My doctor did some tests on me related to histamine and mast cells. I have the results, but it didn't appear to be an issue as far as I could tell. I won't know for sure until I see the doctor on Friday. If I find out I do have an issue, I'll let you know.
Hope you can get some good help and relief in this area. I was on Dr. M.'s website the other day and saw their clinic now has a dedicated treatment for MCAS patients.
I do have a lot of sensitivities - mainly to mold and chemicals. Fragrance is the worst for me.
Has Dr. M ever mentioned anything about Bartonella specifically causing chemical or other sensitivities? I have suspected all along that Bartonella is the main cause of mine, but I suppose there's no way to know for sure. In BetterHealthGuy's notes from one of the Buhner conferences, he noted that Buhner said that bartonella especially can cause chemical sensitivities. When I asked my LLMD about it, she didn't agree with that. She thought mold exposure and parasites caused chemical sensitivities. (I'm not aware that I have a parasite issue. Tests were negative. I did have mold exposure.)
The reason I believe bartonella caused the sensitivities is because I've had signs and symptoms of bartonella since infancy/childhood. I had sensitivity to light, sound, smells, and touch all my life. It was always there but didn't become a problem until my chronic symptoms started in 2009. At that point, I had to go fragrance free, but I still wasn't debilitated by it. When my symptoms got dramatically worse in 2015/2016, that's when the chemical sensitivities became disabling and the mold sensitivities appeared. They still fluctuate in severity and get worse when I'm herxing. If the sensitivities had been caused by mold or parasites, they would not have been present lifelong IMO.
Dr M didn't say much about
bartonella being a specifically bad trigger, just that lyme (an umbrella term for all TBD) can activate mast cells. He was explaining to me that you can have something stimulate your mast cells without having mastocytosis, per se.
I used to have brutal chemical sensitivites in the beginning but i have helped that by living in good environments. As the weather and seasons change, i chase good air and that has kept me out of dire straights for a while