Need advice on Bartonella

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Pebble78
New Member


Date Joined Mar 2018
Total Posts : 2
   Posted 3/24/2018 8:39 AM (GMT -6)   
Hi my 14yr old son was bitten by a tic back in October. We removed it all and kept an eye out for the telltale 'bullseye' rash but it never appeared so we thought he was fine. I still kept an eye out for any other symptoms just to be safe but as most are similar to everyday illnesses ie headaches, body aches etc its hard to tell if when he experienced these if they were part of normal winter bugs or something more sinister but everything I'd seen or heard about tic bites claimed that no bullseye rash meant no infection (i now know this not to be true) Anyway by December we had all but forgot about the bite. It was around mid December i noticed my son had suddenly lost the love handles and tummy rolls he had been developing even though he was eating more and not really doing any excercise. He also developed strange marks on his back, halfway up and across his spine. They looked a bit like red stretch marks except some angled down slightly while others were horizontal and they were varying in lengths. At first we thought they were pressure marks from leaning against a box in his bedroom while playing on his xbox so we didnt really pay attention. A few weeks later i noticed they were still there but still didnt associate them with anything sinister. It was around this time i noticed he was starting to lack enthusiasm for things he'd enjoyed before, he started going to bed earlier and just seemed quiet, he complained of painful aches in his legs, headaches, occasional sore throat and generally feeling rough but all this was on and off and not continuous so didnt think they could get be linked. Last week i noticed he still had the strange marks on his back and showed my mother in law to see what she thought they were as it seemed a strange place to develop stretch marks. She was stumped too so the following day i googled them and came across pictures of the Bartonella rash which looks identical to what my son has. I then looked at symptons and many of them matched what my son has been complaining about, he had also mentioned having blurred vision occassionally which i saw could be yet another symptom. I couldnt get in to see a dr with him so we saw the nurse instead and she immediately dismissed the rash as stretch marks and wasnt convinced when i mentioned the possibility of bartonella (she even had to look up the symptoms to check) in the end she ordered a blood tests for lymes and other problems ie liver, kidney etc.
I got the results yesterday and everything came back clear but im still not convinced. It seems too much of a coincidence when i think of the bite, the marks and the symptoms he's had. Maybe im just worrying about nothing but I don't want to dismiss it all based on the nurses quick judgement and the tests results if there is a possibility they could be wrong. Ive heard that sometimes lymes doesnt show up on the blood test but the person has it and goes on to develop more serious symptoms later on due to it not being treated early enough and also that the test doesnt always identify co-infections such as Bartonella.
Is there another way to test for Bartonella that is more accurate? Does the symptoms I mention above sound like Lymes/Bartonella or am i over reacting?
My son has also been complaining of feeling nauseous on and off for the past couple of weeks and today had been complaining of being in pain from head to toe, not achy as in flu but proper pain. Should I be worried?

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1996
   Posted 3/24/2018 10:11 AM (GMT -6)   
Everything you said is true. You are not worrying for nothing. Your son is clearly infected IMO with bartonella and most likely Lyme and mayb other infections. Ticks transmit multiple infections. Tests are largely falsely negative. Coinfection testing is even worse than Lyme testing.

I would advise you look for a Lyme literate medical doctor (LLMD) right away. Every symptom you named is from bartonella except maybe the nausea. That may be one of the other infections. I have bartonella/Lyme/ehrlichia and all those symptoms.

Keep coming here for help and support. If you can't find a doctor right away who will prescribe antibiotics, you could start him on herbs. Many use Stephen Buhner's herbal protocols for the infections either alone or with antibiotics.

If he's treated with antibiotics by a doctor, make sure they target the bartonella. Bartonella can be a beast. It has reduced my quality of life since early childhood. Beware that not all LLMD's are good anymore than all doctors of any kind are good.

You sound like you have sharp instincts and observation skills. TRUST YOUR GUT more than any doctor or anyone else. Listen to your son and believe and make note of what he tells you he feels or experiences and all that you observe. Take pictures of the marks and any other visible thing you notice including his weight loss. Let him know it's safe for him to tell you anything he feels no matter how strange or scary it is. Mentally prepare yourself. Symptoms of Lyme and especially bartonella can get really weird and sometimes scary. Hopefully it will not be that way for him, but it's good to be prepared.

Keep coming here with any questions or concerns. Three are many people on this forum who have had a wide range of experience and knowledge of the infections, the symptoms and bodily dysfunction they cause, medical treatments, working with all kinds of doctors or no doctor.

