Confusion/Mild Psychosis (Bart?) Advice Needed

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Clunkytrain
Regular Member


Date Joined Aug 2017
Total Posts : 28
   Posted 3/20/2018 8:29 AM (GMT -6)   
The short version of this post is that I have introduced bart herbs to my protocol and have developed some weird psych symptoms. If they get much worse I'll be pretty much non-functional so any advice would be greatly appreciated!

Symptoms are:

- Feeling of losing my mind, feel "trippy" or "spacey"
- Difficulty organising myself to do anything (very hard to follow my protocols, eat at the right times etc)
- Difficulty completing tasks such as shopping, cooking, filing etc
- Confused jumbled thoughts
- Feel impulsive
- Anhedonia
- Surreal dreamlike vision (everything looks bright, flickery)
- Recurrent deja vu
- Sudden strong memory recall
- Weird scary dreams
- Pressure headaches
- Prickly feeling on scalp

I've also had some new neuro symptoms such as increased weakness and mild burning pains in my arms but these have been intermittent and less disruptive to my day to day functioning.

Remedies I am currently trying:

- Cutting back slightly on herbs
- Drinking lots of water/lemon water
- Body brushing followed by epsom salt bath
- Supplements to increase detoxing (ALA, vitamin C, milk thistle)
- Supplements to decrease inflammation (Omega 3, quercetin/bromelain, turmeric)
- Supplements to aid sleep (L-theanine, L-tryptophan, melatonin, magnesium)
- Activated charcoal before bed
- Gluten/dairy/refined sugar free diet
- Tried burbur/pinella but didn't seem to make a great deal of difference

If anyone else has experienced anything like this did it just pass eventually on its own with treatment? Do I just need to give the herbs time?

For context I have probably had lyme since a tick bite in late '09. I have been treating for Lyme on the Buhner protocol since June last year. Initially I started on the whole core lyme protocol on which I experienced minor improvement. In December I added the babesia protocol which induced bad herxing that slowly faded over a couple of months. I added the bart herbs a few weeks ago - I can't remember when exactly.

It's probably worth mentioning that I have not had any tests done and am self treating. My GP hasn't been that helpful apart from giving me prescription for specific symptoms. I have been working with an osteopath who is fairly knowledgeable on nutrition and supplements but doesn't know a great deal about lyme and co's. I previously strongly suspected babs based on reaction to herbs and it turned out after my father passed that he had bart so it's not a stretch to suspect that I have that also.

Looking forward to hearing your responses. Thanks!

Post Edited (Clunkytrain) : 3/20/2018 8:37:36 AM (GMT-6)


Hoagie
Veteran Member


Date Joined Jul 2017
Total Posts : 619
   Posted 3/20/2018 9:14 AM (GMT -6)   
I applaud you for doing so much homework.

Sounds to me like you are doing things the right way. Sounds as if you hit the Babesia and are now hitting the Bart. Lowering the dose sounds good. Stick with it.

However, it would be beneficial to have a Lyme Literate MD to guide you through this. While we all have our experiences, a proper LLMD should be able to assess your unique situation (as all of our situations are unique) and devise a plan of attack specifically to fit your needs.

As far as nutrition goes, changing to an all natural, gluten free, sugar free diet, is the way to go. I am currently attempting the follow The Wahl's Protocol. Also, waiting for a book to come in called, Green For Life. Both these books have loads of incredible testimonials on how just changing their diet healed their chronic illnesses.

BTW, I am right there with you right now when it comes to the psychosis issues. Mine actually may be a little more severe than yours TBH. I am having bouts of anxiety/panic that is quite hefty. Never suffered from this before in my life. As I treat I am getting a more and more severe CNS weird feeling all throughout my body. It's hard to explain. But it's like the opposite of restless legs syndrome. I don't want to move. And when I do, I am very stiff and uncoordinated. And the more I push it, the worse the CNS feeling gets. If it gets too strong I can see having a seizure. I haven't had one yet. But, if I make it through this ordeal intact, I will be surprised if I never have one.

Good luck to you!

BabsBunny
Veteran Member


Date Joined Mar 2017
Total Posts : 530
   Posted 3/20/2018 10:05 AM (GMT -6)   
This is happening to me while trying to hit Babesia... it’s possible lowering the Babs has allowed my Bart to come out to play. I have both.
I’ve been in a trance for two weeks. So unproductive, so forgetful, so lazy. I hope it passes soon.
Lyme, Babesia, Bartonella. Symptoms began 5/2016, didn't start treatment until 9/2016. Slow but steady recovery.

*twitch twitch*

Runninheid
Regular Member


Date Joined Sep 2017
Total Posts : 52
   Posted 3/20/2018 10:48 AM (GMT -6)   
When I first started treatment, I pursued treating babesia first. After a week of babesia treatment, I had all the psych symptoms you listed above to a debilitating degree...it was so bad I even called the local County Crisis line.

I made an emergency appointment with my LLMD and he immediately knew that as the babs was weakening, the bart was becoming stronger, thus creating the intense psych symptoms.

My LLMD decided with my situation, I had to treat all three infections equally at the same time.

Now here I am, 8 months later, and all symptoms have eased. I'm still actively treating everything and ramping it all up, slow and steady. I do get a daily flare-up of all symptoms, physical and psych, just not as strong.

