Basic tests to rule out lyme

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randlej
New Member


Date Joined Apr 2018
Total Posts : 3
   Posted 4/3/2018 11:05 AM (GMT -6)   
Hello,
Hoping for some insight to help my GP along with test selection. What are the basic tests recommended to rule out lyme? Thank you. This would be for suspected long term (childhood contracted) Lyme. Not recent.

Thank you.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33939
   Posted 4/3/2018 11:17 AM (GMT -6)   
Some things to check (depends on symptoms somewhat) here’s some of what I had checked:

Autoimmune diseases (although Lyme could be causing them)

Adrenals

Thyroid

Vitamin deficiencies - eg b12, vit d

Sleep apnea

Brain/spine (mris)

Hormones - estrogen, progest, testosterone

CBC, liver and kidney function tests
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 2040
   Posted 4/3/2018 11:36 AM (GMT -6)   
All the tests Girlie mentioned would be good to get, but they will not rule out Lyme. Lyme can affect all those things, which is why they should be tested if you suspect Lyme.

IMO, ruling OUT Lyme is not reliable. Your doctor needs to look for clues that can help make a clinical diagnosis of long term Lyme and coinfections.

These should be done:

Lyme Western Blot showing all the bands

CD-57 (low CD-57 can be caused by Lyme)

Antibody tests for other tick-born diseases:
babesia, bartonella, ehrlichia, anaplasma, Rocky Mt. Spotted Fever
(any antibodies at all would indicate either a past exposure or chronic infection and should not be ignored but should be included as evidence of potential chronic infections)

Antibody tests for other bacteria and viruses commonly reactivated in those with Lyme:
mycoplasma pneumonia, chlamydia pneumonia, EBV, cytomegalovirus, various herpes viruses
(unusually high IGG titers as well as positive IGM titers indicates they are activating an immune response and are a drain on your immune system; be aware that symptoms of chronic infection may not be the same as acute infection; doctors tend to know little or nothing about chronic infections)

randlej
New Member


Date Joined Apr 2018
Total Posts : 3
   Posted 4/3/2018 11:50 AM (GMT -6)   
thank you for the advice.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33939
   Posted 4/3/2018 11:55 AM (GMT -6)   
Agree with WBF - they don’t definitely rule out Lyme... but sometimes if we have certain symptoms eg. say you have only fatigue issue and have trouble concentrating - and blood testing shows anemia - and you realize that you’ve been having heavy periods - you supplement with iron and symptoms subside - then it’s most likely not Lyme.


Dr H says ruling out the differential diagnoses should be done in a timely manner though.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33939
   Posted 4/3/2018 12:00 PM (GMT -6)   
Re - Lyme testing - you can just start with the Igenex WB for $250 and see what it shows.

The new Igenex tests look to be good - Immunoblot and IGXSpot
They would be instead of the Lyme WB
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

randlej
New Member


Date Joined Apr 2018
Total Posts : 3
   Posted 4/3/2018 5:19 PM (GMT -6)   
very helpful thank you
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