I've been treating since August 2017. And been getting worse. I had a brief period of stability with a little improvement. But, once restarting abx, I began declining again.
So, before I started treatment, my symptoms were slight balance problems, slight tinnitus, migraines, blurred vision, slight peripheral neuropathy.
Since starting abx, balance and weakness has gotten progressively worse. Movement is really bad. Fatigue is debilitating at times. Anxiety is through the roof. Tinnitus gets really bad during herxes. Vision is the same. Neuropathy comes and goes. I no longer get migraines.
I noticed that my balance and movement would always get a little bit worse on my week off of abx. I now think this is because of an extended Flagyl herx. I take the Flagyl at the end of every cycle. I stopped towards the end of November. By mid January, I was starting to stabilize and actually feel better. So, I went back on abx. The first cycle was good. But, I started declining again during the 2nd cycle. And after I took the Flagyl, I went downhill fast. I then stayed off abx for almost 3 weeks. I started feeling a bit better after 10 days of being off. This past Monday I started back on again. My LLMD added Plaquenil to the protocol.
I almost immediately went downhill and can barely walk right now. I stuck with it and took Flagyl yesterday. My LLMD wants me on 2 weeks on / 2 weeks off. However, he would like me to take Flagyl each Thurs and Fri of the on weeks. I cannot do it. The Flagyl alone just about
put me over the edge yesterday. Today is supposed to be my big day where I take all abx including Flagyl. It's not going to happen.
I found this write up yesterday titled, "Managing through the Herxheimer Reaction
by the same LLMD (Lyme-literate MD)"francisholisticmedicalcenter.com/images/Managing_through_the_Herxheimer_Reaction.pdf
It sounds like my herxing is doing damage that may end up being irreversible. Plus, since going on abx, I developed and bad rash on my face and periodic diarrhea. At this point, I am thinking that I will need to go a more natural, holistic route.
For the time being, I am going to focus on heavy detoxification. But, once I feel better, I'm not sure ii I should maybe start out really slow with abx, as I had dove in head first initially. And, this may have been the problem. Or maybe I need to treat with diet, herbs, and essential oils.
I'd love input from people who have had similar experiences with treatment.
Post Edited (Hoagie) : 3/16/2018 9:29:29 AM (GMT-6)