Oh, Hoagie. I am so happy to hear that you are able to do HBOT. (I had recommended this in a prior thread with you.) And wow - you are very fortunate to have their support. I'm truly sorry you are in need, but since you are, that is really truly wonderful that you they are able to help you. As you know, HBOT is not inexpensive. It is an amazing treatment, but it's generally unattainable due to location, availability, and cost for vast majority of people (which is extremely unfortunate).
There is a book called Oxygen Revolution that talks in great length about HBOT. Unfortunately, there is very little information about HBOT and lyme though in the book. However, the SPECT before and after (HBOT) pictures of the brains is truly inspirational!
We do have a fair amount of experience with this, and we are probably one of very few people who have experience with it with 4 members in the same family!! All four of us (me and the kids) have done HBOT - hard chamber and soft chamber. We have all had varying responses to it. However, for Kid#1, it was one of the most significant things we have done for him. It was a huge game changer for him, and because it was so expensive (and unknown), it was one of the last things we tried. But it made signficiant improvements for him. We did 40 sessions of hard chamber, and he really didn't react much during those weeks (except for few increases moods/irritability). However, after we were done, it transformed him (as his body was healing/improving from the treatments). My HBOT clinician said that some people see the effects a month after completing the series, and that was very true for his situation. (He also did repeat hard HBOT series later and then soft chamber at home too.)
Anyways, I'm happy to answer questions or share more specifics with you. I truly am excited for you and wishing you the best in HBOT journey. Please do share with us how it goes for you. Keeping fingers crossed for you!!
Thank you so much Daisies.
I'll have to check out that book. I will be doing 40 dives as well.
I'm hoping everything goes smooth. Since Lyme and tx, I have developed some heavy anxiety. I used to be able to do MRIs. But, me last one went horribly. I tried twice and they ended up having to put ativan in my IV and put a mirror on the face cage thingy that they slide over your head so I could see out the bottom. Seems I have developed some claustrophobia. So, I am wondering if this is going to be an issue in the chamber. I have seen the ones they use, and they are pretty big and clear. But, still. I called the facility this morning and expressed my concern. She says that since she has been working there (since last July) no one that she has seen has had an issue with it. Since there's enough room for me to move around inside, and it's clear, I'm thinking I'll be ok. But, this whole ordeal has really thrown me for a loop. So, who knows.What face cage thingy? I never had one in any of the mri’s I had.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi