4880
   Posted 3/6/2018 1:57 PM (GMT -6)   
I have not had "lightning bolt fingers" for 8 years now.

It was bad enough 15 years ago that I had to change from a short time job/career which required major keyboarding and mouse work.

Fingers still dont work good enough to play guitar though, oh well.

My left leg was "on fire" for one year, never came back. Went away before abx. Weird.
Had initial lyme symptoms late 80's, then again and with bullseye early 90's. Ended ABX for Lyme in 2015. Rebuilding / fine tuning / fixing muscles since then; member "10 Percenters Lyme Club". What an adventure this has been. Hashimotos adds to the enjoyment.
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