Herx or flare getting worse...again!

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tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 3/28/2018 9:09 PM (GMT -6)   
Hi again! I'm so sorry how many posts I've been posting, I just don't quite know who else to turn to! So as many of you know I've had this ongoing neurological flare for almost a month now, came out of the blue, had been treating lyme and babesia. Llmd thought it was bart coming out. The only silver lining about my flare was symptoms seemed to calm down in the evening and night so I could sleep. I started Rifampin 300mg on Sunday (he wanted me at the full 600mg right away but I didn't do it, in fact Sunday I did 150 in the am and 150 pm), I did ok sunday night, so I took the full 300mg Monday am. Monday evening everything fell apart!!! Severe headaches, insomnia (slept 1.5hr), severe panic all night, lots of pins and needles especially like my feet were being attacked. I stopped the Rifampin, since I can't go through this. Last night was still awful with panic, so I took an ativan (which I normally do not take) and that at least let me get a little sleep, not much though. Today head and neck pain continued and now it seems like symptoms are getting so much worse as the day continues! I feel like all I did was anger the bugs! I've taken an epsom salt bath, dry brushing, chlorella, alka seltzer gold, activated charcoal. I've taken gaba, skullcap, l theanine, taurine, 2 aleve, medical cbd and nothing is helping! What have I done?! Will things ever calm down? Even if I just get my calm evenings and nights back I'd be thankful!! This month has been like a a very horrific nightmare and I so badly want to wake up and let it just be a dream!!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33893
   Posted 3/28/2018 9:46 PM (GMT -6)   
Sorry to hear you're still having a rough time with this tonya!


Yes, it should eventually calm down...but if the herx is too much (sounds like it is) - you might want to stop it.

It's difficult to know if it will calm down if you continue to take it.

I usually push through...and it usually calms down - despite not stopping.
But there have been times when I have stopped - because symptoms got downright scary.

Only you can decide this....if you're really suffering...then don't push through. it's not worth it.
You need your sleep.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 3/28/2018 11:31 PM (GMT -6)   
So I did stop it, I only took it for 2 days! With how bad things have been I couldn't push through it, I'm not strong enough right now! How long of a herx could 2 days of rifampin cause? I can't believe how horrible this month has been!

acarined
Regular Member


Date Joined Jul 2015
Total Posts : 230
   Posted 3/29/2018 10:36 AM (GMT -6)   
You'll get through it, I've had the same flareups from taking antibiotics for bart. At the moment I'm on A-Bart, and it has been much easier to tolerate (my doctor started me on 1/2 a drop).

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 3/29/2018 4:10 PM (GMT -6)   
Thanks acarined! I hope it will pass soon, I am emotionally and physically drained from all the symptoms!
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