Lyme Patients With Mold Also (MMP-9 & TGF Beta 1)

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medlabscientist_topatient
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Date Joined Dec 2017
Total Posts : 28
   Posted 3/14/2018 4:58 AM (GMT -6)   
I have been treated for mold Consistently since the end of September 2017, and while I finally passed the VCS (Visual Contrast Sensitivity), which I took to be a good sign, my MMP-9 and TGF Beta 1 have never been higher. MMP-9 = 1074 & TGF Beta 1 = 5422. I’m being treated with an herbal protocol for Lyme and Coinfections as well (not anyone’s “ famous” protocol, just my LLMDs suggested one) with plenty of supplements he ordered for daily consumption as well. I’ve been detoxing like CRAZY! 5 -6 gallons of water a week, infrared saunas daily at 105 degrees F for 20 minutes, epsom salt foot soaks or baths, meditation, prayer, dry brushing, lymphatic massage of some bodily areas, essential oil diffusing and music, all daily. Just throwing it all out there.

My house is clean. New vinyl plank flooring, ceramic tile or laminate tile throughout. No carpeting. No cloth furniture, No drapes or curtains; all new blinds, new mattress, new clothes, all books thrown away before renovation occurred in the summer of 2016. I also have a UV light over my furnace coil. Clean air ducts. Water damage inspection showed nothing. I had a team come in and suggest that the high ERMI was mold spores in the carpet coming from the outside as soon as a door or window was opened, and it was acting like a sponge. Two pets added though: toy poodle and late last year, a Holland lop rabbit. Hay as the source of mold could be the answer? I feed him oat hay from a good family farm, and it’s always dry when and smells fine when I open the 5 lb. box.

I thought I was making progress in the mold arena. Not even close with Lyme and the coinfections.

Does anybody have any other suggestions for why these lab values have gone up? The MMP-9 was trending downward until this. All of my previous labs have also gone through LabCorp.

medlabscientist_topatient
Regular Member


Date Joined Dec 2017
Total Posts : 28
   Posted 3/14/2018 5:06 AM (GMT -6)   
I should add reference range for each, even though these are for Lab use only...

TGF Beta 1 reference range 867-6662 (pg/mL)

MMP-9 reference range <984 (although most know it should be below 300

I would also like to add my appreciation in advance for thoughtful replies. ☺️

medlabscientist_topatient
Regular Member


Date Joined Dec 2017
Total Posts : 28
   Posted 3/14/2018 5:18 AM (GMT -6)   
So sorry...Lyme and mold brain!

I would also like to add that the 4 toxic species of mold (Real Times Labs) in my body were from a water damaged apartment I lived in 18 years ago.

Defective bathroom fan leading to moisture collecting in the connection bedroom, which then led to mold growth that I failed to recognize immediately or have it properly cleaned. Plus I have the HLA gene for mold susceptibility. 😔

k07
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Date Joined Sep 2015
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   Posted 3/14/2018 5:29 AM (GMT -6)   
I take SPM Active by metagenics (fish oil) and my mmp-9 cut in half. But my tgf beta went up some. I have appt next week.

medlabscientist_topatient
Regular Member


Date Joined Dec 2017
Total Posts : 28
   Posted 3/14/2018 5:37 AM (GMT -6)   
k07 said...
I take SPM Active by metagenics (fish oil) and my mmp-9 cut in half. But my tgf beta went up some. I have appt next week.


I replied wrong...ugh...

My LLMD has me on their office formulation of fish oil (total omega 3 = 950 mg, EPA = 430 mg, DHA = 390 mg, and additional omega 3 = 130 mg) twice daily, k07. I’ll most certainly look into your brand. Thank you. ☺️

Lapis_29
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Date Joined Sep 2017
Total Posts : 844
   Posted 3/14/2018 9:22 AM (GMT -6)   
medlabscientist_topatient said...
Two pets added though: toy poodle and late last year, a Holland lop rabbit. Hay as the source of mold could be the answer? I feed him oat hay from a good family farm, and it’s always dry when and smells fine when I open the 5 lb. box.


pretty much 100% of hay is moldy, doesn't matter if its dry or not. so yeah, thats a definite mold source right there

have you tried d-limonene? do a forum search for it

ChickenArise
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Date Joined Nov 2015
Total Posts : 1506
   Posted 3/14/2018 10:34 AM (GMT -6)   
What I find fascinating about the oils is that high dose flax oil was giving me major inflammation relief from mold exposure yet hammered my testosterone levels down enough to give me ED. A couple weeks after ceasing flax the problem corrected but the Wild Alaska salmon fish oil I have replaced it with does nothing for the inflammation.

