Help tolerating various supplements with lyme/co-infections

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Chloe S
New Member


Date Joined Feb 2018
Total Posts : 12
   Posted 3/27/2018 2:14 AM (GMT -6)   
Hi all, i’m really hoping someone can help me with one of my main issues at the moment. I have always been a bit sensitive to things but for the last 7 years since having my daughter things have been harder (I nearly died after having her due to blood loss) I have a really hard time tolerating supplements, I am currently on slippery elm, colostrum, lactobacillus, vitamin c, epa fish oil. All took a while to tolerate, but try as I might, I can’t grt on the zinc picolinate, mag/calcium, digestive enzymes, vitamin d or the Thorne multi. I have tried all of these around 10 times, in tiny doses at first, my husband has even been putting them in my smoothies sometimes without me knowing and I still get a reaction. Each thing is slightly different but mainly I get a really foggy head and feel like a zombie. I really don’t know what to do as I can’t move forward with my treatment. Do I actually have intolerances or is this something in my head/an emotional issue. If someone has had a similar problem or a theory, I would be so grateful of your help.

The Dude Abides
Veteran Member


Date Joined May 2017
Total Posts : 1130
   Posted 3/27/2018 4:00 AM (GMT -6)   
Hi, Chloe S:

Can you expand a bit on the reasons you're intending to take all those supplements?

What are your target doses and frequency for each of those supplements?

How do you feel when not taking ANY of those supplements?

I'm sorry for all the questions. I'm just trying to understand the rationale and get a little more detail.

The Dude

Aurora2013
Regular Member


Date Joined Jun 2017
Total Posts : 90
   Posted 3/27/2018 4:41 AM (GMT -6)   
HI Chloe,

I can totally relate to feeling "foggy" when taking various supplements and or herbals. When I first became sick my llmd at the time wanted me to take a bunch of supplements including "Brain Sustain". As much as I tried, I ultimately could not take this supplement as it really made me feel completely out of it. At the beginning of my illness (before I began treatment with an llmd), I did not know that I was supposed to be on a specific diet and I remember eating beets and having the same reaction. Some of my herbals will also give me brain fog but not to the extent that the "Brain Sustain" or beets did.

My symptoms are mainly neurological (burning, tingling, brain fog etc) so i do my best to avoid supplements and foods which exacerbate these symptoms. Even though these supplements are supposed to be great for addressing Lyme and co infections, I figure why add insult to injury. I have been treating my illness for nearly five years and have definitely learned that what works for one individual may not work as well or at all for others. Have you had the opportunity to discuss your experiences with your llmd? I do not believe that it's an "emotional issue" but I do believe that what you are experiencing is real and the director result of what your taking. As I mentioned, there is no one right way to treat these illnesses and hope that your llmd is open to working with you to reduce your reaction to your supplements. How long have you been treating and what are you being treated for?

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2438
   Posted 3/27/2018 9:27 AM (GMT -6)   
When somebody is really reactive - over reactive - to a lot of treatments (supplements, abx, herbals, of whatever), I tend to wonder about MACS (Mast Activation Cell Syndrome). Not sure it's applicable to you, but it would be something that I'd want to rule out/in though.
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

ArtAngel
Regular Member


Date Joined Mar 2016
Total Posts : 320
   Posted 3/27/2018 5:17 PM (GMT -6)   
I went to a kinesiologist for a while after getting, so allergic I couldnt tolerate electricity, mosts foods and most healing products. I was pretty much allergic to the 21st century. She helped a lot she diagnosed lyme and mercury poisoning, and she did something that shifted not just my energy levels to a new high but my chemical sensitivities to a place where I could take some products I knew were a major issue for me.

Look for a good one they all have different talents and ask them if they think they could help you. If you dont notice any change in the first 2-3 appointments then they cant help.

BDRoland
Regular Member


Date Joined Mar 2018
Total Posts : 22
   Posted 3/28/2018 5:39 PM (GMT -6)   
Chloe,

While I don't have an explanation for your super-sensitivity I feel for you. My wife is the same way.

