The only thing that was consistent when I was on the Dr Klinghardt parasite protocol both times, is that I didn't have any episodes of stuttering.
If you want, you can read about
in my first post in my signature line.
My LLMD started me on Byron White AP a couple of years ago. This is an herbal supplement for parasites, mold, and Candida. I took AP daily for several months before I did the two rounds of Dr Klinghardt parasite protocol.
While I was on AP, my body broke out in severe acne. I had bumps that formed on my left eyeball. I was also coughing up oblong jelly like things from my lungs. My hair was falling out/ breaking off in clumps. I had episodes during my daily sauna when my sweat smelled horrible. One time it smelled like very strong ammonia. My eye and nose were burning and watering so much that I had to get out of the sauna before the end of my usual time.
My LLMD thought that this might be a die off. So, that's when we decided to try Dr Klinghardt parasite protocol.
I personally never had any testing for parasites before starting the AP or Dr K protocol. I personally think that parasite testing is like testing for Lyme. It might not show a positive even if you have parasites.
After the parasite protocol, I started to see another Dr who is Lyme friendly. He tested me for mold issues. I tested positive. I did 1 month of Cholestyramine 4 grams, 4 times a day. I noticed some changes for the better. I started to have days that my abdominal pain was so much better.
The Dr did a nasal swab to test for MARCoNS. I was positive. I did 1 month of BEG nasal spray. The only thing that happened was severe insomnia and a very bloody nose. After 1 month of nasal spray, I was retested for MARCoNS. The test came back negative.
So, I started to wonder why am I dealing with so many symptoms yet. Especially crippling fatigue. I was sleeping 16- 20 hours a day. Everything was an extreme effort.
January 2018 I started back on antibiotics for Lyme because I didn't know what to do anymore. I started Bactrim. I noticed a great improvement in energy. After a couple of weeks, I added in Doxy. I did good for a while, then I started to go back to exhaustion. I stopped the Doxy for a couple of weeks and currently I am trying it again.
I am also taking Nystatin daily for Candida and Cholestyramine daily as a binder.
I have tried Bactrim in the past and didn't show any signs of improvement. I don't know if this time is different because I did a parasite cleanse and treated mold? I don't know if I will ever know. All I know is that currently I am doing pretty good. And I hope that it continues this way. I probably have not felt this good in 4 years.
I still have little headaches, head pressure, and other symptoms. But they are nothing like it was when I started Lyme treatment several years ago.
This whole journey is a guessing game.
Misdiagnosed for 27 years. Below is my first thread.www.healingwell.com/community/default.aspx?f=30&m=3509506
Homozygous MTHFR a1298c
Started to talk normal again May 2016
Still dealing with other symptoms
Lyme Disease is a real MTHFR!!!