LLMD will not do disability paperwork

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Gilmore
Regular Member


Date Joined Dec 2015
Total Posts : 27
   Posted 3/23/2018 5:58 PM (GMT -6)   
Anybody have a LLMD who will do disability paperwork?
Mine will not. And so the Igenex testing and all the other positive tests mean nothing.

The primary care doctor with Medicaid knows nothing, used labcorp tests which came back negative of course.

Anybody have suggestions?
Lyme diagnosed in 2014 after testing for 12 years
Late stage neurological Lyme and trying to get disability
Done:applied kinesiology with lots of supplements
Done: IV rocephin, IV vancomycin, IV doxy
Done Oral antibiotics: mepron, doxy, ceftin, rifampin, azithromycin
Done Supplements: biofilm defense, B12, vit D, flower essences, homeopathic drops, burbur brain detox, GSE, Chorella, oils
Detox

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32625
   Posted 3/23/2018 6:44 PM (GMT -6)   
Sorry, I don't know how things work in the U.S.


Can't your primary care Doc fill out forms without using lyme?

He must know your symptoms. Do you have chronic pain? Does that not qualify?
...of Chronic Fatigue?

Or does it have to be a firm diagnosis from a specialist?

I'm thinking the LLMD doesn't want to sign anything...as they're trying to fly under the radar.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Hoagie
Veteran Member


Date Joined Jul 2017
Total Posts : 614
   Posted 3/23/2018 8:26 PM (GMT -6)   
I've had 2 LLMDs. And they both filled out disability paperwork for me. Both places said it was very common. If your LLMD will not fill it out, I'd advise looking for another one.

Actually, I had 3 doctors help out with paperwork at different time. First one was Dr J in DC, then my somewhat lyme literae neurologist, and just this week, my current LLMD in NC sent in updated info to the company handling my case. From looking at your signature, it looks like you have been battling lyme a long time. Does your LLMD feel you are fit to work? Or they just don't do it for anyone?

Post Edited (Hoagie) : 3/23/2018 8:32:29 PM (GMT-6)


Runninheid
Regular Member


Date Joined Sep 2017
Total Posts : 52
   Posted 3/23/2018 9:02 PM (GMT -6)   
My LLMD in Northern California filled out the disability paperwork, no problems.

I wonder why yours won't? Seems odd.

Gilmore
Regular Member


Date Joined Dec 2015
Total Posts : 27
   Posted 3/23/2018 9:06 PM (GMT -6)   
I might be able to focus on chronic pain, migraines, falling or some of the other diagnosis, but hard to process and decide how to proceed. Disability lawyer says autoimmune type diagnosis really need strong support Doctor.

My LLMD is one of the few in SE of USA (TN) and so is very wary of getting labeled and targeted.

Hoagie, Yes, I have probably had Lyme at least 20 years since living in NYC and surrounding area. I am grateful for the careI have gotten, but I would like to know who you have seen in NC. I had thought about seeing Dr. M in McLean ,VA because it seems to accept Tricare. I have become dependent on my son in army and trying to get off Medicaid. A Lyme literate neurologist would be great,too. Neurologist I saw thought it was the IV meds and not Lyme. I will allow email directly.

Thanks so much
Lyme diagnosed in 2014 after testing for 12 years
Late stage neurological Lyme and trying to get disability
Done:applied kinesiology with lots of supplements
Done: IV rocephin, IV vancomycin, IV doxy
Done Oral antibiotics: mepron, doxy, ceftin, rifampin, azithromycin
Done Supplements: biofilm defense, B12, vit D, flower essences, homeopathic drops, burbur brain detox, GSE, Chorella, oils
Detox

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32625
   Posted 3/23/2018 9:28 PM (GMT -6)   
Gilmore said...
I might be able to focus on chronic pain, migraines, falling or some of the other diagnosis, but hard to process and decide how to proceed. Disability lawyer says autoimmune type diagnosis really need strong support Doctor.

My LLMD is one of the few in SE of USA (TN) and so is very wary of getting labeled and targeted.

Hoagie, Yes, I have probably had Lyme at least 20 years since living in NYC and surrounding area. I am grateful for the careI have gotten, but I would like to know who you have seen in NC. I had thought about seeing Dr. M in McLean ,VA because it seems to accept Tricare. I have become dependent on my son in army and trying to get off Medicaid. A Lyme literate neurologist would be great,too. Neurologist I saw thought it was the IV meds and not Lyme. I will allow email directly.

Thanks so much


Why an autoimmune disease? Can't Lyme be classed as an Infectious Disease?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

The Dude Abides
Veteran Member


Date Joined May 2017
Total Posts : 1119
   Posted 3/23/2018 11:43 PM (GMT -6)   
Gilmore,

I'm very sorry for the hassles you're dealing with, in addition to being unwell. That really stinks.

