Help! Seeking a LLMD or Specialist in Greater Boston Area! Or CT or NY.. I dont care at this point

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Tjhammer845
New Member


Date Joined Mar 2018
Total Posts : 3
   Posted 3/27/2018 9:07 AM (GMT -6)   
Hi, I am in the greater Boston area. I have had Chronic Lyme and have been going through the ringer for some time now.. 8 years off and its back again. Currently seeing a doctor that has me on a regimen of 4 antibiotics (doxy, rifampin, clarithromycin and nystatin, etc.) along with a several supplments. I am seriously scared for my health and have not been able to see an end to this. The antibiotics have helped a little bit but with elevated liver enzymes high enough to stop treatment for a week or so and restart. I am now considering to stopping treatment and seek new help. They make me feel absolutely horrible .. chest pains, stomach problems and irritability. While being off them, I feel better with the exception of the myalgias, various arthralgias and lack of energy throughout the day. I am willing to seek help at any cost. Can anyone please recommend/refer me to a LLMD or specialist in the Boston Mass or surrounding areas that has helped with this disease in this stage. Looking for someone with knowledge and experience with their recommendation.

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2123
   Posted 3/27/2018 9:39 AM (GMT -6)   
Hi and welcome to our forum,

I am so sorry that you have Lyme and co.

You can email me or Girlie and we will check our list for LLMd's in your area. One of the best LLMD's is in Washington D.C., Dr J, many members here go to his clinic. There is also the Hansa center, i believe its in Wisconsin that members speak good about.

You will have to enable your email iin your profile to be able to receive responses from members about llmds.

Others will be along shortly.

I apologize for making this short, Im at work but i will check in later.

Take care, jo

Tjhammer845
New Member


Date Joined Mar 2018
Total Posts : 3
   Posted 3/27/2018 1:08 PM (GMT -6)   
A huge thank you for your reply Jo. I emailed you in regards to the list but please take your time. Thank you for your positive insight. I will look into the Hansa Center when I'm free from work as well. <3

lymeInNEPA
New Member


Date Joined Jan 2018
Total Posts : 17
   Posted 3/27/2018 1:24 PM (GMT -6)   
Check out LLMD Dr. DC Mt. Kisco NY. He contributed to the ILADS guidelines and is experienced in treating lyme and co infections. He is very good but he is expensive and my insurance from PA only covered the blood work. But knowledgeable LLMD was what I was looking for as Lyme is misunderstood.

Good Luck!!!

Post Edited By Moderator (Girlie) : 3/27/2018 6:32:52 PM (GMT-6)


goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2123
   Posted 3/27/2018 4:53 PM (GMT -6)   
Hi Lyme in Nepa could you do me a favor and change Dr C name to just initials, as we are not supposed to post full names. Girlie is away from forum today and is the only one who can fix it besides you editing it. Thanks so very much.

ShutterGy
Regular Member


Date Joined Nov 2014
Total Posts : 109
   Posted 3/28/2018 5:19 AM (GMT -6)   
Check out the Dean Center for Tick Borne Illnesses at Spaulding Hospital in Charlestown, MA. Absolutely fabulous. Email me for the names of two Doctors on the North Shore and an LLND in NH

Tjhammer845
New Member


Date Joined Mar 2018
Total Posts : 3
   Posted 3/28/2018 7:09 AM (GMT -6)   
Thank you so much ShutterGy. I will send you an email.

abkmom24
New Member


Date Joined Mar 2018
Total Posts : 3
   Posted 6/10/2018 8:49 AM (GMT -6)   
Can anyone email the name of the Neurologist in the Boston area that does IVIG treatment? I emailed shutterguy but he has not replied.
Thanks very much for your help.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32691
   Posted 6/10/2018 11:18 AM (GMT -6)   
bump
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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