Anyone Feel Terrible on Cholestyramine?

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Mustard Seed
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Date Joined May 2016
Total Posts : 1168
   Posted 4/6/2018 11:45 AM (GMT -6)   
Anyone feel terrible while on Cholestyramine?

It's the only medication I'm on right now, and I'm not sure if that fact that I feel terrible is a coincidence or not.

I was fine for the first 5 or 6 days, but now it seems to really mess with me.
Anyone else?

WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 2047
   Posted 4/6/2018 4:28 PM (GMT -6)   
NOT a coincidence!!! My symptoms got so much worse on it that I thought I was going to die. Started out at 1/4 dose 1x day and worked up over a number of days. I'm sure I increased too much too fast. Quit after 11 days. If I'd known then what I know now, I would have done things much differently.

Speaking from experience, I would recommend doing the following:

- stop completely until you get back to baseline
- start again with TINY doses (1/16 of a dose) four times a day (30 minutes before breakfast, lunch, dinner and at bedtime); eat some fat in your meals
- avoid inflammatory foods like gluten, dairy, sugar
- take anti-inflammatory supplements like high quality fish (not krill) oil, turmeric or curcumin, quercetin or Japanese knotweed, or the best I've used - the very expensive SPM Active by Metagenics
- if that dose is too much, reduce it further or use modified citrus pectin, activated charcoal, zeolite, or some other binder (good to use more than one kind or to alternate them)

Note:
My doc had me start at 1 dose per day and work up to 4x day. This was a bad idea. Once I got to 4x day, I realized I felt some relief from it but it would wear off around 3-4 hours later just before the next dose. I'm guessing that it has a short half life. Cholestyramine is a highly potent binder and will pull all kinds of toxins out of you and cause a lot of pain if you have a lot of toxins and a poor elimination system. Make sure you move your bowels daily by whatever means necessary - magnesium citrate, Vit C, coffee enemas, castor oil packs, etc.

If you have access to a sauna and can tolerate heat, that should help tremendously, or so I'm told. I've never had the opportunity to use one.

Szabo246
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Date Joined Sep 2017
Total Posts : 505
   Posted 4/7/2018 3:02 AM (GMT -6)   
My doc has prescribed me this to help with detoxing I’m just waiting for it to arrive on the post! Scared of taking it if it’s going to make symptoms worse

Loutucky
Regular Member


Date Joined Nov 2014
Total Posts : 434
   Posted 4/7/2018 5:54 AM (GMT -6)   
I tried Cholestyramine at 1/8 tsp for about 4 days. My stomach hurt so bad and I normally move my bowels several times a day and became so constipated. I was drinking water, prune juice, eating Vitamin C and magnesium with no help. I could not tolerate it.

My new doctor prefers cholestyramine but has me on activated charcoal and pectasol-c for the time being. Welchol is another prescription option that isn't as harsh. I may try that eventually.

WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 2047
   Posted 4/7/2018 11:20 AM (GMT -6)   
Another word about Cholestyramine:

The regular prescription is FULL of filler junk, including sugar - only 4 of the 9 grams in a full dose is Cholestyramine!!!!

If you have Candida, sugar issues, or chemical sensitivities, you may react to the junk as much or more as the drug itself. You can get custom compounded pure Cholestyramine from Hopkinton Drug, but I'm told it is quite pricey.

borrelioburgdorferii
Regular Member


Date Joined Feb 2017
Total Posts : 249
   Posted 4/7/2018 11:46 AM (GMT -6)   
For those of us that can't afford the compounded Cholestyramine, it is still worth it for the toxin binding and elimination. I/we may have a rough night, feel extra fatigued, sleep 10 hours and feel like warm garbage after a big dose, but that next day is like 80% symptom free...anyway that's been my experience as one who is learning to manage thru diet and supplements. I take it only once in a while, like now only maybe once a month and I learned you can take lower doses to better manage it and use milder binders like activated charcoal and blue chlorella powder along with it; oh yeah and u can take psyllium and magnesium citrate to move things along.
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Szabo246
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Date Joined Sep 2017
Total Posts : 505
   Posted 4/7/2018 11:52 AM (GMT -6)   
Thanks Borrelio that’s reassuringsmile
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