A few common thoughts (from experts, not me) around This- Babesia - which is a common lyme "coinfection" can cause increased sensitivity
Lyme - from over stimulating the immune system
Mold or other bacteria fungus in your system
Thyroid issues

The strategy (with my wife at least) is to treat the underlying issues to fix the sensitivity. Lyme really seems to wreck havoc on the immune system - causing the body to spare Lyme and sometimes to attack itself (autoimmune issues yay).

Anyway - I'll try to say something helpful. My OPINION and my WIFE'S is not to force supplements that you think you react to (even if they are great and are suppose to help XY&Z). You don't want to cause more inflammation and throw your immune system off even more. This is especially true for immune-modulating herbs/medications (Astragulus, Reishi mushrooms, etc.) You may be pushing the gas pedal on your already over active immune system. Very technical but explains this = https://www.selfhacked.com/blog/th17/

My best advice would be to listen to your body and work with someone that may be able to test each supplement on you (kinesiologist may be able to, chiropractors can do muscle testing, some naturopaths may do a thymus gland test, etc.) Unfortunately this isn't a problem for most people so most MDs will only tell you to stop taking it if it causes a reaction. There isnt much else they can do.

BDRoland
Regular Member


Date Joined Mar 2018
Total Posts : 22
   Posted 3/28/2018 5:44 PM (GMT -6)   
Better link = https://autoimmunewellness.com/how-do-you-balance-th1-and-th2-in-autoimmune-disease/

Also I'm not saying to try to balance your immune system that is entirely complex. Just a reason why some things may not work for you that are great for others. Your body may also jump from th1 to th2 back and forth.
+Lyme (w/ bart and babesia), rocky mnt spotted fever, parasites, mold, Epstein Barr, EMF radiation, and other fun 'guests'
++Dairy free, gluten free, nutramedix herbs, results RNA Lyme protocol, homeopathics, ionic detox foot baths, Epsom&peroxide baths, bentonite clay, and a shelf full of supplements (magnesium, Gaba, melatonin, NAC, b complex, probiotic, nitric oxide, coq10, omegas and more)

cakegirl
Regular Member


Date Joined Nov 2016
Total Posts : 254
   Posted 3/29/2018 10:19 AM (GMT -6)   
Chloe S said...
Hi all, i’m really hoping someone can help me with one of my main issues at the moment. I have always been a bit sensitive to things but for the last 7 years since having my daughter things have been harder (I nearly died after having her due to blood loss) I have a really hard time tolerating supplements, I am currently on slippery elm, colostrum, lactobacillus, vitamin c, epa fish oil. All took a while to tolerate, but try as I might, I can’t grt on the zinc picolinate, mag/calcium, digestive enzymes, vitamin d or the Thorne multi. I have tried all of these around 10 times, in tiny doses at first, my husband has even been putting them in my smoothies sometimes without me knowing and I still get a reaction. Each thing is slightly different but mainly I get a really foggy head and feel like a zombie. I really don’t know what to do as I can’t move forward with my treatment. Do I actually have intolerances or is this something in my head/an emotional issue. If someone has had a similar problem or a theory, I would be so grateful of your help.


We have the same problem. I believe the reactions we experience are mast cell activation syndrome. There are several people in the forum who first suggested it me. The reactions only got worse over time and now include reactions to foods normally tolerated. And stress. It's not in your head. It could also be leaky gut. We quit taking any herb, supplement that causes a reaction. Forcing them only made the sensitivity even worse. Buhner mentions histimine intolerance in his book in the extended repetoire and talks about mast cell issues in this radio interview at about 49 minutes in:
https://www.youtube.com/watch?v=oIRzVI5vdb8

Post Edited (cakegirl) : 3/29/2018 10:25:45 AM (GMT-6)

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, June 24, 2018 3:04 AM (GMT -6)
There are a total of 2,974,671 posts in 326,198 threads.
View Active Threads


Who's Online
This forum has 161296 registered members. Please welcome our newest member, Graham1234.
239 Guest(s), 2 Registered Member(s) are currently online.  Details
HarryN, Sinmiedo