One step forward two back - needing some cheering thoughts on regression

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sandyfeet
Regular Member


Date Joined Mar 2018
Total Posts : 386
   Posted 3/17/2018 7:37 AM (GMT -6)   
I've been treating lyme with Buhner's herbal protocol since August of 2017 and reached (mostly) full protocol for Babesia and Bartonella around November. I had some good gains initially. All my tendon issues resolved almost spontaneously in October/November which was wonderful. It then switched to a sharp burning pain in the shin bones, feet and thighs which was great as at least I could move about with ease! That resolved a few weeks ago but in the last week I am now back to tendon issues in new locations -
everything was on the left side of my body initially and now my right Achilles and left knee are affected. I'm trying to view this as a positive progression. Things are resolving and cropping up in new places which means that the lyme and bart are less entrenched and are seeking new opportunities lol. I could still use some positive words on this at it feels very much like one step forward and two steps back.

Thanks in advance for any cheering thoughts. smile

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 2023
   Posted 3/17/2018 8:35 AM (GMT -6)   
I'm right there with you. I had much improved and almost unnoticeable stiffness in my small joints and feet for about two weeks in December. Then I got sick with cold/sinus infection and it started coming back. Was on Augmentin for a week and everything got worse in the weeks following and took over 2 months to feel better.

My joint stiffness and foot pain hasn't gone away again and since it returned there have been changes. The small joints in my fingers are not as stiff as they once were, and I've had new muscle/tendon/bone soreness in my upper arms arms/shoulders, back, right elbow. I use to feel everything unilaterally in pretty much the same severity. Now I notice my right side is more affected - elbow, wrist, ankle, and foot.

I keep telling myself that the treatment is getting into deeper layers in my body. At least I hope that's what is happening. I just keep treating all 3 B's.

sandyfeet
Regular Member


Date Joined Mar 2018
Total Posts : 386
   Posted 3/17/2018 11:50 AM (GMT -6)   
Thanks WalkingbyFaith, I really appreciate hearing from you! smile I'm sorry that you're going through the same sort of migration of issues too. I know I've read this a number of times on the forum, lyme pains seeming to explore every last inch of the body before leaving so I guess we should be celebrating the migrations lol. I'm increasingly aware of my shoulders although the pain hasn't quite entered there yet if you know what I mean.

It's one thing to know that the path to healing may be a bit of a spiral but quite another to experience those turns in the path that seem to take your eyes away from the end point before your turn the next corner. :I
Bulls eye rash August 2013
Started treating with Buhner herbs July 2017
Treating Borellia, Babesia and Bartonella as of November 2017

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2474
   Posted 3/22/2018 8:37 AM (GMT -6)   
I understand the steps backward - been in the same boat with one of my kids. For us, they have a huge season regression - with fall being a major step backwards/regression for them... no matter what I was doing for treatment. So, it's important to keep in mind "other" factors that can be affecting treatment/healing.

I had been struggling with herbals for myself and took a break (which helped resolved some issues for me). We started back on - got sidetracked for another reason - and am restarting again.

Also, it really is like pealing the layers of an onion - where new/different symptoms may appear elsewhere. Personally, I find that very frustrating.

It truly is a roller coaster ride. Our healing was definitely not in a linear manner but moreso a thrill rollercoaster with lots of ups and downs (upside downs too). sad

Kid#2 recently had the flu (or flu-like) virus, and it flared his infections really bad. It's been a nightmare.
WBF - I was thinking of you and your sickness this winter (and setback). How are you doing now with all that?

Sending you both {{{HUGS}}}.
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

sandyfeet
Regular Member


Date Joined Mar 2018
Total Posts : 386
   Posted 3/23/2018 4:17 PM (GMT -6)   
I think you're absolutely right about the peeling layers 1000Daisies. I'm definitely finding that there's a pattern of plateau, regression, then improvement for me. I keep trying to remind myself during the periods of regression/new symptoms that it's temporary but then sometimes lyme-blues get in the way and then one day I wake up and there's another layer gone.

Oddly enough, I think summer is my worst period for symptoms but it's hard to say as it's only been a few years.

I can't begin to imagine going through this with my kids too! I'm sorry to hear your second had a major setback.

Thanks for the hugs, sending them back to you both.
Bulls eye rash August 2013
Started treating with Buhner herbs July 2017
Treating Borellia, Babesia and Bartonella as of November 2017

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 2023
   Posted 3/23/2018 4:58 PM (GMT -6)   
1000Daisies said...

WBF - I was thinking of you and your sickness this winter (and setback). How are you doing now with all that?

Sending you both {{{HUGS}}}.


