Suppliments that work for healing nerves?

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astroman
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Date Joined Mar 2014
Total Posts : 4880
   Posted 3/31/2018 10:46 AM (GMT -6)   
Similar posts in the past, but new people= new ideas.

********Anyone try nerve supplements that had an actual effect on nerve healing?********

Lot of history:

In my journey of fixing past muscle damage, I cant ignore the fact that I had pinched nerves in the past too. The major stuff was from years of acute two wheeled injuries (pedal and motor wipe outs) coupled with healing issues while having lyme. Fore the last two years, I have been successfully reversing the muscle damage in reverse order of what happened from 5 to 30 years ago.

In the distant past, I had the typical lyme body "buzzing" and carpel tunnel too. This went way, but my reflexes stayed kind of slow and stiff in the AM, I've always felt looser and more relaxed late afternoon on-wards. I currently workout more aggressively than ever (evenings), so this also contributes to morning stiffness, slow movement.

I've learned a lot about rejuvenating muscle health, but ignore nerve health. One foot still tightens up while standing after 20 minutes, walking helps/will make it go away. That seems to be mechanical and nerve in nature. That leg felt hot when crouching/kneeling for a year after a major crash.

MRI of spine show nothing major (had 4 in 15 years), but typical somewhat degenerative / worn areas (many people over 30 have that). I had major low back/pinched nerve pain 12 years ago which was the source of my hot leg. Keeping my spine muscles stronger now, helped this heal 50% before lyme treatment, 90% after.

I've tried a few nerve health combo supplements that didnt do anything. I had high b6 with lyme (bad for nerves), thats normal now.
Had initial lyme symptoms late 80's, then again and with bullseye early 90's. Ended ABX for Lyme in Jan 2016. Rebuilding / fine tuning / fixing muscles since then; member "10 Percenters Lyme Club". What an adventure this has been. Hashimotos adds to the enjoyment.

Post Edited (astroman) : 5/21/2018 11:18:42 AM (GMT-6)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 3/31/2018 10:51 AM (GMT -6)   
I tried Kudzu and Greater Celandine for nerve symptoms....didn't help.

Maybe I didn't take it long enough - Without checking my notes, I think it was 3 maybe 4 months.


When did you stop treatment - was it in 2015? Is it possible that more time is needed...nerve healing can take years (not just months) to heal.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 3/31/2018 11:28 AM (GMT -6)   
Oh, I forgot about Lions Mane (another Buhner recommended herb) for healing the myelin sheath.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4880
   Posted 3/31/2018 11:40 AM (GMT -6)   
Jan of 2016 was the last time I took ABX. Third round of Rx Candida treatment followed that. Seems like longer ago than that.

Just opened up my Tupperware box of ABX scripts, looking at the Dec 2015 script dates, first time seeing since sealing them up in 2016.....like time capsule LOL. Just holding the Flagyl bottle brought back bad memories. My posting "signature" says ended abx 2015 (oops). Losing track of time lately.

I still have several months worth of flagyl, ceftin and doxy. It was my plan to take this on my own ASAP if I had a return flare. No idea what the shelf life of ABX is. Herbs does sound better now, should the need ever arise.

Hitting fifty during treatment has something to do with running out of "healing patience" too.

Post Edited (astroman) : 3/31/2018 12:24:00 PM (GMT-6)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 3/31/2018 11:45 AM (GMT -6)   
I think most antibiotics are okay after expiration...but not minocycline (and maybe doxy as well - the entire class of tetras?) They don't just lose potency...they can be toxic (according to what I read).


Thing is, I never have expiration dates on my antibiotics. Not sure why that is - I even asked the pharmacist once...and he didn't have a good reason.

When I told this to the NP at the J. clinic...she was horrified and said she wouldn't take any meds without an expiration date.

What can i say - it's how we roll up here.... but it does cause me some concern especially if I'm taking the minocycline.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4880
   Posted 3/31/2018 12:20 PM (GMT -6)   
Lions Mane - something I intended to try but didn't. Some of the mushrooms can mess with thyroid meds, dont know if this was one though. "CD" here not to long ago noticed some of that.
Had initial lyme symptoms late 80's, then again and with bullseye early 90's. Ended ABX for Lyme in 2015. Rebuilding / fine tuning / fixing muscles since then; member "10 Percenters Lyme Club". What an adventure this has been. Hashimotos adds to the enjoyment.

