Relapsing Babesia!

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cr3ativegirl
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Date Joined Oct 2015
Total Posts : 723
   Posted 3/19/2018 10:43 AM (GMT -6)   
I googled Relapsing Babesia Healingwell.com and got my own entry from last January. So, Ha. Anyway, hi guys. I'm back. Read the original entry - things are pretty much the same from Jan 2017.

Since November, I've been doing great, pretty much healed Lyme-wise and recovering from foot surgery in January, which has gone better than I imagined.

However, twice in the past month, I've gotten the babesia migraine and night sweats and feet tingling. I scanned myself with my EDS machine and sure enough, it's back. I apparently have 3 different strains. I stopped Crypto 4 months ago, went to Peru, all was awesome. Last month, I got the Babesia light headed upon rising, vise headache and nights sweats again.

It seems like I can't get rid of it. This episode wasn't as bad as last month. As Rikky1 suggested, I did end up doing the plaquenil for 6 months last year and it worked but the functional medicine doctor is so expensive, I stopped going to him. I switched to Cryptolepsis for 9 months and had no Babs symptoms. Ditto for not doing the meprone - too expensive and who knows if it will work.

Buhner says people can stay on Cryptolepsis for years. I read that Babesia down regulates the T1 immune response, and my labs confirm that so what do you think about me trying some Astralagus at this point?

I've been pulsing Pure encapsulations Micro Defense 1 week on, 1 week off. Seems to kill something because I get the crickets in the ears and the coated tongue.

Thanks guys!!
Oct 2015 Dx Lyme, Candida, Mold, Toxic Metals, multiple co-infections
Jan 2016 Minocycline pulse/ Nystatin, Flucanizole
Feb 2016 LDI for Mold, Lyme, EBV, Added Tinidozole, Flucanizole
Sept 2016 Switched to Buhner herbs. @ 90%
January 2017 Plaquenil for Babesia @95%
Feb 2017 Dx Mucor/Mycoplasma in Nervous system.
Oct 2017 Dx Bartonella - @95%

PDXtransplant
Regular Member


Date Joined Jun 2017
Total Posts : 207
   Posted 3/19/2018 11:01 AM (GMT -6)   
I don't know about astralagus, but this is what it says on the buhner website:

BABESIA

Stephen generally recommends the use of a Sida acuta, Alchornea cordifolia, and Cryptolepis sanguinolenta blend for the treatment of babesia these days: ¼-1/2 tsp 3x daily. You could as well do ¼ tsp of each of these three tinctures 3x daily. These three tinctures can be purchased from woodlandessence.com. You can also use just one of those herbs; his first choice is Sida acuta, second is Cryptolepis sanguinolenta. Stephen no longer recommends artemisinin or artemisia for babesia infections. It can work, but whatever you are treating, Sida acuta will work better, especially for babesia or bartonella. Please see his book Natural Treatments for Lyme Coinfections: Anaplasma, Babesia, and Ehrlichia for the most up-to-date expanded babesia protocol.

There is a CSA combo on sage woman and woodland essence. I"m planning on buying it but haven't yet.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32652
   Posted 3/19/2018 12:19 PM (GMT -6)   
Stephen changed his rec from CSA to CS and Bidens pilosa
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2122
   Posted 3/19/2018 2:06 PM (GMT -6)   
Hi, Sorry Babesia is rearing up, I have been taking Astragalus tincture(Sage Woman Herbs) for about 4 months now.

I slowly have built up to 20 drops 3X day.

I have had no issues with it, and I firmly believe that it is strongly helping build my immune system back up.

In the long run since I can tolerate it, I'm hoping it will be huge in helping me prevent reinfection .

Take care, Jo

cr3ativegirl
Veteran Member


Date Joined Oct 2015
Total Posts : 723
   Posted 3/19/2018 2:59 PM (GMT -6)   
I have been on the CSA for months and months - it’s just every time I go off it, it comes back. I use woodland essence, they are great. I guess I will add Biden’s back in. I remember ordering that initially in 2016 and went through 1 bottle but didn’t take it the 5 months and the babs came back. Thanks for the reminder!!!

goshawk- I added 1 drop of astralagus several weeks ago when this flared, and nothing happened, so you have given me some encouragement to try to up it a bit and see if I can kick this thing for good. Thanks everyone!

