Struggling with this...

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Trish
New Member


Date Joined Mar 2018
Total Posts : 1
   Posted 3/14/2018 7:23 PM (GMT -6)   
Summer of 2016 I was bitten by several ticks. I had my husband pull one off my back. I pulled one off my stomach, my leg, and my thigh.

By September 2016, I had "The Rash" but had no idea it was "The rash."

October2016-January 2017 I was so sick. You name it I got it. Cold from hell. Flu. Rinse/repeat. Mind you, I'm the person everyone hates, as I typically NEVER get sick. I'm the eat healthy, work out 6 days a week kinda person.

When I went to the doc (urgent care) in Jan 2017 for the flu, I showed her my rash, she immediately said "That looks like Lyme Disease." But only said to check with my regular doc.

Fast forward to march 2017 I finally break down and go to the doc for Lyme. She immediately says yes it is, lets start the protocall - and I foolishly said no, lets do a blood test. Came back negative, so I thought HA! Having no idea at that time, that most come back negative.

The rash moves. It comes and goes. Right now it's a lovely bulls-eye on my lower stomach. I also have a few other rashes above it, and on the opposite side.

When it comes I feel HORRIBLE. Fatigue doesn't quite explain it. Flu like symptoms, with a constant lower back ache, legs ache... I just ache. Nothing tastes good. I'm so cold all the time. (fevers) exhausted. I have days where I feel like ME... and then I'm knocked down. I haven't worked out in two years. (not like me) I've gained 55lbs, and I don't see how, as eating is a chore. I get sharp pains in the side of the bulls-eye, out of the blue, random, that feel like a quick STAB, then it's gone. Headaches. Dull, throbbing kind that linger.


So I broke down today, after the last few months of feeling like absolute crud, and made an appointment with the doc tomorrow. I kinda feel like an idiot for waiting so long, but like others have said, this thing plays mind games with you. I thought because the blood test was negative, I was fine. The rash went away... but like I said, it comes and goes. each time it comes back, it's bigger, and in a slightly different place on the right side of my stomach.


I'm scared for tomorrow. You don't know how many times I've thought I should get this checked again, and then it goes away and I feel fine, so I think Am I crazy?

I just want to feel like ME again. It's been 2 years of a constant merry go round.

Thanks for listening.

Serfr
Regular Member


Date Joined Jan 2014
Total Posts : 256
   Posted 3/15/2018 4:34 AM (GMT -6)   
Hi Trish, welcome. i was the same, always busy, active, felt a tick behind my ear, flicked it off and forgot about it because I had too much to do.
Check out New to Lyme, the top post on the page. I hope your appointment goes well.
Tried abx and iv abx for 2 yrs, now trying herbs; Chronic Tonic (bottled) CSA formula, JK, Houttunia, Andrographis, Cats Claw, Oil of Oregano
Sx Aug '13-
Extreme fatigue, dizziness, head pressure, 1 seizure, ringing ears, crawling sensations everywhere, throat pain, groin pain, very cold hands/feet, joint pain, sole pain, body/muscle spasms, teeth/gum pain, constipation, depression, panic attacks

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1603
   Posted 3/15/2018 5:53 AM (GMT -6)   
You really need to see a doctor who specializes in only lyme disease. Main stream primary care MD and infectious disease specialist won't have a clue on how to treat thoroughly and will only read treatment guidelines from an out of date book.

Post another topic titled "seeking an LLMD in (city nearest you)" and enable the private e-mail option in your registration profile so people here can send you referrals in your area.

good luck

physedgirl09
Regular Member


Date Joined May 2017
Total Posts : 399
   Posted 3/15/2018 6:31 AM (GMT -6)   
so sorry your going through this!! yeah you def need to see an LLMD... regular drs. wont help you at this point! Keep us posted!
Symptoms since July 2016. Very mild: slight dizziness but nothing to call the doctor about.
February 2017=flu like symptoms; felt like i was dying from February to June. Tested positive for active EBV.
June 2017= tested western blot: reactive lgm 23 lgg 41 & 66
Started ABX treatment in June to present with llmd
functioning at about 70%. determined to get to 100%

MooseSafari
Regular Member


Date Joined Jan 2018
Total Posts : 78
   Posted 3/15/2018 7:40 AM (GMT -6)   
I am feeling for you as well, hope the doctor appointment will be good news. I have a little bit different story from when I was bitten. It was on inside of the thigh and there developed a big rectangular square about 7-8 cm. Was itching like hell, but I didnt experienced any particular sickness. It came gradually a year or so after that.
Maybe it could be flu or some another thing for you, hope you will get well soon!

Missouri
Regular Member


Date Joined Sep 2017
Total Posts : 336
   Posted 3/15/2018 7:50 AM (GMT -6)   
physedgirl09 said...
so sorry your going through this!! yeah you def need to see an LLMD... regular drs. wont help you at this point! Keep us posted!


I agree 100% with physed girls here. Get to an LLMD. Regular doctors will probably not help you now.

borrelioburgdorferii
Regular Member


Date Joined Feb 2017
Total Posts : 209
   Posted 3/15/2018 8:03 AM (GMT -6)   
Hello Trish, so sorry you are going through this also...all the symptoms I feel like I've had every one of them, especially the not working out, I used to be so active and I'm above weight too.

And FYI, like others here are telling you, normal doctors will likely not be much help, find a good LLMD with a good protocol, being Lyme-literate makes a huge difference in knowing what's going on with your body.

Serfr
Regular Member


Date Joined Jan 2014
Total Posts : 256
   Posted 3/15/2018 8:31 AM (GMT -6)   
I agree w everyone here, i misread, i thought you were seeing a LLMD.
Tried abx and iv abx for 2 yrs, now trying herbs; Chronic Tonic (bottled) CSA formula, JK, Houttunia, Andrographis, Cats Claw, Oil of Oregano
Sx Aug '13-
Extreme fatigue, dizziness, head pressure, 1 seizure, ringing ears, crawling sensations everywhere, throat pain, groin pain, very cold hands/feet, joint pain, sole pain, body/muscle spasms, teeth/gum pain, constipation, depression, panic attacks

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32609
   Posted 3/15/2018 10:19 AM (GMT -6)   
Hi Trish,

I somehow missed your post yesterday.


I also agree - you should see a LLMD...not a regular Doc or an ID Dr. (unless he/she is Lyme literate)


If you need help finding one, just start a new thread: "Looking for LLMD in/near_____" and fill in the blank.

Members can send you recommendations. You will need to enable your email address though as we don't post the names of the LLMD's on here for privacy reasons.

You can also email me and I'll check my list and send you names if I have any in/near your location.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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