I wonder why that is and if the oestrogen in the Flax Oil had anything to do with this. If it does then I probably wouldnt be able to find a better oil to use, but if it doesnt then there may be one out there.

The root of the problem however is ongoing exposure and reducing this is my top priority.

2014 Mold Sick,2015 Clinical Lyme and co.,2016 Morgellons,2017 Remission
YT: ClintFromNYtoVA2
Twitter: @ClintFromNYtoVA
Blog: www.fascinatingtimetobealive.blogspot.com/
" The path to disappointment is paved with expectations "

Lapis_29
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Date Joined Sep 2017
Total Posts : 844
   Posted 3/14/2018 12:12 PM (GMT -6)   
ChickenArise said...
What I find fascinating about the oils is that high dose flax oil was giving me major inflammation relief from mold exposure yet hammered my testosterone levels down enough to give me ED. A couple weeks after ceasing flax the problem corrected but the Wild Alaska salmon fish oil I have replaced it with does nothing for the inflammation.

I wonder why that is and if the oestrogen in the Flax Oil had anything to do with this. If it does then I probably wouldnt be able to find a better oil to use, but if it doesnt then there may be one out there.

The root of the problem however is ongoing exposure and reducing this is my top priority.


are you using a high quality brand of fish oil?

/labdoor.com/rankings/fish-oil

medlabscientist_topatient
Regular Member


Date Joined Dec 2017
Total Posts : 28
   Posted 3/14/2018 12:31 PM (GMT -6)   
I suppose I just need to discuss this with my doctor at my next appointment in April.

when I had rabbits before and was treating and they were eating hay, Both labs were lower than they are now. Obviously something else is going on

medlabscientist_topatient
Regular Member


Date Joined Dec 2017
Total Posts : 28
   Posted 3/14/2018 12:35 PM (GMT -6)   
ChickenArise said...
What I find fascinating about the oils is that high dose flax oil was giving me major inflammation relief from mold exposure yet hammered my testosterone levels down enough to give me ED. A couple weeks after ceasing flax the problem corrected but the Wild Alaska salmon fish oil I have replaced it with does nothing for the inflammation.

I wonder why that is and if the oestrogen in the Flax Oil had anything to do with this. If it does then I probably wouldnt be able to find a better oil to use, but if it doesnt then there may be one out there.

The root of the problem however is ongoing exposure and reducing this is my top priority.


I'm not sure how this answers my questions or concerns?

Hoagie
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Date Joined Jul 2017
Total Posts : 619
   Posted 3/14/2018 12:42 PM (GMT -6)   
medlabscientist_topatient said...
ChickenArise said...
What I find fascinating about the oils is that high dose flax oil was giving me major inflammation relief from mold exposure yet hammered my testosterone levels down enough to give me ED. A couple weeks after ceasing flax the problem corrected but the Wild Alaska salmon fish oil I have replaced it with does nothing for the inflammation.

I wonder why that is and if the oestrogen in the Flax Oil had anything to do with this. If it does then I probably wouldnt be able to find a better oil to use, but if it doesnt then there may be one out there.

The root of the problem however is ongoing exposure and reducing this is my top priority.


I'm not sure how this answers my questions or concerns?


