Bransfeild has me terrified!

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Woodduck12
Regular Member


Date Joined Dec 2017
Total Posts : 135
   Posted 3/15/2018 8:29 PM (GMT -6)   
I was reading some of Bransfeild articles he it seems the outcome for nuero psch Lyme symptoms are not the greatest. I have had alot of the nuero psych involvement and I worry I will be one of the untreated ones

borrelioburgdorferii
Regular Member


Date Joined Feb 2017
Total Posts : 209
   Posted 3/15/2018 10:38 PM (GMT -6)   
I hear you, I have a bunch of antibiotics that I didn't take, fearing a neuropsych episode that are now expired. I only was able to get a few metronidazole and some minocycline, and a bunch of doxycycline which would have likely caused a mean herx.

Girlie
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Date Joined May 2014
Total Posts : 32667
   Posted 3/16/2018 1:01 AM (GMT -6)   
Woodduck - I don't even know who Bransfelid is...I don't think I want to know based on what you reported.


I had plenty of psych symptoms.

Early on - bouts of depression and overwhelming anxiety. So bad, that my husband had to stay home from work a few nights (he was working night shifts).
And after that, he was driving home from work on his lunch break just to see me for 10 minutes and check that I was okay.

My depression is gone...and my anxiety is about 95% gone. I get woken with it in the morning....lasts for a couple of minutes and now and then very minor sometimes during the day/evening for a few minutes.

I also had fear intermittently. Fear that this disease would be with me forever...and fear that I may have something else other than lyme that is untreatable.
I think it was also part of the neuro lyme package. (or bart...or babesia)

There are many examples of people with neuro lyme who have fully healed....try to focus on that if you can... and maybe the ones who didn't heal....stopped treatment too soon.
We don't have all the details..

Keep your eyes on the prize. smile
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

mpost
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Date Joined Feb 2015
Total Posts : 1522
   Posted 3/16/2018 1:25 AM (GMT -6)   

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32667
   Posted 3/16/2018 1:42 AM (GMT -6)   


Is this the video where he says that the outcome for neuro lyme psych symptoms isn't so great?
I went through it quickly and didn't hear anything like that. But, I may have missed it.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Woodduck12
Regular Member


Date Joined Dec 2017
Total Posts : 135
   Posted 3/16/2018 6:44 AM (GMT -6)   
Read an article. I'll try to find the link.

borrelioburgdorferii
Regular Member


Date Joined Feb 2017
Total Posts : 209
   Posted 3/16/2018 8:01 PM (GMT -6)   
I think maybe Woodduck12 is pointing to the neuropsychiatric manifestations of Lyme n Co that Bransfield has witnessed. I think maybe it must have been like being in the mental ward during a Syphilis epidemic.

And I'm with you Girlie I don't think we need to be so fearful and without hope as it may seem.

For a more uplifting outcome...try David Martz' having cured himself of ALS(Lyme) with antibiotics and his research documenting similar success in his treated patients.

Woodduck12
Regular Member


Date Joined Dec 2017
Total Posts : 135
   Posted 3/17/2018 1:00 PM (GMT -6)   
thanks, for the hope I think I was going through a herx or flair because I had this aweful depression for five days! I am a happy go luck guy but I felt like I was in a dark place and didnt want to go on. Was pretty bad. I am starting to figure things out and the good news is that my cognition is finally getting better it seems that the psch stuff comes from the head pressure and inflamation that is going on. It is not as bad as it has been in the past but depression was pretty bad. the anxiety was lower though. If it aint one thing its another.

You guys are my only support. I also looked into auto immune encephalitis as well. Its crazy how I can be close to my old self some days and then bam I will go a week or more feeling like a lunatic and barley hanging on.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32667
   Posted 3/17/2018 1:11 PM (GMT -6)   
Woodduck12 said...


You guys are my only support. I also looked into auto immune encephalitis as well. Its crazy how I can be close to my old self some days and then bam I will go a week or more feeling like a lunatic and barley hanging on.


That happens to me too.. but the past several weeks I haven’t been dipping to that low point anymore - hoping I’ve finally turned the corner - hope so.

I’ve had some days where I feel normal - like I used to.

This also affects my hubby - as I’ve always been the spark plug in our relationship/home and me being down and out really changes the landscape here.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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