getting worse, not better

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tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 3/6/2018 4:06 PM (GMT -6)   
I don't know what to do! I've stopped my meds for the last few days and have been detoxing a lot but it seems like things are getting so much worse! It's very similar to what happened to me before I knew I had Lyme. I had an Atlas adjustment and then everything fell apart! I was severely dizzy, nauseous and then the pain set in for 3 months non stop in my neck and head! Last week I saw a chiropractor who does muscle testing, I really trust him so when he asked if he could make a small adjustment in my upper back I was fine with it, this was Tuesday but things didn't fall apart until Saturday. The only other thing other then the increase in my meds was that I had my hair cut Friday and I was super uncomfortable in the wash bowl. Do you think something happened to my neck? I'm so, so scared!! I keep getting these horrible waves of dizziness, bad headaches and my eye is extra blurry. I don't know what is the infections and what could be structural! It's just getting worse.

dbwilco
Regular Member


Date Joined Mar 2016
Total Posts : 263
   Posted 3/6/2018 4:56 PM (GMT -6)   
sorry to hear that...

you seem just like me....

im not getting better, despite treatment...

HOWEVER i keep telling myself all my worrying is just depleting my cortisol and adrenals even more, likely causing more problems...

i go into panic mode alot, but then if i can catch myself, i calm down and get through the day...otherwise my worrying affects me sleep, and keeps me sick....

and just so you know im nauseaus, dizzy and brain fogged as bad ive been, and have been an "off pulse" for a week....just gotta detox more, and let my body figure itself out without me making it worse with worry

hang in there

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 3/6/2018 5:00 PM (GMT -6)   
Yes, I keep telling myself the more I worry and stress about what is going on the worse I'm making it, but it's so hard! I just don't understand why we all have to go through this? I used to be so healthy and totally took my health for granted! What I'd give to have it back!

dbwilco
Regular Member


Date Joined Mar 2016
Total Posts : 263
   Posted 3/6/2018 5:04 PM (GMT -6)   
suffering occurs because we our unable to stop the desire that our current lives are different than we wish them to be

acceptance of the current situation brings more peace

why me brings suffering

hard to push those thoughts out, but it only hurts us more

what doesnt kill us makes us stronger

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2116
   Posted 3/6/2018 5:10 PM (GMT -6)   
Hi I had a similar experience after having my hair washed. it was very painful and I had increased numbness after for days.

It did slowly subside. I am so sorry that you are gong through this.

The waves of dizziness/numbness was a major symptom for me in the beginning when I didn't know what was wrong.

Does the chiropractor understand about Lyme and co? I would let them know whats happening.

and your llmd.

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 3/6/2018 11:36 PM (GMT -6)   
Thanks dwilco and Goshawk! Yes, I keep telling myself that the 'poor me' or 'why me' or the constant fear of what's wrong with me is causing symptoms to worsen, but it is so hard when things are extra bad!

Goshawk-how long did the pain and dizziness last for you? My llmd is thinking Bartonella keeps popping up and wants to start me on Bactrium or rifampin but there is a part of me that thinks this is more muscular or structural, so I don't know if starting a new antibiotic right now is the best. Did you do anything for the pain you experienced? I wish I never had my hair cut (assuming that was the cause of all this!!). The chiropractor who does muscle testing had Lyme so he is quite knowledgeable and saw the same llmd I was seeing, he was one of the lucky ones that fully recovered! He is out of the office this week unfortunately but I will get in touch with him next week...fingers crossed things will have settled down by then!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32635
   Posted 3/7/2018 2:09 AM (GMT -6)   
So it was the chiropractor who did the Atlas adjustment?

You're seeing an upper cervical chiro? That's who I see. I'm due for an adjustment in a week or two...but after reading your post...I'm thinking of not going.
I've been feeling a bit better lately...and I'm actually overdue...maybe that's why I'm feeling better.

Since Lyme, I have been very uncomfortable with the hair-washing station at the salon. I feel like I'm tensing up my neck...and it's an awkward position...
I haven't gone back to the salon for a few months...been cutting my own hair...and hubby cuts the back...but I'm not really doing a good job...lol.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

borrelioburgdorferii
Regular Member


Date Joined Feb 2017
Total Posts : 209
   Posted 3/7/2018 4:07 AM (GMT -6)   
I feel my symptoms have taken a turn for the worse as well. Some superbug is going around (flu? cold? virus?) with virulent awful cough, fevers, nasty hacking sneezing and that is on top of what is already a weakened immune system.

So I take over the counter cold meds for 1 or 2 days...hadn't had an acetaminophen for months if not years, take one 500mg and aspirin 325mg, feel ok for 2-4 hours then these past couple of days I have pressure behind my eyes, derealization, depersonalization at grocery store.

Lucky to be at parents house where I can sleep extra if I need to (like 12 hours during the day because I work online at night)...

Side note: (trying poor man's paleo sorta) eating 1/2 lb ground beef patty with extra raw garlic onions n veggies, chest was tight for 2 days, inflammation from alpha gal probably. Cleaning up diet now again, garlic, cayenne, lemon juice concoction.

I can't stay away from caffeine because I feel like I need the energy, but at least I'm zero alcohol which helps my immune system recover faster. Well, any high sugar or fructose sets off a cytokine inflammation cascade for sometimes days.

Anyway, it's the same old thing with this disease (diet controls everything, fasting and no carb, paleo/keto seems to reduce symptoms greatly).

I took just 1 grapefruit seed extract plus a resveratrol a few weeks ago and it triggered a blebbing Herx delayed reaction 2-3 days into it, almost like I can feel the cysts opening up and re-infecting again. And the salicylic acid (aspirin) may have opened cysts and i felt raw and spaced out for 2 days.

Sometimes I feel like I need a rubber padded room and 2 year supply of abx to finally mount a proper war against this disease.

I want to self care, recover, and heal but busy toxic life goes on without me while I'm broke and sick. Just want to have a vacation and get better...

Hope is hard to muster without some sort of independent wealth

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1682
   Posted 3/7/2018 10:02 AM (GMT -6)   
Suggestion for the hair washing dilemma at the salon:

If you are only getting a cut and not color or a perm, wash your hair at home and have the stylist spray it with water to wet it before cutting. It's cheaper too.

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 3/7/2018 10:46 AM (GMT -6)   
Yes! I will never, ever put my head back in that wash bowl again!

Girlie- I've heard Atlas adjustments help a lot of people, but it went horribly wrong for me! One hour after the adjustment I was shaking maddly, super dizzy and nauseous and then a couple days later the pain set in constant in my head and head for 3 months!! I had a massage and she retriggered it, and more intense acupuncture and cupping retriggered it! I'm am so scared that this might have also retriggered it! I haven't had severe neck pain, dizziness, super blurry vision in my right eye and headaches like this in a long time! I'm so very confused what is simply structural (I have a couple bulging discs in my neck) and what is Lyme/co! My llmd thinks that Bartonella keeps popping up and wants to start me on Bactrim or Rifampin, but what scares me is if I start a new antibiotic and herx on top of whatever this whole neurological problem is I don't know if I am strong enough!! But then there is a little part of me that wonders is it the Lyme/co that is doing the attacking of my nervous system and I need to do something about it! I'm trying so hard every time I start to break down crying to pull myself together and say this too shall pass, but I'm really struggling! I wish I really knew the right course of action! So badly wish there was someone who could know exactly what is going on and direct me in the right way. I do trust my llmd but there is only so much they really can do.

Borrelioburgdorferii- so sorry you too are struggling! I so wish there was some magic wand out there that we could swing and we'd all recover! This disease is not for the weak or poor and I feel like I'm becoming weaker and poorer every day with the amount of money we have spent! We have 3 kids and I have to try not to cry when I think of the amount of money we've spent on my health, it would be one thing if I was all better after the thousands and thousands of dollars we've spent, but I'm not and right now I feel worse then ever and so scared! I know the fear is just feeding away at my nerves, the bugs are probably having a massive party!! But I seriously don't know how to be strong enough not to be so, so scared!

If anyone has any suggestions on whether I should restart my antibiotics and malarone and add Bartonella treatment on top I'd love to get your input, again it's so hard to know what to do!! My whole nervous system is beyond messed up right now! Thanks everyone!
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