Would like some opinions from my fellow lymies

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dacarte3
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Date Joined Feb 2016
Total Posts : 1897
   Posted 3/26/2018 1:49 PM (GMT -6)   
My symptoms the past week (in chronological order):

1. Symptoms that resembled sciatica nerve pain (hips, lower back, thighs)
2. Sciatic nerve pain subsides and disappears
3. flu like symptoms excluding coughing, sneezing, and running nose occurs. Slight fever, some chills, achiness, sore throat. Tender swollen lymph nodes below the ears (the classic place)
4. a tender Montgomery gland on the right areola (yes men have Montgomery gland bumps too).
5. all symptoms now gone except the stubborn sore throat and the Montgomery gland.

And then someone where in between all this I got horizontal oblong shaped red rings (3) on my left chest. They look like a cross between the classic EM rash and Bart streaks.

I mean what I just described can be bart rearing it's head, Mycoplasma, EBV being opportunistic and popping back up or I fear (logical or not) it can be something else/new.

I always get worried when I have a significant flare and take a big step back.

Thoughts? Has anyone else had a similar combination of symptoms?
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Borrelia, Babesia, Bartonella and Mycoplasma (treating everything to be on the safe side): May 2016 - Dec. 2016; 8/2017 - Present

goshawk
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Date Joined Sep 2016
Total Posts : 2123
   Posted 3/26/2018 6:00 PM (GMT -6)   
well, I had the reoccurring sore throat for a few months and the skin marks sound like Bart. I had some that were honeycomb/chicken wire looking...so very strange.

Chills that I had here and there I figured was Babesia.


With swollen lymph nodes under ears and flu/cold like symptoms is it possible you just had an old fashioned regular cold ?

dacarte3
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Date Joined Feb 2016
Total Posts : 1897
   Posted 3/26/2018 6:39 PM (GMT -6)   
goshawk said...
well, I had the reoccurring sore throat for a few months and the skin marks sound like Bart. I had some that were honeycomb/chicken wire looking...so very strange.

Chills that I had here and there I figured was Babesia.


With swollen lymph nodes under ears and flu/cold like symptoms is it possible you just had an old fashioned regular cold ?


But there were no sneezing, coughing or runny nose. Flu like symptoms minus those symptoms is more EBV-ish.

I think for me lyme makes EBV come back up once maybe twice a year. I got the same symptoms last year (feb 2017) minus the nerve pain.

Then when I research nerve pain of this nature borrelia and bart comes up a lot.

But I'm leaning more towards a "milder" version of EBV.

the hip, lower back, leg nerve pain worries me because that was a very early lyme symptom (like the first few months of lyme) more than 2 years ago. Haven't experienced since until now.

WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 1682
   Posted 3/26/2018 6:49 PM (GMT -6)   
Dacarte,

I am so sorry you're having these disturbing symptoms. I can understand why you're not exactly sure what it is. The whole constellation doesn't seem to squarely fit any one thing, although is does sound bartish to me.

Can you get some labwork done to check on viruses, etc?

dacarte3
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Date Joined Feb 2016
Total Posts : 1897
   Posted 3/26/2018 6:59 PM (GMT -6)   
WalkingbyFaith said...
Dacarte,

I am so sorry you're having these disturbing symptoms. I can understand why you're not exactly sure what it is. The whole constellation doesn't seem to squarely fit any one thing, although is does sound bartish to me.

Can you get some labwork done to check on viruses, etc?


Well I know I have EBV and Herpes I. Chicken pox herpes way back when I was little. No herpes 2. No HIV (already got tested this year). Never got tested for CMV I believe it's called.

What other viruses that fit these descriptions are left?

Oh, I did google strep bacteria. And that gives you chills, achiness, swollen glands, and headache as well. It is a more severe streppy sore throat than a normal cold sore throat.

However, I do know Bart can give you a pretty bad one too. I did experience a milder sore throat that came and went, came and went multiple times a day before this. Almost like it was building up to this moment.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Borrelia, Babesia, Bartonella and Mycoplasma (treating everything to be on the safe side): May 2016 - Dec. 2016; 8/2017 - Present

Raleighgirlie
Regular Member


Date Joined May 2017
Total Posts : 140
   Posted 3/26/2018 6:59 PM (GMT -6)   
It does sound a bit like EBV to me...

WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 1682
   Posted 3/26/2018 7:07 PM (GMT -6)   
If you haven't been tested recently and it is one of those, wouldn't the lab values change? I know mine did. At baseline, my myco Igg was just under 500. A year later it jumped to over 800. I can't really tell by symptoms though. Myco is supposed to cause overwhelming fatigue, and I don't have that.

If you have a Lyme doctor, I'd mention it and ask what they think and which viruses/bacteria you might should check. Strep is definitely a plausible one.

The thing about having Lyme/co is we don't always have textbook symptoms with anything including non-Lyme infections. Makes it hard for us (and doctors) to pinpoint, and we often end up assuming everything is Lyme or coinfections, when it probably isn't. I would expect any other infection would interact with or exacerbate symptoms of Lyme/co, causing those symptoms to flare at the same time the other infection is causing symptoms.

We're just complicated messes!!

Post Edited (WalkingbyFaith) : 3/26/2018 7:21:34 PM (GMT-6)


dacarte3
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Date Joined Feb 2016
Total Posts : 1897
   Posted 3/26/2018 7:08 PM (GMT -6)   
If I connect the dots it does sound bartish. What is the one thing can cause all of the symptoms all around the same time.

1. Sciatic nerve pain - lyme, bart, and mycoplasma (according to Dr. Rawls and pubmed)
2. Really sore throat - classic bart
3. during the same time the skin marks that sound bartish
4. flu-ey symptoms - all lyme related pathogens

I know I'll live with these critters forever but I would love to get a good 6-12 months of them staying at bay at some point. Feeling good for 3 months and then lyme and co popping up again is not how I want to live the rest of my days (I'm 34, I plan on having 50 more birthdays haha).
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Borrelia, Babesia, Bartonella and Mycoplasma (treating everything to be on the safe side): May 2016 - Dec. 2016; 8/2017 - Present

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1897
   Posted 3/26/2018 7:11 PM (GMT -6)   
WalkingbyFaith said...
If you haven't been tested recently and it is one of those, wouldn't the lab values change? I know mine did. At baseline, my myco Igg was just under 500. A year later it jumped to over 800. I can't really tell by symptoms though. Myco is supposed to cause overwhelming fatigue, and I don't have that.


I know. I had a myco test a month ago and it increased 200 points (I need to update my signature). Per my research myco also can cause sore throat and pelvic pain.

Just trying to narrow it down to which infection so I choose the right herbs.

Lymie24
New Member


Date Joined Nov 2017
Total Posts : 11
   Posted 3/26/2018 7:21 PM (GMT -6)   
dacarte3 said...
If I connect the dots it does sound bartish. What is the one thing can cause all of the symptoms all around the same time.

1. Sciatic nerve pain - lyme, bart, and mycoplasma (according to Dr. Rawls and pubmed)
2. Really sore throat - classic bart
3. during the same time the skin marks that sound bartish
4. flu-ey symptoms - all lyme related pathogens

I know I'll live with these critters forever but I would love to get a good 6-12 months of them staying at bay at some point. Feeling good for 3 months and then lyme and co popping up again is not how I want to live the rest of my days (I'm 34, I plan on having 50 more birthdays haha).


about a year ago I had severe sciatic nerve pain. I knew I was dealing with lyme but I wasn't expecting this pain. I went to the doc and took some x-rays and they found nothing. about a month later I started going to an LLMD and he started treating me for Lyme and Co, specifically Bart. I developed classic bart scratches on my back during treatment and the nerve pain went away after a few weeks.

Other Bart symptoms I have had are pain in thighs, shins, feet.

Aerose91
Regular Member


Date Joined Feb 2016
Total Posts : 391
   Posted 3/27/2018 5:40 PM (GMT -6)   
#3 screams bartonella die-off to me. Fluish/weak symptoms are general herx symptoms, then the swollen lymph nodes drive bartonella home
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