I'm new, but not new to Lyme Disease.
I was diagnosed, via Igenex, in 2013. I've had waxing/waning symptoms, took the Nano Trap urine test in 2015 and was "in remission".
Currently, I feel so bad, it came on over a period of six months, my functional medicine doctor thought it may be Lyme again, or may be something else.
I'm currently dealing with an early antigen IGG ebv result that is positive, about
I tried adding gluten back into my diet a couple of months ago, after a healer told me I should be okay to try it (anyone understand the desperation that we go through to feel better? Sometimes choices can be strange). Realized it was a bad idea, stopped it last month.
I've never been so ill. It feels like fire in my skin.
I just found out that a perfectly good tooth went perfectly bad, and I need either a root canal or extraction.
I wrote my will, just in case my heart fails (something physical happens). I'm in a dark place (NOT planning anything, I'm actually surprisingly strong in spite of this nightmare); I actually LOVE LIFE, but my body is a cage at this point, and my answers aren't certain.
Mainstream medicine has seen my tests and said, "Let's get you on antidepressants so you can have a baby!" (I'm not kidding, this was after I wore a holter monitor for 24 hours after a cardiac issue that landed me in the ER).
My functional medicine doctor is kind of not sure what to do with me. My father has had serious health issues his whole life. He has Polycythemia Vera, hemochromatosis, and kidney disease, among other things, and he started getting sick in his thirties.
In addition to the positive Igenex test, I'm showing low platelet counts, and high MPV like my dad. Three generations ahead of me died from/have blood cancer.
I'm just in a really fearful place and having a lot of trouble not worrying that I may pass away from this. I am on 1,500 mg of Amoxicillin for my tooth and I'm feeling ... dark, overwhelmed, tired (I've slept A LOT), and the burning pain on my skull that I've had for six years (no answers as to what it is, and I've seen SEVERAL doctors), is worse right now.
I'm 38 and realize that I really will never have children.
My mom is dying from alcoholism.
I watch my husband live life and want me to join him, and I can't.
It's hard for me to write this, but I am scared, to the bone. The tears are always right there, waiting in the wings, burning my eyes.
My friends/family have expectations that I will somehow bounce back, as I have tried to do in the past, but I can feel the exhaustion, to the bone.
I just need someone(s) to talk to, maybe share a laugh with. Anyone out there?
If anyone has ANY recommendations re: neuralgias of the scalp/head/face, like medications/creams/etc., I would love to hear them. Or, any explanations why they happen and what can help. Thank you!
Post Edited (thedogma) : 3/15/2018 10:38:12 AM (GMT-6)