I hope your symptoms ease too. It sounds like you are already doing a lot of good treatment techniques. Keep it up and know that there will be light at the end of the tunnel.
DX Borrelia, Babesia, Bartonella and Ehrlichia June 2017.
Symptoms since at least 2007.
Started treatment June 2017
-Artemisinin, A BART, A BAB, Biaxin, Chlorella, Liposomal Glutathione, Magnesium, Omnicef, Prothrivers Wellbrain, Tindazole, Tranquility, Uplift, Fish Oil, B Vitamins, Vitamin D, gluten free, sugar free, dairy free, lemon water, detox tea, coffee enemas.
30%-60% Healed

Spanish
Regular Member


Date Joined Sep 2017
Total Posts : 137
   Posted 3/20/2018 2:42 PM (GMT -6)   
Before starting treatment.. I had severe cognitive disfunction, I was confused, felt like I was losing my mind and had no memory to the point where i couldnt even read as by the time id finished a sentence id forgotten the start of it.

Along with lyme I was also diagnosed with really low vitamin b12.. and was told its quite common with lyme..

When I treated the b12 very quickly many of my cognitive issues and the confusion cleared up... My memory is back to normal and im "just" left with what i consider to be symptoms of lyme and co,

Alexandros96
New Member


Date Joined Mar 2018
Total Posts : 10
   Posted 3/20/2018 6:04 PM (GMT -6)   
Could you tell me after what remedies happened that? Did you have any of those symptoms before you started therapy.

After stopping antibiotics and taking burbur-pinella and grapefruit seed exctract, i developed sudden severe anhedonia.

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2123
   Posted 3/20/2018 7:13 PM (GMT -6)   
Clunky train,
Since the Pinella berber didn't help you may want to check out Jerrnigans Anttitox II cns/pns formula.

It helped me .


Hoagie: the weird CNS feeling throughout your body. I get that too, and I can only describe it as similar to restless legs but different. Its not even in my legs but more chest, trunk, core of body. It is very unsettling when it happens, I hate it.

It went away for months but is back.

Woodduck12
Regular Member


Date Joined Dec 2017
Total Posts : 135
   Posted 3/20/2018 7:18 PM (GMT -6)   
I had and still do many of the psycholocal symptoms. They are scary and like Runnininhead said I was so scared I wanted to admit my self. I rammed up too fast on the buhner Bart protocol. Its good to hear that people gotten better it sheds hope that this will pass.

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1682
   Posted 3/20/2018 7:21 PM (GMT -6)   
I've had a lot of those symptoms to some degree at various times. I never had it so severe or so constant that I thought something horrible was going to happen, though.

Hoagie
Veteran Member


Date Joined Jul 2017
Total Posts : 619
   Posted 3/20/2018 7:41 PM (GMT -6)   
goshawk said...
Clunky train,
Since the Pinella berber didn't help you may want to check out Jerrnigans Anttitox II cns/pns formula.

It helped me .


Hoagie: the weird CNS feeling throughout your body. I get that too, and I can only describe it as similar to restless legs but different. Its not even in my legs but more chest, trunk, core of body. It is very unsettling when it happens, I hate it.

It went away for months but is back.


I explained this feeling to my LLMD today. He is the first person, besides you now, to somewhat understand what I'm trying to explain the feeling is. It's horrible. I don't even want to move and it creates a lot of anxiety. It seems to really get strong after Flagyl. It went away after 3 weeks of no abx. And I was good for a couple months. Now that I am on such an aggressive protocol, it's back with a vengeance. Sucks. It adds to my feelings of going crazy. My poor CNS. I hope to get it better sometime soon.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32685
   Posted 3/21/2018 12:44 AM (GMT -6)   
Hoagie said...
goshawk said...
Clunky train,
Since the Pinella berber didn't help you may want to check out Jerrnigans Anttitox II cns/pns formula.

It helped me .


Hoagie: the weird CNS feeling throughout your body. I get that too, and I can only describe it as similar to restless legs but different. Its not even in my legs but more chest, trunk, core of body. It is very unsettling when it happens, I hate it.

It went away for months but is back.


I explained this feeling to my LLMD today. He is the first person, besides you now, to somewhat understand what I'm trying to explain the feeling is. It's horrible. I don't even want to move and it creates a lot of anxiety. It seems to really get strong after Flagyl. It went away after 3 weeks of no abx. And I was good for a couple months. Now that I am on such an aggressive protocol, it's back with a vengeance. Sucks. It adds to my feelings of going crazy. My poor CNS. I hope to get it better sometime soon.


There's something 'messed up' with my CNS too. Not the same as your symptoms...but definitely messed up. I get these shivers down my spine, and legs...and sometimes they happen when I hear/see something emotionally 'moving'. It sounds 'benign' to say I get these shivers, words don't do it justice...but they're actually quite disturbing..it's like something is really irritated in my brain...overly sensitive.
It happens at the movie theater, too...especially when I'm seeing a movie that is action-packed.

The NP at the J Clinic mentioned something about my Limbic system...not sure if it was to do with those particular symptoms though.

I just get concerned that it will always be like that...no matter what I do....and I can't imagine...living with it forever.

Maybe I should do that brain retraining. The Dynamic Neural Retraining system... $$$$$ sigh.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Clunkytrain
Regular Member


Date Joined Aug 2017
Total Posts : 28
   Posted 3/21/2018 6:45 AM (GMT -6)   
Hoagie - sadly llmd isn't really option for me due to pack of funds and living in the UK where there just don't seem to be that many experts. Having spoken to someone who visited a (relatively) local llmd it sounds like they spent a great deal of money to find out mostly what they already knew. I have also looked into Wahls paleo and it sounds like a good healthy diet! I also had a very bad period of anxiety a couple of years ago and I'm right there with you when it comes to the weird CNS stuff!

Babsbunny/runninheid - I suspected that the babs treatment may be causing the bart to flare so it's good to know others have been through the same thing thank you! I guess in a way it's nice to know that my babesia treatment is working!

goshawk - I will order the cns/pns today thanks smile

Spanish - I take a B complex but maybe I'll add in some sublingual b12 just to be sure thanks!
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