Still coming to terms with my diagnosis

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Halehathnofury
New Member


Date Joined Feb 2018
Total Posts : 3
   Posted 3/20/2018 4:03 AM (GMT -6)   
The day finally came last week. Test results in: Lyme, Bartonella, Babesia, Mycoplasma, Yirsenia confirmed.
I’ve been gluten/dairy/sugar free for a month. Herbal protocol started last week. Abx starting this week. It all feels so surreal. I’m half thrilled that I finally have answers after so long and half in denial that I’m actually diagnosed. I keep looking through the pages of the report just to make sure.
Just want to thank everyone on here for posting their stories because it lead me to seek my own diagnosis the proper way. My LLMD is confident in our plan and hopes to get me back to a somewhat normal life(although I don’t think I’ll be running trails anymore...or running period haha).
Here’s to hope and health- as I type this at 5am because I haven’t slept a wink and my entire body is revolting against me 👍

mareish
Regular Member


Date Joined Mar 2017
Total Posts : 221
   Posted 3/20/2018 6:38 AM (GMT -6)   
Welcome Halehathnofury,

Sorry you have Lyme and co but congratulations for having a diagnosis. I think your reaction to the diagnosis is all too common.

Others will be along with more experience, but in the meantime you will find it helpful to read through the New to Lyme info in the top heading.

I know how you feel about not being able to run again. I felt the same way about many physical pursuits, but now find through slow but steady improvements that I likely will be able to return to many of them.

To hope and health!
Lyme CDC POS
Bartonella POS
Ehrlichia POS
CD57 30, then 12, now 64

Village Crazy Lady
Regular Member


Date Joined Feb 2017
Total Posts : 379
   Posted 3/20/2018 7:46 AM (GMT -6)   
Hi Halehathnofury, welcome!

I hate to hear you’re sick but really glad you’ve found a LLMD and have started treating.

Have you started a daily detox regimen ? This is as critical as the abx and the herbs, really more so ! You’ll find lots of detox methods on the New to Lyme thread.

Be sure to talk with your LLMD about sleep issues, many LLMDs have separate treatment plans specifically for that, sleep is very important to healing.

You can do this. There are many members here who are running again, you’ll get there in time too.

Good luck!

VCL
~~~Your Life is an Occasion, Rise to It ~~~

Lyme,Bart,Molds,Candida,Cpn,Myco,Ebv,Cmv,MTHFR,Lead.
Symptoms for years and years, Diag 6/2016, LLMD 10/2016
Treating with Abx and company

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33837
   Posted 3/20/2018 12:37 PM (GMT -6)   
Good luck with your treatment Halehathnofury!



Keep us posted!
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

PDXtransplant
Regular Member


Date Joined Jun 2017
Total Posts : 237
   Posted 3/20/2018 12:38 PM (GMT -6)   
I thought I'd never be able to run/trail run again either, but I'm slowly back at it. You might not have to give that up!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33837
   Posted 3/20/2018 1:17 PM (GMT -6)   
Halehathnofury said...
The day finally came last week. Test results in: Lyme, Bartonella, Babesia, Mycoplasma, Yirsenia confirmed.
I’ve been gluten/dairy/sugar free for a month. Herbal protocol started last week. Abx starting this week. It all feels so surreal. I’m half thrilled that I finally have answers after so long and half in denial that I’m actually diagnosed. I keep looking through the pages of the report just to make sure.
Just want to thank everyone on here for posting their stories because it lead me to seek my own diagnosis the proper way. My LLMD is confident in our plan and hopes to get me back to a somewhat normal life(although I don’t think I’ll be running trails anymore...or running period haha).
Here’s to hope and health- as I type this at 5am because I haven’t slept a wink and my entire body is revolting against me 👍


Don't give up on running trails....

I haven't run for 5 years (or played tennis) - but I do brisk walks now, swim, and have done a few 'easy' bike rides...so I'm hopeful. My muscles are coming back....slowly....ever-so-slowly. But I am optimistic.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Halehathnofury
New Member


Date Joined Feb 2018
Total Posts : 3
   Posted 3/22/2018 7:41 AM (GMT -6)   
Thanks everyone for your encouragement! Quitting running was one of the hardest things for me...I literally grieved over it. But I’m staying hopeful about future runs.

And yes I’m detoxing as well. Dry brushing, salt baths, lemon water, charcoal, starting hyperbaric soon and possibly infrared sauna if I can handle the heat ☺️
Summer ‘17 infected and symptoms started
March ‘18 dx with Lyme, Bart, Babes, Myco
Treatment with abx, herbal support, hyperbaric, detox protocols,lots of Netflix

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2473
   Posted 3/22/2018 8:29 AM (GMT -6)   
I am truly sorry for your diagnosis. It is not an easy road. But at least you have positive tests and answers, so you are two steps ahead of many people who have no idea what they have and/or still testing trying to figure it out.

Truly wishing you the best in your healing journey!
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33837
   Posted 3/22/2018 2:11 PM (GMT -6)   
violets said...

Try to stay away from any other drugs (pain meds, sleep meds, anxiety meds) except for your antibiotics and what your doctor thinks you absolutely need because....you will want to start exercising again when and if your body or your gut instincts tell you it is ok. It is harder to listen to your body if you are numb by too many medications.



If you're in pain,and can control it effectively while in treatment, no reason to suffer.

I've been prescribed Gabapentin recently by the NP at the J Clinic. I'd tried it once before and it didn't help, but Dr. J feels that controlling pain, and sleep issues is important to healing.
He says you may be able to handle it (the pain), but your immune system can't.

So, I decided to give it another whirl...but the few weeks prior - I was having more good chunks of time...but I decided to try it anyway and it didn't seem to be helping me...so I've weaned off it...If my pain ramps up...then maybe that's an indication that it was subtly working.

It's hard to deal with pain for years on end....if affects our mood as well.

The pain meds - unless you're taking high dose opioids don't usually numb you.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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