Although it wasn't the same Disability paperwork that I believe you're mentioning, my primary doctor did complete Short-Term Disability paperwork for me, when I was working. This is what Girlie was suggesting, in her first response. I just wanted to encourage you not to rule-out that option. Given what you wrote immediately above, it certainly seems, unfortunately, that you have enough other challenges. So, I would try any avenue that's less contentious than Lyme Disease.

about five or five-and-a-half hours east of you, in Western North Carolina, there is an LLPA. But, like many Integrative/Functional Medicine providers, she doesn't accept insurance. But, she could provide receipts with Diagnosis/CPT Codes, if you have the ability to file for reimbursement.

I hope that you're able to get the help and services you need. I wish I had more to offer.

Finally, my thanks to your Son for his Military service.

Sincerely,
The Dude

Hoagie
Veteran Member


Date Joined Jul 2017
Total Posts : 614
   Posted 3/24/2018 8:01 AM (GMT -6)   
Dude,

Is the LLPA you are speaking of AW in Asheville?

The Dude Abides
Veteran Member


Date Joined May 2017
Total Posts : 1119
   Posted 3/24/2018 1:03 PM (GMT -6)   
Hoagie said...
Dude,

Is the LLPA you are speaking of AW in Asheville?


Hi, Hoagie: Yes, you're quite correct.

borrelioburgdorferii
Regular Member


Date Joined Feb 2017
Total Posts : 209
   Posted 3/24/2018 5:58 PM (GMT -6)   
Gilmore I wish I had more answers for you. I was denied SSI and I'm not sure if I did my paperwork right.
Anyway, good luck.

Post Edited (borrelioburgdorferii) : 3/25/2018 1:18:08 AM (GMT-6)


Gilmore
Regular Member


Date Joined Dec 2015
Total Posts : 27
   Posted 3/25/2018 11:35 AM (GMT -6)   
Many thanks for suggestions and have another question...
I will look into other LLMD which fill out disability paperwork and code for Tricare insurance thru my son.
But also look into another diagnosis rather than Lyme.

???Any suggestions NYC area doctors which might take Tricare ? because that is most probably where I got it. I have friends there I could still stay with. I had friend who went to Dr. L north of city. I know many are not taking patients or gone on to other Lyme work.

I was denied disability so this is an appeal with attorney. I guess denial is typical process. But other diagnosis might be easier for disability. Not sure if can change diagnosis in appeal or reapply.

Infectious disease Doctor needs positive tests which did not happen this week because Medicaid uses labcorp only. The positive results from 2014 were igenex with LLMD who will not do paperwork.

I have been unable to work for years. I sold my house and belongings and now live with friends until my son gets out of army and I can have tiny house in his backyard.
But your replies spur me on to continue to fight. It gets tiring to keep hitting wall after wall.
Lyme diagnosed in 2014 after testing for 12 years
Late stage neurological Lyme and trying to get disability
Done:applied kinesiology with lots of supplements
Done: IV rocephin, IV vancomycin, IV doxy
Done Oral antibiotics: mepron, doxy, ceftin, rifampin, azithromycin
Done Supplements: biofilm defense, B12, vit D, flower essences, homeopathic drops, burbur brain detox, GSE, Chorella, oils
Detox

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4879
   Posted 3/25/2018 12:19 PM (GMT -6)   
Girlie said...


Can't Lyme be classed as an Infectious Disease?


As far as the U.S. legal system goes, Lyme is cured in one month max and is no more infectious than the flu.

From a legal standpoint, people have better luck breaking lyme down into symptoms; more familiar territory,: Arthritis, mental issues ect.

Being over 50 helps (big time), and its common to apply three times before accepted - for almost any disability.

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2115
   Posted 3/25/2018 3:04 PM (GMT -6)   
Astroman is correct, have your att. stress in the case that you are unable to concentrate, complete tasks, do repetitive work, that you have physical stability issues(falling down, off balance?)

The llmd or a gen. prac. should be able to write a report expressing this even if they don't want to fill out disability paperwork and it could be used to present your case.

gravitas7
New Member


Date Joined Apr 2018
Total Posts : 6
   Posted 4/25/2018 7:43 PM (GMT -6)   
Hi Gilmore,

I am wondering if you were able to get help from an MD?

I've been out of work for 6 months and my SDI was turned down by a private insurer. I requested the case file and found out that it was largely because of scrappy notes provided by my dr.

I am writing because I can't stress how important it is to get have your Dr. painstakingly fill out all paperwork. And as folks mentioned above, he/she will need to go into meticulous, concrete detail about why you cannot perform your position.

I myself am looking for an attorney to help with my appeal, but I haven't found anyone willing to as it is only SDI (low payoff) and I hope to be able to return to work in the next few months.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32625
   Posted 4/25/2018 10:57 PM (GMT -6)   
Hi gravitas - welcome to our community.


Thanks for posting the tips on filling out the paperwork for disability.

Do you have lyme disease?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

gravitas7
New Member


Date Joined Apr 2018
Total Posts : 6
   Posted 4/26/2018 9:14 AM (GMT -6)   
Hi girlie

Yes, I do. I was diagnosed last summer - symptoms started several years before that.
I'm on doxy + herbal tinctures. Also dealing with candida, MTHFR mutation, thryroidectomy.
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