LLMD in Toronto? Ontario? Canada? Willing to travel.

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brittanyrachel
New Member


Date Joined Apr 2018
Total Posts : 6
   Posted 4/2/2018 3:28 PM (GMT -6)   
This is probably an annoyingly common post but I figured I'd give it a shot after spending endless hours on Google, eventually coming up with nothing.

I just received my Igenex results back and went over them with my GP.. She's fantastic and very open-minded but I obviously would like to go over said results with a LLMD. I did test positive on both the Western Blot IgM and ImmunoBlot IgM but tested negative on the IgG tests. Not entirely sure what that means and would really like to get the ball rolling as I have been sick for almost two years with my life having been turned entirely upside down...

Any help would be so greatly appreciated!

Thanks in advance. smile

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33957
   Posted 4/2/2018 3:49 PM (GMT -6)   
Hi brittanyrachel - welcome!

It’s common to have a longstanding infection to be positive on IgM - unlike most diseases that convert to IgG after weeks - Lyme can remain IgM positive.
One thought is it represents a continuing reactivation.
You do have Lyme disease - with those test results backing up symptoms.

I used to see a LLND in BC (I’m in bc) and he does treat people across the country.
After an initial in person consult - he will do phone appts.
After plateauing with treating Lyme and Bart for about three years I decided to fly to a LLMD in Washington DC

There are several llnds in bc who can prescribe abx.

I know there are a few llnds in Ontario who treat herbally

There is a LLMD in Plattsburgh that many Eastern Canadians see.

Feel free to email me if you’d like more information.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

sandyfeet
Regular Member


Date Joined Mar 2018
Total Posts : 386
   Posted 4/2/2018 5:01 PM (GMT -6)   
I am aware of at least one LLND in Toronto and I know of a couple LLNDs in Ottawa - one who prefers BeyondBalance products and one who, while not LL, has worked with people following Buhner's protocol.

Hopefully Girlie has the contact info for the LLND in Toronto but I could find out if you decide to go that route.

Good luck!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33957
   Posted 4/2/2018 6:10 PM (GMT -6)   
I think the ones I have listed are in Richmond Hill, Ottawa, and Uxebridge.

I also have a LLMD listed that used to practice in Toronto...but I was told he's not seeing lyme patients anymore...but it may be worth a call to his office.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

sickofbeingsick00
New Member


Date Joined Oct 2017
Total Posts : 18
   Posted 4/2/2018 6:26 PM (GMT -6)   
You have an MD who is supportive and helpful? Mine shrugged off a bull's eye rash and didn't think we even lived in an are with ticks.

I currently see an LLND in Kitchener (for about 6 months) and treating with herbal product called Tick Attack (similar to Buhner's). I did get an extensive list of LLND's and LLMD's in the US (and maybe some out in BC) from Lyme Ontario. They were very helpful.
If you want the list I can see if I can find it and pass it on.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33957
   Posted 4/2/2018 6:33 PM (GMT -6)   
I am also lucky to have a supportive GP. She said (after I had been treating for over 3 years) she thought it was a good idea when I said I was going to see the LLMD (also an infectious disease Dr.) in the U.S.

She gave me lab reqs for liver/kidney function tests and Hematology throughout my treatment.


Ontario docs should be lyme aware..that's nuts
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Shocker35
New Member


Date Joined Jul 2016
Total Posts : 3
   Posted 4/2/2018 7:45 PM (GMT -6)   
Hello,

If you enable e-mail I can send you a private message. I am in the Toronto and have been to see the LLND in Richmond Hill and the one in Uxbridge. I am currently receiving treatment so I may be able to help you out with touching base with them.

brittanyrachel
New Member


Date Joined Apr 2018
Total Posts : 6
   Posted 4/2/2018 7:49 PM (GMT -6)   
Thanks to all for the quick replies! I didn't anticipate getting any replies that quickly - or at all.

I did see that there is an LLND in Uxbridge. Initially, I was a little hesitant of LLND's as I have gone to a ND before for unrelated things and wasn't completely sold. Now seeing all of the recommendations.. that seems to be a popular route. I was unsure that they would prescribe antibiotics but I'm glad that at least some of them do!

Do you prefer LLMD to LLND? I'm assuming both have pros and cons.

sickofbeingsick - Yeah, I know I'm definitely fortunate to have an MD who is super supportive. I'm on my second GP since becoming sick though.. Been to quite a few specialists to rule other things out such as MS/Lupus/Inner Ear Disorders. Didn't test positive for Lyme on the ELISA so when I asked her if I should try Igenex after ruling other issues out, she didn't hesitate at all. Only problem now is that wasn't quite sure how to interpret the results.

