Advice on LLMD RP in Northern CA

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NorCal
New Member


Date Joined Nov 2017
Total Posts : 16
   Posted 3/14/2018 10:55 PM (GMT -6)   
Anybody out there seeing/seen RP in Northern CA. He has a 6 month wait list and am wondering if he is worth the wait?
Best,


Symptoms started 2001; misdiagnosed for years. CDC Bb diagnosed in 2016. Hashimoto 2017. Grew up near Cape Cod, MA

Started treatment in 2016
Buhner's protocol, lots of supplements, paleo diet 2016-17 - no noticeable pain relief benefits
Doxy/Plaquenil/Rifampin/ Pulsing Tindamax Nov 17- present - No noticeable benefit

Xabian
Regular Member


Date Joined Feb 2018
Total Posts : 50
   Posted 3/14/2018 11:42 PM (GMT -6)   
I’m currently on his waitlist. I have another 2 months.
IgM - 23 IND/31+++/39 IND/41++/83-93+
IgG - 28+/39 IND/41+++/66+
Positive for Myco and Mold Toxicitity
Currently taking Buhner’s Core + Myco protocols
Also taking MCP for mold

Post Edited (Xabian) : 3/14/2018 10:49:45 PM (GMT-6)


NorCal
New Member


Date Joined Nov 2017
Total Posts : 16
   Posted 3/14/2018 11:57 PM (GMT -6)   
Xabian said...
I’m currently on his waitlist. I have another 2 months.


How did you determine Mold was an issue? I am trying to unravel my health issue and am starting to wonder if mold is an issue for me
Best,


Symptoms started 2001; misdiagnosed for years. CDC Bb diagnosed in 2016. Hashimoto 2017. Grew up near Cape Cod, MA

Started treatment in 2016
Buhner's protocol, lots of supplements, paleo diet 2016-17 - no noticeable pain relief benefits
Doxy/Plaquenil/Rifampin/ Pulsing Tindamax Nov 17- present - No noticeable benefit

Xabian
Regular Member


Date Joined Feb 2018
Total Posts : 50
   Posted 3/15/2018 12:07 AM (GMT -6)   
I lived in a travel trailer for a year that has since been remodeled. There was a leak in the plumbing underneath and was full of mold. It was also quite damp in that location. Being exposed to mold reactivated my EBV I believe. Just had a c3a and c4a test done to determine. I think Realtime Labs offers a new urine test to determine mold toxicity, but is not covered by insurance. I did c3a and c4a because my insurance covers it.
IgM - 23 IND/31+++/39 IND/41++/83-93+
IgG - 28+/39 IND/41+++/66+
Positive for Myco and Mold Toxicitity
Currently taking Buhner’s Core + Myco protocols
Also taking MCP for mold

NorCal
New Member


Date Joined Nov 2017
Total Posts : 16
   Posted 3/15/2018 12:20 AM (GMT -6)   
Is a c3a and c4a considered an accurate diagnostic for mold toxicity? My c4a result was 701 which seems too low to suggest mold toxicity , but I am not sure if that is definitive, or f there are other tests to confirm mold issues?
Best,


Symptoms started 2001; misdiagnosed for years. CDC Bb diagnosed in 2016. Hashimoto 2017. Grew up near Cape Cod, MA

Started treatment in 2016
Buhner's protocol, lots of supplements, paleo diet 2016-17 - no noticeable pain relief benefits
Doxy/Plaquenil/Rifampin/ Pulsing Tindamax Nov 17- present - No noticeable benefit

Xabian
Regular Member


Date Joined Feb 2018
Total Posts : 50
   Posted 3/15/2018 12:35 AM (GMT -6)   
701 seems on the lower end. From what I have read on a few forums, C4a is used to determine current/ongoing exposure, but not amount of mold build-up in the body. Real Time Labs urine test is the best available option at this time I believe.
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