He was just giving some insight into possible relief for mold sufferers. Good insight at that.

medlabscientist_topatient
Regular Member


Date Joined Dec 2017
Total Posts : 28
   Posted 3/14/2018 3:48 PM (GMT -6)   
Lapis_29 said...
medlabscientist_topatient said...
Two pets added though: toy poodle and late last year, a Holland lop rabbit. Hay as the source of mold could be the answer? I feed him oat hay from a good family farm, and it’s always dry when and smells fine when I open the 5 lb. box.


pretty much 100% of hay is moldy, doesn't matter if its dry or not. so yeah, thats a definite mold source right there

have you tried d-limonene? do a forum search for it


I figured it was, and answered separately below. My LLMD has me on a new mold protocol now. These results were before I started the new protocol. No I’ve not tried d-limonene. I’m quite reactive to citrus as far as histamines go. I’ve not tried anything a doctor hasn’t prescribed other than doing bee venom therapy on my own, which was horribly wrong for my overactive immune system at the time. Now I’m back to being immunosuppressed.

ChickenArise
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Date Joined Nov 2015
Total Posts : 1506
   Posted 3/17/2018 6:45 PM (GMT -6)   
Probably not, Lapis, I use a big box store's house brand of Wild Alaskan Salmon. If it worked in the slightest I might try a better brand but I get nothing no matter how much I take. How much do you take? I even keep it in the refrigerator after opening.

Hoagie said...
medlabscientist_topatient said...


I'm not sure how this answers my questions or concerns?


He was just giving some insight into possible relief for mold sufferers. Good insight at that.


What Hoagie said (Thanks for having my back).

2014 Mold Sick,2015 Clinical Lyme and co.,2016 Morgellons,2017 Remission
YT: ClintFromNYtoVA2
Twitter: @ClintFromNYtoVA
Blog: www.fascinatingtimetobealive.blogspot.com/
" The path to disappointment is paved with expectations "

medlabscientist_topatient
Regular Member


Date Joined Dec 2017
Total Posts : 28
   Posted 3/17/2018 7:20 PM (GMT -6)   
ChickenArise said...
Probably not, Lapis, I use a big box store's house brand of Wild Alaskan Salmon. If it worked in the slightest I might try a better brand but I get nothing no matter how much I take. How much do you take? I even keep it in the refrigerator after opening.

Hoagie said...
medlabscientist_topatient said...


I'm not sure how this answers my questions or concerns?


He was just giving some insight into possible relief for mold sufferers. Good insight at that.


What Hoagie said (Thanks for having my back).


I’m sorry that you felt you needed someone else to “have your back,” or got so easily offended by my pertinent question of why you wrote what you did, when it didn’t cover my topic. I was asking this question for those who have mold and had these tests done, which really tell us nothing, since they’re not specific for mold. It is my question, and I am allowed to question your response to it.

Lapis_29
Veteran Member


Date Joined Sep 2017
Total Posts : 844
   Posted 3/17/2018 7:26 PM (GMT -6)   
ChickenArise said...
Probably not, Lapis, I use a big box store's house brand of Wild Alaskan Salmon. If it worked in the slightest I might try a better brand but I get nothing no matter how much I take. How much do you take? I even keep it in the refrigerator after opening.

Hoagie said...
medlabscientist_topatient said...


I'm not sure how this answers my questions or concerns?


He was just giving some insight into possible relief for mold sufferers. Good insight at that.


What Hoagie said (Thanks for having my back).


the problem is oxidation. omega 3 is VERY susceptible to oxidation, and once its oxidized it no longer has any health benefits no matter how much you take.

get a high quality brand and see if it works better, that would be my advice.

The Dude Abides
Veteran Member


Date Joined May 2017
Total Posts : 1130
   Posted 3/17/2018 8:12 PM (GMT -6)   
medlabscientist_topatient,

Regrettably, I'm a non-medically-literate layperson, but I wondered if you might have a friend or family member that could host your pets for a while? Perhaps that would allow you to see if your lab values might reverse and trend in a better direction? A very low-tech approach.

I must say you've done an incredible job in improving your environment. Obviously, you've put a lot of resources into the matter. I do hope you find the culprit and obtain the healing you deserve.

Good luck, friend!

The Dude

p.s. Have you tried Spanish Black Radish?

/www.youtube.com/user/NutritionalHealingA2/search?query=mold

See the video titled "Better Than Bleach! Kill Mold/Yeast in Your Body in 3 Simple Phases."

(I'd argue that few things are "simple," when it comes to illness.)
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