Lapis_29
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Date Joined Sep 2017
Total Posts : 844
   Posted 3/19/2018 3:57 PM (GMT -6)   

WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 1682
   Posted 3/19/2018 4:13 PM (GMT -6)   
cr3ativegirl,

You said your labs confirmed something about TH1 immune response. Can you tell me which specific labs this was? Was it done through Labcorp? If I can, I'd like to be tested to see if I'd be able to take astragalus. I don't want to just try it and see, because everything makes me herx, and I wouldn't know about which immune response was going on.

cr3ativegirl
Veteran Member


Date Joined Oct 2015
Total Posts : 723
   Posted 3/19/2018 4:38 PM (GMT -6)   
WalkingbyFaith - The labs my doctor ordered were: Human Transforming growth factor beta 1, VIP, cd57, C4a. He was thinking mold in my tissues was still causing problems suppressing immune response. But that really doesn't fit anymore. Whether those are the right tests or not to determine immune response, that is what he said they were for.

You can get electro dermal screening to test products to see if they work on you. OR someone to do muscle testing.
Lapi_29 - Dang. I was just in Peru. Could have grabbed some. You can buy anything on any corner there for super cheap.
Oct 2015 Dx Lyme, Candida, Mold, Toxic Metals, multiple co-infections
Jan 2016 Minocycline pulse/ Nystatin, Flucanizole
Feb 2016 LDI for Mold, Lyme, EBV, Added Tinidozole, Flucanizole
Sept 2016 Switched to Buhner herbs. @ 90%
January 2017 Plaquenil for Babesia @95%
Feb 2017 Dx Mucor/Mycoplasma in Nervous system.
Oct 2017 Dx Bartonella - @95%

Lapis_29
Veteran Member


Date Joined Sep 2017
Total Posts : 844
   Posted 3/19/2018 4:58 PM (GMT -6)   
cr3ativegirl said...
WalkingbyFaith - The labs my doctor ordered were: Human Transforming growth factor beta 1, VIP, cd57, C4a. He was thinking mold in my tissues was still causing problems suppressing immune response. But that really doesn't fit anymore. Whether those are the right tests or not to determine immune response, that is what he said they were for.

You can get electro dermal screening to test products to see if they work on you. OR someone to do muscle testing.
Lapi_29 - Dang. I was just in Peru. Could have grabbed some. You can buy anything on any corner there for super cheap.


You can get ivermectin on amazon for $15, yes its horse meds but its the same for humans, lots of people use it. here is another blog of someone using iver to treat babs

/lymevlog.wordpress.com/2014/06/04/treat-babesia-with-anthelmintics-not-antimalarials-ii-learned-after-eight-years/

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2860
   Posted 3/19/2018 6:32 PM (GMT -6)   
you need to treat babesia properly and for as long as it takes to clear. that means you should probably go on mepron or malarone (the latter is cheaper). do this with another abx (i would use bactrim since it hits babs as well). add cryptolepis and maybe artemisinin to this mix and stay on this protocol until your symptoms go bye bye. i would treat 3 months past any symptoms at all you know are from babesia else its just going to grow again and cause future issues.

since you have babesia (and maybe you have 3 strains not sure about that little thingy you're using on yourself ;o) its likely you'll need a lot longer to eradicate it. for my situation i treated babesia pretty hard for almost all of 2015 and i still had it. i started seeing Dr. J in DC in early 2017 and it took an entire year to shake babesia duncani. Dr. J thinks it took longer than most because i treated it earlier and didn't eradicate it so it developed some resistance.

weaving in an anti-parasitical is a good idea as it does hit babesia and who knows what else you may be carrying around. i'd say 100% of folks who are chronically ill have some level of parasites in them.

cr3ativegirl
Veteran Member


Date Joined Oct 2015
Total Posts : 723
   Posted 3/19/2018 8:05 PM (GMT -6)   
Thanks. I just can't do the mepron because of the cost and its just too risky that it won't work. I do think there is some resistance going on, or its the relapsing type that hides. I'm going to consider the ivermectin. My functional medicine doctor suggested it a couple of months ago. I can always go back to him. Do you have to get liver enzymes tested. I really don't want to see any worms in the toilet..ha..

Currently, I'm on cryptolesis, side, alchorea, jk, korean ginseng, eleuthro, shisandra, rhodiola, cordyseps and reishi, 3 drops of astralagus; I'm pulsing MicroDefence by PE one week on, one week off, which has berberine, artemisia, olive, clove and grapefruit extract.

Hopefully, adding the Bidens back in for the next 7 or 8 months, maybe that will do it . Thanks!!!!
Oct 2015 Dx Lyme, Candida, Mold, Toxic Metals, multiple co-infections
Jan 2016 Minocycline pulse/ Nystatin, Flucanizole
Feb 2016 LDI for Mold, Lyme, EBV, Added Tinidozole, Flucanizole
Sept 2016 Switched to Buhner herbs. @ 90%
January 2017 Plaquenil for Babesia @95%
Feb 2017 Dx Mucor/Mycoplasma in Nervous system.
Oct 2017 Dx Bartonella - @95%

Lapis_29
Veteran Member


Date Joined Sep 2017
Total Posts : 844
   Posted 3/19/2018 9:49 PM (GMT -6)   
cr3ativegirl said...
Thanks. I just can't do the mepron because of the cost and its just too risky that it won't work. I do think there is some resistance going on, or its the relapsing type that hides. I'm going to consider the ivermectin. My functional medicine doctor suggested it a couple of months ago. I can always go back to him. Do you have to get liver enzymes tested. I really don't want to see any worms in the toilet..ha..

