Dapsone & Peripheral neuropathy anyone?

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1234567890
New Member


Date Joined Apr 2018
Total Posts : 16
   Posted 4/9/2018 7:58 AM (GMT -6)   
Hi,

Been browsing these forums for a long time.
Also read the "New to lyme?" part.
It is all very informative.

I have been on dapsone for a while, and suddenly I started getting spasms/cramps in my back.
I read the following :

/www.drugs.com/sfx/dapsone-side-effects.html

Back, leg, or stomach pains

Then it says:

The peripheral neuropathy is reversible upon discontinuation of dapsone.

This is correct, it stopped once I stopped taking Dapsone.

But what now? Could I take dapsone and stick through it? It got pretty bad.

Anyone else dealt with this?

Thanks

acarined
Regular Member


Date Joined Jul 2015
Total Posts : 175
   Posted 4/9/2018 8:34 AM (GMT -6)   
Mononeuritis multiplex. This looks like a symptom that could overlap with the infection and medication side effects, I'd ask your doctor.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32617
   Posted 4/9/2018 11:38 AM (GMT -6)   
Hi 1234567890 - welcome


That's the question. I know so many times I have thought that my reaction could indeed be a side effect of the antibiotic...and then not know whether to discontinue or stay the course.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

1234567890
New Member


Date Joined Apr 2018
Total Posts : 16
   Posted 4/9/2018 12:04 PM (GMT -6)   
Thanks for the responses. I feel like I can't win with this Lyme disease.

I'm scared to do permanent damage with antibiotics, but then not doing antibiotics isn't an option either.

It's infuriating.

mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 1522
   Posted 4/9/2018 2:48 PM (GMT -6)   
1234567890 said...
Thanks for the responses. I feel like I can't win with this Lyme disease.

I'm scared to do permanent damage with antibiotics, but then not doing antibiotics isn't an option either.

It's infuriating.


it is infuriating. it's called "poor treatment options" sad

humans discover lyme spirochete
humans do cheap lab test with doxy
humans see doxy kills spirochete
boring! humans forget about spirochete.
30 years later, millions are sick with the spirochete
humans re-do tests, more careful this time
80% of spirochetes survive doxy
last 30 years humans wasted doing nothing
humans spend 10 more years in denial
humans have no other treatment
humans start washing patients with all the antibiotics they can find in the pharmacy
[-->you are here<--]

1234567890
New Member


Date Joined Apr 2018
Total Posts : 16
   Posted 4/9/2018 3:15 PM (GMT -6)   
mpost I couldn't agree more. Now it's kind of like "we don't know much about it so we just throw every antiobiotic we can find at it"........ oh and "sometimes it works"......... oh and "sometimes it leaves you with permanent damage"

OriolCarol
Veteran Member


Date Joined Dec 2017
Total Posts : 557
   Posted 4/9/2018 4:07 PM (GMT -6)   
Totally agree with mpost... it's frustrating when you don't know what treatment do or if it will work...
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