BDRoland
Regular Member


Date Joined Mar 2018
Total Posts : 22
   Posted 4/1/2018 4:07 PM (GMT -6)   
Astroman- I've been looking into nerve protectors and regenerators for my brother who has ALS. here is what I have come up with:
Ginkgo biloba = possible nerve regeneration. Many in vivo studies in mice that have shown some nerve regeneration.
Buhner's recommendations for remyelination of the nerves myelin sheath = Red Sage, Cats Claw, Ashwaganda, and Boneset (p. 218 of healing lyme).
+Lyme (w/ bart and babesia), rocky mnt spotted fever, parasites, mold, Epstein Barr, EMF radiation, and other fun 'guests'
++Dairy free, gluten free, nutramedix herbs, results RNA Lyme protocol, homeopathics, ionic detox foot baths, Epsom&peroxide baths, bentonite clay, and a shelf full of supplements (magnesium, Gaba, melatonin, NAC, b complex, probiotic, nitric oxide, coq10, omegas and more)

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4880
   Posted 4/2/2018 9:35 AM (GMT -6)   
"Buhner's recommendations for remyelination of the nerves myelin sheath = Red Sage, Cats Claw, Ashwaganda, and Boneset (p. 218 of healing lyme)."

Red Sage and Boneset are new to me, thanks

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1604
   Posted 4/2/2018 9:58 AM (GMT -6)   
The toxicity issues with expired Tetra class abx has proven to be a myth.

http://m14forum.com/broken-arrow/185765-expired-doxycycline-toxicity-fact-fiction.html

but your mileage may vary.

mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 1522
   Posted 4/2/2018 12:22 PM (GMT -6)   
- vitamin D
www.cam.ac.uk/research/news/vitamin-d-could-repair-nerve-damage-in-multiple-sclerosis-study-suggests
- melatonin
/www.ncbi.nlm.nih.gov/pubmed/19682645
- vitamin B12 in hi doses
www.jns-journal.com/article/0022-510X(94)90290-9/abstract
- omega 3
/www.ncbi.nlm.nih.gov/pmc/articles/PMC5651013/

i really make an effort to provide evidence for things i say here, notice i sent studies for each claim. so these are not my personal opinions. I also think it is really hard to notice yourself what and how is repairing your nerves. my point is, we need the science for subtle things such as nerve repair, which take months ...

Psilociraptor
Veteran Member


Date Joined Jul 2016
Total Posts : 1228
   Posted 4/2/2018 4:43 PM (GMT -6)   
I can say red sage didn't do anything for me though I only tried one brand. Cat's Claw helps, but not my neuro. Knotweed has been the most effective overall supplement for me. It keeps my neuro symptoms from being out of control but it doesn't seem like it quite goes there in large amounts to finish it off. I get massive herxes in my joints and muscles followed by almost total remission. But my peripheral neuropathy has kind of lingered. Sida and cryptolepis gave me massive neuroherxes but it seems like the disease went dormant because they stopped causing herxes even at 4 times the dose and i never improved (and this darn thing is far from dead). Ashwagandha hasn't done anything for me either. Neither has Gou Teng. I tried lions mane a long time ago with no luck, but that was before I knew it was Lyme. Without treating the cause I'm not surprised that it didn't help.

So that's mostly what i've tried. In my personal experience the only thing that has helped my disease even a little is antibacterials. No antiinflammatories or neuroprotective herbs or whatever have done anything. The antibacterials work very well for me and all symptoms appear to resolve after a little die off. But I haven't yet found many that appear active in the nervous system. St. Johns Wort is supposedly antibacterial and used for neurological diseases and also helps regrow nerves. Hoffman considers it a "moderate" antibacterial so i don't know how much it extends to Lyme. I may try it down the road. But in the world of herbalism that is another staple nerve supplement.

Wish I had more answers. This is one i've been trying to figure out for a while as it is the only symptom that won't abate. And every time I stop treating it's always the first to flare. So I know the little b***** are hiding out there

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4721
   Posted 4/3/2018 11:02 PM (GMT -6)   
i have eaten kilos of royal jelly for acetycholine, burning and numbness gone (must treat bart adequately !) , prp and stems are here, collogen is in powdered beef and i use pork rinds ...lol

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4880
   Posted 5/21/2018 11:18 AM (GMT -6)   
Girlie- did you try Lions Mane?
Had initial lyme symptoms late 80's, then again and with bullseye early 90's. Ended ABX for Lyme in Jan 2016. Rebuilding / fine tuning / fixing muscles since then; member "10 Percenters Lyme Club". What an adventure this has been. Hashimotos adds to the enjoyment.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 5/21/2018 11:28 AM (GMT -6)   
astroman said...
Girlie- did you try Lions Mane?


Nope - I didn't.

At the time I was taking all the herbs...including the GC and Kudzu for symptoms - none seemed to be helping me...so I just stopped taking them...


I'm waiting for the new drug to come out...I may be almost dead by then...tho
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4721
   Posted 5/21/2018 6:26 PM (GMT -6)   
royal jelly has crazy amounts of acetylcholine ...ive eaten kilos and its helped a lot ...phoshytadylecholine via iv with loads of efa fish oil and mcts etc has helped with mass amounts of biotin ...
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