Currently, I'm on cryptolesis, side, alchorea, jk, korean ginseng, eleuthro, shisandra, rhodiola, cordyseps and reishi, 3 drops of astralagus; I'm pulsing MicroDefence by PE one week on, one week off, which has berberine, artemisia, olive, clove and grapefruit extract.

Hopefully, adding the Bidens back in for the next 7 or 8 months, maybe that will do it . Thanks!!!!


I would get a stand alone artemisia/artemisinin tincture. take on empty stomach with tea/coffee.

BDRoland
Regular Member


Date Joined Mar 2018
Total Posts : 22
   Posted 3/19/2018 11:01 PM (GMT -6)   
Cr3ativegirl - i wish i had some good advice for you.. just to say that relapsing is no fun, my wife has relapsed for the second time now and it is not fun. Keep up the fight!

Anyway - YOU HAVE AN EDS 3000? can I ask where you got it? I love that machine. My wife literally takes any medicine/supplements/herbs to get checked by that machine and it never fails (stuff she feels crappy on it says nope not for you). The practitioner that she sees that uses that is retiring soon, so I've always been curious to get my hands on one.
+Lyme (w/ bart and babesia), rocky mnt spotted fever, parasites, mold, Epstein Barr, EMF radiation, and other fun 'guests'
++Dairy free, gluten free, nutramedix herbs, results RNA Lyme protocol, homeopathics, ionic detox foot baths, Epsom&peroxide baths, bentonite clay, and a shelf full of supplements (magnesium, Gaba, melatonin, NAC, b complex, probiotic, nitric oxide, coq10, omegas and more)

cr3ativegirl
Veteran Member


Date Joined Oct 2015
Total Posts : 723
   Posted 3/20/2018 2:05 PM (GMT -6)   
Hi BDRoland - Thanks for the kind words. I am not going to let it get me down!!!

As far as my EDS machine, I actually have the Discovery System by Consolidated Wellness Solutions. My LLMD send all his patients to scan for co-infection diagnosis because labs are a joke. I was scanned every two months throughout my treatment and it was eerily spot on with the diagnosis and which remedy/supplements that would work.

I was so amazed, I bought one and got officially certified. I am scanning people and they are always surprised when I ask them "do you feel XXX or have you been around XXX. For example I have a friend who has "lupus" and I scanned her and found cytomegalovirus. She is since taking the remedies and supplements and says it changed her life. I found epstein barr and staph in a person who was told that they had RA even though the labs weren't saying it. Wouldn't you want to know the source of your mystery illness? I wish it was more mainstream.
Oct 2015 Dx Lyme, Candida, Mold, Toxic Metals, multiple co-infections
Jan 2016 Minocycline pulse/ Nystatin, Flucanizole
Feb 2016 LDI for Mold, Lyme, EBV, Added Tinidozole, Flucanizole
Sept 2016 Switched to Buhner herbs. @ 90%
January 2017 Plaquenil for Babesia @95%
Feb 2017 Dx Mucor/Mycoplasma in Nervous system.
Oct 2017 Dx Bartonella - @95%

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2860
   Posted 3/20/2018 2:47 PM (GMT -6)   
>>I just can't do the mepron because of the cost and its just too risky that it won't work.

Not sure I understand why you think its too risky it won't work? You highest probability for eradicating babesia is atovaquone so what you are doing currently is in fact way riskier than taking this route.

Dr. J in DC has treated thousands of patients and healed them from babesia and he's been using atovaquone for close to two decades so you have quantitative data and success rate to consider when making your decisions.

I'd rather come to a gunfight with a bazooka then a pistol if you know what I mean ;o)

I mentioned Malarone because that's a cheaper alternative because it has atovaquone but much less and the proguanil makes it more effective.

cr3ativegirl
Veteran Member


Date Joined Oct 2015
Total Posts : 723
   Posted 3/20/2018 3:30 PM (GMT -6)   
Thank you for the info. I don’t know why but my gut tells me not to do it. I am usually well served by my gut if I listen to it. I would like to see some data about it being eradicated for good rather than cases that may be cured but relapse. I don’t know how to find that though. For example, There is evidence that it can hide and wait like Lyme. Does the Meprone kill the stuff that hides also? It’s not an easy decision - pumping more drugs into my body when I feel 95% cured. Also I’ve already spent 48k....
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