Welcome to our community!
How long have you had symptoms?
Did you do a lumbar puncture to test for Lyme and Bart? Sorry to hear that as it's not a good test.
Your WB shows you do have Lyme. Good to see you have a LLMD to treat you.
Have you got a good detox regimen going ? This can help flush out the toxins and reduce inflammation.
Particularly for the CNS, you can try Nutramedix Pinella or Jernigan's Neuro-Anti-tox II CNS/PNS.
They should be available on Amazon for purchase .
Thanks so much for responding. My symptoms started sept 2017. Driving and started feeling like I was having a heart attack. No heart issue found at ER, but heart kept racing, hot flushes, startling while asleep, insomnia, nausea, no appetite, head foggy, couldn’t concentrate.
Yes I did the LP to test for neuro Lyme and Bart. Neurologist also checking other things MS etc. I read that after the fact
I’m just hoping for definitive answers. I hate this, just seems like it’s no end point.
I don’t have a detox regimen. I bought some activated charcoal but haven’t started it yet. I’ll get one of the ones you suggested.
Sometimes it feels like my brain is on fire and the pressure is crazy. I don’t want to complain bc I don’t hv joint pain, severe fatigue or other things I read people suffering with. But I’m struggling with the psych symptoms esp when my head is burning or feeling pressure. I’ve never had any type of anxiety before this and I don’t feel depressed which makes it even crazier to deal with when the intrusive thoughts start to get overwhelming. I feel like I’m losing my mind and myself.
I’m fighting but scared that I’ll never be myself again. I was a normal healthy 35yo then my life just went off the rails. I just don’t understand how this disease is so hard to get rid of or know when to stop meds. I’ve lost so much weight and can’t seem to stop losing weight.
I would love to go to Dr J (I have a family friend that went to him and she’s been better for a few years just minor anxiety) but I can’t afford to pay out of pocket, I’m seriously thinking abt it though. I don’t know if I need IV abx. Is it normal to hv neuro/psych symptoms as your first symptoms?
Are you talking about
the Dr J in Kansas or the one in Wasington,DC?
I recently went to the clinic in Washington.
Make sure you tske the charcoal a couple hours (on either side) away from any meds, supplements, food..as it will bind to anything in your GI tract and remove it.
My fave detox is warm (not hot) Epsom salt baths. I also add in some lavender and marjoram EO's.
I also dry brush my skin prior to the bath..it removes dead skin and
opens the pores allowing for better detoxing.
You should be taking probiotics everyday, drinking lots of water. (And at least one full glass with the charcoal
Some people find taking Alka Seltzer gold helps with toxin removal.
Eating a clean diet is important, too.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi