PCP Wants to Order MRI and Sleep Study

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Date Joined Mar 2017
Total Posts : 647
   Posted 3/13/2018 2:39 PM (GMT -6)   
My Primary Care Doctor wants me to do an MRI and a sleep study just to rule out other things.

My question is, does Lyme usually look like MS on an MRI?

Or is there a difference in the way Lyme affects the brain structure vs how MS does?

I am just worried that my MRI could look like MS and then I am going down another road....

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Date Joined May 2014
Total Posts : 33795
   Posted 3/13/2018 3:04 PM (GMT -6)   
MS shows lesions on the brain. But those lesions could be caused by Lyme.

I don’t think there are lesions that are identified as Lyme- meaning if you have lesions docs will say you have ms.

A LLMD should know that Lyme can cause these.

Dr J does a spect scan - and I think he is looking for blood flow (I think lacking blood flow = Lyme)

You don’t have to down the ms road because “ms” can be Lyme - so you can treat Lyme. MS doesn’t have any really good treatments - nothing to resolve it - just meds to help with symptoms
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Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
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Veteran Member

Date Joined Jul 2017
Total Posts : 793
   Posted 3/13/2018 4:04 PM (GMT -6)   
I've got multiple brain lesions. My neurologist is somewhat lyme literate, he has not mentioned ms. In some cases, they may want to do a spinal tap. I had one done and don't recommend it unless it is absolutely necessary. I didnt have to rule out ms. However, it did rule it out while looking for other things.

Regular Member

Date Joined Mar 2018
Total Posts : 74
   Posted 3/15/2018 9:16 PM (GMT -6)   
Hi! I just read your post and wanted to let you know I went down the MS road bc my symptoms were all very similar to MS. I had full brain mri, cervical spine, thoracic and lumbar mri's... they didn't find any lesions anywhere.

I also went to 3 neurologists, one at UCSF and none of them thought there was any reason to believe I had MS. But none of them offered me any explanation to my symptoms or treatment ideas.

I had a friend that was misdiagnosed with Ms, and did lyme treatment for a year - she had brain lesions and they all resolved after lyme treatment. I believe ms is caused by Lyme after watching Under our Skin.
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