major panic mode -family doesnt understand

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goshawk
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Date Joined Sep 2016
Total Posts : 2115
   Posted 4/7/2018 3:00 AM (GMT -6)   
Its just unbelievable to me , that after all I have been going through and all the money we have spent in the last year and a half ,that my own adult 29 yr old son and his father don't understand the importance of quick action when bitten by a frickin deer tick.

My son is visiting from Texas and was bitten two days ago at his dad's farm, of course he didn't tell me right away.

This is my worst nightmare,my child has been bitten , he could possibly get Lyme and co. and face the horror that we all struggle with every day.

I have warned my family and friends to no avail.

Many still believe you have to have a bulls eye, many believe that you only have to take doxy if your test is positive. They all think herbals are a joke.... What the f...

Thank God they saved the tick and at least I was allowed to bring it to tick report in Amherst Ma. We will know results Monday .
Thank God at least he listened a bit and will take some atragalus but not nearly enough.

I am going out of my mind......


I blame myself because since he lives far way and is working hard to make it on his own out there, I didn't burden him with my day to day suffering or any of my hospital stays. I didn't want him to worry.

How the heck do we let the world know how bad Lyme and co can be....why the hell don't people get it

sandyfeet
Regular Member


Date Joined Mar 2018
Total Posts : 283
   Posted 4/7/2018 7:22 AM (GMT -6)   
Oh Goshawk! I'm so sorry. I try so hard not to pass my fears on to my family too and it really hurts when things come up that remind me that maybe they don't take everything that I've been through seriously.

I really don't understand why no one seems to get it.

Hoping that the tick test comes back negative. I'll be thinking of you through the long long weekend.
Bulls eye rash August 2013
Started treating with Buhner herbs July 2017
Treating Borellia, Babesia and Bartonella as of November 2017

acarined
Regular Member


Date Joined Jul 2015
Total Posts : 175
   Posted 4/7/2018 8:37 AM (GMT -6)   
You are lucky if denial is the worst of it, some people face outright hostility. He'll probably be fine.

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1682
   Posted 4/7/2018 10:06 AM (GMT -6)   
goshawk,

I'm so sorry. I understand how distressing these circumstances are, and how it hurts when your own family doesn't "get it." As a mother, it's natural not to want your child to suffer from anything, especially when you know full well the horrors that it can bring.

Try to remember that we are all vulnerable to all sorts of things not just ticks. We have to take the precautions we know about and understand and respond to problems if and when they occur from whatever source they come.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32625
   Posted 4/7/2018 11:04 AM (GMT -6)   
goshawk - i'm sorry you have this to worry about.

I also have limited sharing my suffering details with our son...who is on his own now.
He and i have always been very close and I didn't want him to worry about me.

But, i did put a tick removal kit in his xmas stocking...

I keep waiting until I've turned the corner...and am feeling better to share more about how bad it affected me.



Just remember that not all ticks carry lyme disease.

BTW - will he at least listen and get a few weeks of doxycycline?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2115
   Posted 4/7/2018 11:20 AM (GMT -6)   
Thank all of you for the support, I am usually a strong person , I am just hoping for the best now and meanwhile I'm praying that he listened and is at least taking the Astragalus, I have rounded up some doxy in case he changes his mind or the test comes back with anything positive.

I had tick report test for all the co infections too.

People tend to forget or just don't know that there are many co infections and also ticks can be carried during migration on birds from other places. We also have 2 strains of powassin here in Massachusetts.

Take care and thanks for letting me vent about this.

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2438
   Posted 4/12/2018 3:58 PM (GMT -6)   
Oh my, goshawk. I could have written your post!!! I so feel your pain!

My Kid#1 came home with some ticks after going to a park with a friend. He never even told me and had laughed it off. When I found out, I was just stunned. I told him he can't go back to that high tick area and to find something else to do (good grief, plenty of other options). And he was irritated with me and felt like I was overreacting. He will also go through a non-path without thinking about the risks (when the path is right there too). He doesn't get it. And yet - he was terribly sick for many years, so I don't get it how he doesn't get it!?!?!?

My husband wants to take the kids into the woods, which of course I say no to. It's not necessary and not worth the risk to the kids given everything they've gone through. I do 99% of the medical care for the kids, as my husband has been checked out for years. It's just beyond frustrating to me how my own family doesn't get it. I understand the balance of not living in fear, but I also highly respect prevention given our situation.

It's extremely important to me to prevent a bite to prevent worsening or relapse. But my family doesn't understand it at all. I don't understand how they don't get it! But again, I do all of the medical care (as my husband has checked out). I can't imagine throwing all of our progress away for a walk in the park or woods! I know some may disagree with me, and I understand that. But to me at this point with their issues, it is not worth the risk!

I'm so tired.
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2438
   Posted 4/12/2018 4:01 PM (GMT -6)   
So, what were your test results for your son???? And is he not showing any symptoms or issues? (Or would he tell you?)

Definitely hoping it's okay for him!! (And you, too!)

HUGS!
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2115
   Posted 4/12/2018 5:04 PM (GMT -6)   
He was fortunate that the tick had no evidence of feeding(but hopefully tick didnt start to dig in) and also I had tick report run everything they could test for and all came out Negative thankfully.

I told my son he still has to be cautious as there are other things ticks carry. I asked him to watch for symptoms, not only now but in the future also.

He did take astragulas, but no doxy.

He is taking more precautions in the outdoors and with his dog but...

I now realize that so many people are mis- informed about the dangers/risks of ticks and these infections.

It is so difficult sometimes to help or protect the ones you love.

My son and his dad don't get it fully either and they really don't know the extent of how I have suffered.

My fault since I kind of shielded him from most of it since he lives far way.

I am also tired and it feels like I am screaming the warning to people and no one ever hears it.


I just have to add: When my son didn't listen to me last week, I just really wished he was 4 years old again , not 29.

It's so hard to let go at times, I am his mom , the one that has always taken care of him, looked out for him, encouraged him and hoped for the best in life for him...and then in one tiny moment ....a little tiny tick... made me face that I cant protect him anymore.


Thanks for listening and I wish you and your family the best. Hang in there and know your not alone in how you feel about all of this.

Take care, Jo

sandyfeet
Regular Member


Date Joined Mar 2018
Total Posts : 283
   Posted 4/12/2018 5:38 PM (GMT -6)   
Goshawk - I am _so_ relieved to hear this! And also grateful for the reminder to preserve the tick and ask for all tests!

1000Dasies - I get that most people won’t understand the risk until they’ve been there but it’s even harder to understand when family have been there and still don’t. Sigh. I’m thinking the Cassandra feelings are some of the hardest to deal with. I am so grateful to everyone here as I’ve been feeling a similar strain and surprise as well as we prepare for another season of outdoor activities and everyone thinks I’m donning a tinfoil hat. Sigh.
Bulls eye rash August 2013
Started treating with Buhner herbs July 2017
Treating Borellia, Babesia and Bartonella as of November 2017
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