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SickKitty2016
Regular Member


Date Joined Mar 2018
Total Posts : 52
   Posted 3/17/2018 5:09 AM (GMT -6)   
I'm going to try and make this short.

Friday March 2nd, I woke up with vision loss n one if my eyes. It felt like pressure. Everything looked like ai was looking through fogged glass. I had some pressure in the top of my eye, and behind it.

After several hours, a visit to the emergency center, then transportation to the hospital, everything was a mystery. They gave me some ointment and sent me on my way.

In March 7th, I had a full confirmation of Lyme + co-infections. See signature.

On March 8th, I started feeling pain on my head. The scalp area. Curious, I felt around and found sunken spots in my scalp, that we're painful and swollen. They still persist.

Wednesday, March 14th: I woke up with the bottom of my my eye swollen, with the surrounding white of my eye blistered. This equiled a emergency appointment to my doctor and emergency room.

The concluded that I had developed, "keritosis conjunctivitis" with "intermittent vision loss".

I was discharged with antibiotics for my eye.

Thursday March 15th: visit an eye doctor. Concluded the same, but prescribed a stronger antibiotic for eye to test for improvement.

Friday March 16th: return to eye doctor for farther assessment. This time, the pressure has spread to all around my eye. I would bind over and feel like something in my eye area would pop.

Eye doctor concluded that my neurological side of my eye was fine. Just the pressure around my eye was causing vision loss. They gave me eye ointment and, said if symptoms get worse, go to er and get imaging done.caise it could turn into meningitis.

Today: I wake up with my eye swollen still, bit my left side of face is swollen, with a very painful bump under my skin, on my jaw, but touching my ear. The sunken in spots are spreading, and painful still. Vision problem still presists with localized swelling continuing.
I also have a muscular pain in my left arm.

Of you know anything about what's happening to me, or have an idea, please comment and let me know!
positive for bands: Igm 41; IgG 93/83, 66, 58, 41, and 23.

Human herpes virus-6
Chlamydia pneumonia
Mycoplasma pneumonia

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2122
   Posted 3/17/2018 5:19 AM (GMT -6)   
Hi Sickkitty2016,

Welcome to our forum and i just want to say I am so sorry you are having these awful symptoms.

I do know that for me bartonella did cause foggy vision and some other strange eye issues but I didn't have pressure around the eye more pressure in the top and sides and sinus areas.

All my eye issues went away with ongoing treatment.So there is hope to get better.

There have been other members with other eye issues, they just might not be on now. Just keep checking back

Not sure if you have seen our "New to Lyme' thread. Its at the top of the page

It have lots of information on lYme, symptoms, detoxing and more.

Others will be along later.

Take care and I wish you the best of healing, Jo

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1682
   Posted 3/17/2018 8:07 AM (GMT -6)   
Do you have a Lyme doctor? I would definitely discuss this with them. While Lyme and coinfections can cause eye and skin and head symptoms, this does sound different to me. The sunk in places in your head and the unusual eye problems sound like something that could be caused by parasites. Parasites are not confined to the GI tract, and apparently they are more common in those with Lyme than we like to think. I haven't treated them yet but need to.

SickKitty2016
Regular Member


Date Joined Mar 2018
Total Posts : 52
   Posted 3/17/2018 8:26 AM (GMT -6)   
goshawk said...
Hi Sickkitty2016,

Welcome to our forum and i just want to say I am so sorry you are having these awful symptoms.

I do know that for me bartonella did cause foggy vision and some other strange eye issues but I didn't have pressure around the eye more pressure in the top and sides and sinus areas.

All my eye issues went away with ongoing treatment.So there is hope to get better.

There have been other members with other eye issues, they just might not be on now. Just keep checking back

Not sure if you have seen our "New to Lyme' thread. Its at the top of the page

It have lots of information on lYme, symptoms, detoxing and more.

Others will be along later.

Take care and I wish you the best of healing, Jo


Thank you so much! I was going to detox today, but I don't think that is an option. The swelling is spreading even more. I'm going to have to just start my antibiotics today.

Notime4lyme
Regular Member


Date Joined Dec 2017
Total Posts : 276
   Posted 3/17/2018 1:02 PM (GMT -6)   
If it is affecting your head/brain, maybe you should see a neurologist? You should definitely talk to your LLMD.

SickKitty2016
Regular Member


Date Joined Mar 2018
Total Posts : 52
   Posted 3/17/2018 8:27 PM (GMT -6)   
Notime4lyme said...
If it is affecting your head/brain, maybe you should see a neurologist? You should definitely talk to your LLMD.


I don't have an LLMD. I was reffered to an IDMD and a rhematologest. I guess I should ask to see a neaurolgist too?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32667
   Posted 3/17/2018 9:03 PM (GMT -6)   
SickKitty2016 said...
Notime4lyme said...
If it is affecting your head/brain, maybe you should see a neurologist? You should definitely talk to your LLMD.


I don't have an LLMD. I was reffered to an IDMD and a rhematologest. I guess I should ask to see a neaurolgist too?


I would find a LLMD to treat you. You need a specialist in Lyme disease treatment.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4724
   Posted 3/18/2018 10:37 AM (GMT -6)   
i would rife for toxo and treat bart asap....

SickKitty2016
Regular Member


Date Joined Mar 2018
Total Posts : 52
   Posted 3/18/2018 11:35 AM (GMT -6)   
bluelyme said...
i would rife for toxo and treat bart asap....


Toxo?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32667
   Posted 3/18/2018 11:36 AM (GMT -6)   
SickKitty2016 said...
bluelyme said...
i would rife for toxo and treat bart asap....


Toxo?


I think bluelyme is referring to toxoplasmosis.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

SickKitty2016
Regular Member


Date Joined Mar 2018
Total Posts : 52
   Posted 3/18/2018 11:39 AM (GMT -6)   
Girlie said...
SickKitty2016 said...
Notime4lyme said...
If it is affecting your head/brain, maybe you should see a neurologist? You should definitely talk to your LLMD.


I don't have an LLMD. I was reffered to an IDMD and a rhematologest. I guess I should ask to see a neaurolgist too?


I would find a LLMD to treat you. You need a specialist in Lyme disease treatment.


I've been looking for one. But insurance want pay for one. sad

SickKitty2016
Regular Member


Date Joined Mar 2018
Total Posts : 52
   Posted 3/18/2018 11:41 AM (GMT -6)   
Girlie said...
SickKitty2016 said...
bluelyme said...
i would rife for toxo and treat bart asap....


Toxo?


I think bluelyme is referring to toxoplasmosis.


Okay, thank you! I do have a cat.

napoleon dynamite
Regular Member


Date Joined Apr 2017
Total Posts : 26
   Posted 3/29/2018 1:57 PM (GMT -6)   
How are you doing? any improvements?

SickKitty2016
Regular Member


Date Joined Mar 2018
Total Posts : 52
   Posted 3/29/2018 3:52 PM (GMT -6)   
napoleon dynamite said...
How are you doing? any improvements?


Thank you for asking!! Yes, I started doxy Saturday, Monday morning, I woke up almost a normal eye. Now, the only problem with my eye is pressure and brurriness.

Other than that, I think I'm herxing pretty bad. But my eye has almost returned to normal.
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