Update: Ammonia, Shakiness, Sleep, forum help

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BDRoland
Regular Member


Date Joined Mar 2018
Total Posts : 22
   Posted 4/1/2018 7:01 PM (GMT -6)   
Hey all. Just wanted to provide an update and ask for any suggestions.

1. Using the forum - all moderators out there. Think we could get some helpful options - like mainly an easy way to "See my post" or "show post I've participated in". It didn't allow me to comment on the founders 'using the forum' post. I know that you can subscribe to email notifications > but I would rather not add to inbox overload, and searching for ones own username isn't the best. Anyhoo.

2. Ammonia - I know my wife went thru crazy pains a few weeks ago - cramps, sharp pains, etc in her chest and stomach. Those severe ones have subsided, but we are still going after Ammonia. Thru some muscle testing (not bulletproof i know), we think/hope/pray the ammonia has cleared from her brain. She did an ionic foot bath (hotly debated effectiveness), and I'm going to have the used detox water tested to see if any ammonia comes out by that means.

3. She specifically wanted me to ask for y'alls opinions on muscle shakiness and cramping. It's like an internal thing, not visibly shaking. She just feels shaky on the inside with cramping. (Coupled with anxiety hard for her to effectively relax). The shaky sensation sometimes comes with the feeling that her body is racing - like a cortisol, adrenal, thyroid racing (but its not). Not severe like before, but not fun. She wanted to know if anyone had similar experiences and anything to help stop them (you know the silver bullet - to take away all pain!).
- she's doing Epsom salt baths, taking magnesium and electrolytes.

4. Sleep - I read some older posts (like 2000 era) and someone had commented that when their sleep degrades their nerves rebel and that get shaky- anyone else have a similar experience? I say that because this past week her sleep has not been good (the blasted full moon did not help!!)
Any tips for Sleep? She is doing melatonin (9 mg before bed), and magnesium doesn't seem to help her sleep. I feel like the full moon threw off her sleep cycle.

I purchased and read Buhner's Healing Lyme in it's entirety > that man seems like a genius. She has started on Jap. Knotweed and Cat's Claw we are looking to add some other herbs he mentions that hit on a plethora of things (ROCKY MNT, anxiety, palpitations, Lyme, immune modulators). Those would be = Red Sage (he says critical for RMSF which she has), Skullcap and Angelica tincture.

**I'll post her bloodwork when we get results back this week.

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2122
   Posted 4/1/2018 7:11 PM (GMT -6)   
Ashwagandha before bedtime may help with sleep , and adrenals.

Check for contradictions and side effects as I am not an medical expert.

PDXtransplant
Regular Member


Date Joined Jun 2017
Total Posts : 207
   Posted 4/1/2018 7:58 PM (GMT -6)   
I am on Low Dose Naltrexone for pain/muscle weakness. This has also helped with sleep.

I also take a 1:1 CBD/THC tincture just before bedtime and this works for sleep as well. it's legal in my state, so I don't need a medical marijuana license.

For the muscle issues, my most recent treatment has seemed to help but not sure what specifically. i'm taking cell salts, LDA trace minerals (however, I don't think it's these two that have relieved my muscle issues) MC Bab2, isatis, licorice, eleuthero, japanese knotweed, CSA, chinese skullcap and hawthorne.

I took a break from the tinctures for a week while on spring break and my muscle issues returned. I started taking the tinctures again yesterday and my muscle issues have diminished though haven't gone away entirely.

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4880
   Posted 4/1/2018 8:05 PM (GMT -6)   
Yes, this forum (all of it not just lyme) is hard to keep tract of your posts and participation's. The lyme part is the only active area of this whole big site. The owner has been very slow to make improvements and its kind of on cruise control with no driver. Been this way the last two years.

In my case, elevated night time adrenal/cortisol was partially causing the insomnia. And then, I would get more shaky with less sleep- there is a connection.

I took and still do, holy basil to lower cortisol and anxiety before bed and AM rising. My 24 hr saliva adrenal /cortisol test showed these levels. Holy basil will also lower glucse a little, so you need to know your glocose health levels. I have my own diabetes blood tester tester. I also took benadryl or ibuprofen PM to sleep. To fix AM grogginess I took cohline. (Benadryl is a acetyl-cohline receptor inhibitor, that is how it works to sleep.)

I also took Rx propranerolo for shaky hands to stay employed. Its a double use drug- BP med and anti- tremor med. With high cortisol, my BP was also a little elevated.

For my remaining muscle aches, I just started cissus capsules. It helps muscles and tendons rejuvenation, but not nerves. Great Amazon reviews on it.

Post Edited (astroman) : 4/1/2018 8:59:24 PM (GMT-6)


The Dude Abides
Veteran Member


Date Joined May 2017
Total Posts : 1130
   Posted 4/1/2018 8:24 PM (GMT -6)   
BDRoland,

1. Forum: One idea is, once you create a post, bookmark the page in a separate folder in your browser's bookmarks folder. You may need to edit the title of each link, in order to make it easier to find and/or sort.

2. Ammonia: The first link is Ammonia-specific. The second link is general information that may be helpful.

/www.google.com/search?q=david+jernigan+ammonia
lymebook.com/david-jernigan-treatment-of-lyme-disease

3. Nothing to offer, regrettably.

4. Sleep: You may wish to try LOW-Dose, Extended-Release melatonin.

/bit.ly/2IWgmVZ ← (search for "wurtman" first, then "hypnopill," to find my two posts on sleep)
/bit.ly/2pIDIpu ← (search for "wurtman" to find my post on sleep)

Like PDXtransplant, Low-Dose Naltrexone also helps me sleep, although it's not a sleep medication, per se.

Best of luck...

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1682
   Posted 4/1/2018 8:26 PM (GMT -6)   
#3 - I had this pretty bad when my symptoms first started 8.5 years ago. I told the doctor it felt like I had chills on the inside. There was nothing visible, but it felt like my insides were trembling all the time. I had that revved up feeling, too, along with cardiac symptoms and had some brief insomnia around that time as well. Neither I nor the doctors knew I had Lyme then and no one checked my adrenals or anything like that. These were conventional doctors. They don't know anything about such things. (Makes me wonder what on earth they do learn in medical school!! They seem to know nothing about a human body or how it functions, or what to do when it doesn't function right anymore.) Anyway, those symptoms gradually went away on their own, so I can't say what caused them or what might make them go away.
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