Thanks again for all of the help!

brittanyrachel
New Member


Date Joined Apr 2018
Total Posts : 6
   Posted 4/2/2018 7:55 PM (GMT -6)   
Enabled e-mail so feel free to send me any information about any LLMD's or LLND's. Thank you all so much for your help. smile

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33957
   Posted 4/2/2018 8:05 PM (GMT -6)   
brittanyrachel said...
Thanks to all for the quick replies! I didn't anticipate getting any replies that quickly - or at all.

I did see that there is an LLND in Uxbridge. Initially, I was a little hesitant of LLND's as I have gone to a ND before for unrelated things and wasn't completely sold. Now seeing all of the recommendations.. that seems to be a popular route. I was unsure that they would prescribe antibiotics but I'm glad that at least some of them do!

Do you prefer LLMD to LLND? I'm assuming both have pros and cons.

sickofbeingsick - Yeah, I know I'm definitely fortunate to have an MD who is super supportive. I'm on my second GP since becoming sick though.. Been to quite a few specialists to rule other things out such as MS/Lupus/Inner Ear Disorders. Didn't test positive for Lyme on the ELISA so when I asked her if I should try Igenex after ruling other issues out, she didn't hesitate at all. Only problem now is that wasn't quite sure how to interpret the results.

Thanks again for all of the help!


LLND ‘S in Ontario can’t prescribe antibiotics - but in BC they can.

I prefer a LLMD or LLND that prescribed antibiotics.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

brittanyrachel
New Member


Date Joined Apr 2018
Total Posts : 6
   Posted 4/2/2018 8:20 PM (GMT -6)   
Girlie said...

LLND ‘S in Ontario can’t prescribe antibiotics - but in BC they can.

I prefer a LLMD or LLND that prescribed antibiotics.


Ohhh, right you did say that in BC they can. I would probably prefer LLMD.. I'm just scared of the costs that will incur with going to the US. I'm hoping OHIP will cover costs of treatment despite not testing positive on the ELISA. I've definitely been reading too many horror stories. :S

Thanks again!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33957
   Posted 4/2/2018 9:54 PM (GMT -6)   
brittanyrachel said...
Girlie said...

LLND ‘S in Ontario can’t prescribe antibiotics - but in BC they can.

I prefer a LLMD or LLND that prescribed antibiotics.


Ohhh, right you did say that in BC they can. I would probably prefer LLMD.. I'm just scared of the costs that will incur with going to the US. I'm hoping OHIP will cover costs of treatment despite not testing positive on the ELISA. I've definitely been reading too many horror stories. :S

Thanks again!


If you send me an email I can give you costs incurred going to BC vs going to the LLMD in the US that I go to now.
Both will involve travelling, but they both also do some phone appts.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

brittanyrachel
New Member


Date Joined Apr 2018
Total Posts : 6
   Posted 4/3/2018 11:29 AM (GMT -6)   
Thanks again Girlie. Sent you a quick e-mail. smile

Also, I forgot to ask a huge question! Can GP's treat Lyme? I've read that in Ontario that they could possibly lose their license for treating Lyme with multiple rounds of antibiotics if you did not test positive on the ELISA test. My GP has suggested treating me. Should I start treatment with her in the meantime before I'm able to connect with an LLMD/LLND? She has been amazing and I would never want her to jeopardize anything in order to treat me.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33957
   Posted 4/3/2018 11:46 AM (GMT -6)   
brittanyrachel said...
Thanks again Girlie. Sent you a quick e-mail. smile

Also, I forgot to ask a huge question! Can GP's treat Lyme? I've read that in Ontario that they could possibly lose their license for treating Lyme with multiple rounds of antibiotics if you did not test positive on the ELISA test. My GP has suggested treating me. Should I start treatment with her in the meantime before I'm able to connect with an LLMD/LLND? She has been amazing and I would never want her to jeopardize anything in order to treat me.


She could probably treat you for a few weeks - but with a chronic infection that really won’t help you.

And.. I doubt she’d be knowledgeable to treat with correct dosage and combinations of abx.

I haven’t checked my forum emails yet this morning - but will get to them a little later - gotta do my exercise and epsom bath now.
I’m in BC - three hours earlier here..
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

brittanyrachel
New Member


Date Joined Apr 2018
Total Posts : 6
   Posted 4/3/2018 12:36 PM (GMT -6)   
Girlie said...


She could probably treat you for a few weeks - but with a chronic infection that really won’t help you.

And.. I doubt she’d be knowledgeable to treat with correct dosage and combinations of abx.

I haven’t checked my forum emails yet this morning - but will get to them a little later - gotta do my exercise and epsom bath now.
I’m in BC - three hours earlier here..


No worries and no rush!

Yeah, she had offered to start me on doxycycline but I wanted to do some research.. Also I was a bit confused as she wasn't entirely sure that I do have Lyme due to the results.
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