Please don't be frightened. Lyme and coinfections are awful to have, but they can be successfully treated. It will take some time and very likely some trial and error.

acarined
Regular Member


Date Joined Jul 2015
Total Posts : 230
   Posted 3/24/2018 11:48 AM (GMT -6)   
You are lucky to have encountered Bartonella in the era of the Internet, when I was infected there was no help to be found. I've probably seen at least 20 doctors in as many years, most of them specialists, for the neurological, cardiac, and psychiatric symptoms of this infection. There is never a point that an untrained doctor will be able to diagnose one of these infections, they will keep their patients sick, misdiagnose them, and make them doubt that effective treatment is possible. Even after such a long time without treatment, I've had a substantial recovery after taking the right medications.

I tell you this because I don't want you to get stuck, like I did, due to trust in the medical system. There is plenty of hard evidence and science proving that these infections can be chronic and difficult to test for, unfortunately ego and factionalism prevents those developments from ever gaining ground with the majority of medical practitioners. You must seek out a doctor on your own to get treatment.

sandyfeet
Regular Member


Date Joined Mar 2018
Total Posts : 377
   Posted 3/24/2018 12:35 PM (GMT -6)   
I would second everything already said here and only add that even if you're not planning to treat with herbs that I found Stephen Buhner's three books on Lyme and co-infections to be a wonderful resource for simply trying to understand what each bacteria is up to and how that might relate to the bizarre range of symptoms I've experienced. Every little bit of knowledge helps for me as I try to navigate the options out there.

Wishing you much strength and persistence to find a good LLMD or LLND!
Bulls eye rash August 2013
Started treating with Buhner herbs July 2017
Treating Borellia, Babesia and Bartonella as of November 2017

insomniaaa
Regular Member


Date Joined Apr 2017
Total Posts : 172
   Posted 3/24/2018 12:53 PM (GMT -6)   
Some Great suggestions above.

Try Dry brushing your son's skin from head to toe. Maybe you can provoke some weird bartonella rashes this way.
They should appear near immediately I guess.
This doesn't always work but it's worth a shot.

Also keep in mind that immunocompetent people usually don't fall ill from bartonella alone AFAIK.
So there might definitely be an immunosuppressant disease such as Lyme or similar at play here that basically acts as a gate opener to the bartonella or bartonella like organism (BLO)

Post Edited (insomniaaa) : 3/24/2018 11:58:52 AM (GMT-6)


Aerose91
Veteran Member


Date Joined Feb 2016
Total Posts : 543
   Posted 3/24/2018 2:47 PM (GMT -6)   
insomniaaa said...
Some Great suggestions above.

Try Dry brushing your son's skin from head to toe. Maybe you can provoke some weird bartonella rashes this way.
They should appear near immediately I guess.
This doesn't always work but it's worth a shot.

Also keep in mind that immunocompetent people usually don't fall ill from bartonella alone AFAIK.
So there might definitely be an immunosuppressant disease such as Lyme or similar at play here that basically acts as a gate opener to the bartonella or bartonella like organism (BLO)


Dr Mozayeni says bartonella is immuno-suppressive much the same as lyme. I wondered this as well

Pebble78
New Member


Date Joined Mar 2018
Total Posts : 2
   Posted 3/24/2018 4:20 PM (GMT -6)   
Thank you for your replies. We are going to go back to our Dr for a 2nd opinion and if we get no joy there I will look for a LLMD. I am also going to look at Stephen Buhner's books. Ive been trying to find as much info to present to our Dr so that she will listen rather than try to fob us off like the nurse did. Now that I know im not just imagining the similarities between his symptoms and Bartonella I will not let it go, I already feel bad that I didnt pay proper attention when the marks first appeared, i dont want to waste any more time.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33837
   Posted 3/24/2018 4:54 PM (GMT -6)   
Hi Pebble - welcome!

Here's what I know: tick bite....then symptoms including what appears to be bartonella marks on his back.

I would find a LLMD and get him on treatment. It's still fairly early - at 5 months in...I wouldn't wait for more symptoms to develop.

I wouldn't waste time for a 2nd opinion from a non-lyme literate Dr. Even if they do acknowledge it's lyme and co's - he will not be adequately treated...so you will then be waiting several more weeks to get into a LLMD. May as well get the ball rolling now IMO.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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