1000Daisies,

So sweet of you to think of me. I am FINALLY feeling some improvement again just this week. I finally caved and made some major diet changes about 2 weeks ago since my gut had continued on a downward spiral that only got worse after I took the Augmentin for 7 days back in December. That did help reduce some of the whole body inflammation I was having. I'm not perfect with the diet, but it's a pretty big change.

I started experimenting last week with taking extra drops of houttuynia in between my herbal doses, and seemed okay, so for a couple days early this week, I increased my IHA dose from 5 drops to 8. I got a brain here with pains in my head and a bout of rage. The next day, I dropped IHA to 6 drops, and took 5 drops of Bidens and 4 drops of sida. I must have hit the sweet spot, cause that day was the best I'd felt since before I got sick in December!! That was Tue or Wed. Haven't felt as good since, but also haven't regressed too much either.

I'm also taking some other new things - Candicid Forte and d-limonene. Last night I took Olive Leaf for the first time.

So much trial and error and guessing.

I'm so sorry you guys have had sickness too, along with regression again. I hope it won't last nearly as long as mine did. If stuff like this put me back a couple of weeks, it would be okay, but the antibiotics put me back 2+ months twice now. That's rough and scary to think every time I have an acute sickness or may need an abx short term, I'm looking at that kind of setback. Spooky stuff.

BDRoland
Regular Member


Date Joined Mar 2018
Total Posts : 22
   Posted 3/23/2018 6:04 PM (GMT -6)   
Sandyfeet - I'm going to share on mostly an attitude perspective. I think it's great that you are trying to stay positive amidst terrible symptoms and ups and downs. I do think that positive attitude (im just waiting to be bashed by people on here) is huge in any illness > especially chronic > especially Lyme. It can just sap your strength and will to go in. Now, I am NOT saying to be positive and heal yourself! But there are reasons for ups and downs - treatment success, migrating Lyme, breaking up biofilm, etc. I don't remember the Doc, possibly Dr. W.R. that said as you break up biofilm communities you are essentially releasing all those bugs (lyme and co) to explore your body. Common opinions would be to continue killing them (herbal in your case) and to make sure you are detoxing (maybe even upping the game if you feel your really hitting something). I know lemon water has helped at times for my wife (technically spicy lemonade > lemon juice, distilled water, cayenne pep., blackstrap molasses)

In a nutshell - don't give up, keep pressing on, get good insight. You will find the protocol that works for you! You've survived 100% of your worst days.
+Lyme (w/ bart and babesia), rocky mnt spotted fever, parasites, mold, Epstein Barr, EMF radiation, and other fun 'guests'
++Dairy free, gluten free, nutramedix herbs, results RNA Lyme protocol, homeopathics, ionic detox foot baths, Epsom&peroxide baths, bentonite clay, and a shelf full of supplements (magnesium, Gaba, melatonin, NAC, b complex, probiotic, nitric oxide, coq10, omegas and more)

goshawk
Forum Moderator


Date Joined Sep 2016
Total Posts : 2299
   Posted 3/23/2018 6:45 PM (GMT -6)   
Hi Sandyfeet, i have had the pain in my soles and aciles come and go and now it has been gone for quite a while. Keeping my fingers crossed. Hope that happens for you soon also.


BDRoland- I love what you said:

"You've survived 100% of your worst days".

I will be my saying that to myself for encouragement daily for now on. It is absolutely amazing that we have made it through our worst days. So that means we are strong...and we are survivors...we will get better.

Thank you for that reminder.

Take care

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33893
   Posted 3/23/2018 6:51 PM (GMT -6)   
BDRoland said...


In a nutshell - don't give up, keep pressing on, get good insight. You will find the protocol that works for you! You've survived 100% of your worst days.



YES - and aren’t we resilient !!
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

sandyfeet
Regular Member


Date Joined Mar 2018
Total Posts : 386
   Posted 3/23/2018 7:58 PM (GMT -6)   
Thanks so much everyone for your encouraging words!

goshawk - I'm glad to hear the achilles pain can go and come and go again. I'm learning to be a lot more proactive about using tape to protect joints that start to feel iffy so I'm hoping that they won't get as bad as the first time around.

BDRoland - Yes! 100% survival so far! smile I'm finding positive attitude is probably the best tool so far. I am _incredibly_ grateful that a friend introduced me to Buhner's work and that I've found my way here. It seems like even with all the signposts on the way there's a lot of trial and error. Still I like that I am able to be in control of my treatment.

WBF - I'm also working on trying slightly higher doses of houttuynia, bidens and I'm planning on trying d-limonene as soon as it arrives. I'm thinking about adding boneset but I need to do a little more reading. It's definitely looking like bartonella is going to be the trickiest for me.

Girlie - feeling more resilient each day I hope.
Bulls eye rash August 2013
Started treating with Buhner herbs July 2017
Treating Borellia, Babesia and Bartonella as of November 2017
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