Are there people out there actually recovered from Lyme dsease?

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Hypatiac
New Member


Date Joined Mar 2018
Total Posts : 16
   Posted 4/9/2018 10:43 AM (GMT -6)   
I am totally broke. Mostly emotionally, I have only been using my antibiotic for 5 weeks and I cannot see any improvemnt. It has been 6 months I was infectec when I cought it, obviously too late. Already I am so worn out. It looks like there is no treatment with Lyme disease, in fact some expercrts even say Lyme disease and MS and other neurological diseases are the same. So... I feel like I am buyng hope each time I buy a herb, I get my antibiotic, I get an appointment with my doctor. All I am wondering is there people out there who recovered from this crapty disease? Who actually got over it, who is way better now? If yes where are they? This information is the only ing that can give me hope. A real hope and power to fight with it.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32667
   Posted 4/9/2018 11:56 AM (GMT -6)   
I'm sorry that you're having a rough time with this.

And, yes people do recover from it.


Here's a thread on some forum members who have gotten better:


/www.healingwell.com/community/default.aspx?f=30&m=3562412


I also know several people in my general location and their stories aren't in that thread.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2122
   Posted 4/9/2018 5:11 PM (GMT -6)   
People do recover I have read their stories and I have met people who have gotten better.

But.....it can take time and for some of us a long time.

I understand how you fell emotionally, these infections can wear you down.

We just have to keep trying to get better and keep moving forward.

I heard someone say "Hope is the best medicine".

Somedays its all we have.

Keep hoping for the best, and keep treating and you will get there.

Take care, Jo

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32667
   Posted 4/9/2018 5:23 PM (GMT -6)   
I live in an area where not many people know about lyme disease (Canadian west coast)

But, I know several people who have healed. One saw the LLND that I used to see...and she treated for 2 1/2 years (if I'm remembering correctly)
She's been well for about 2 years now.

Another lady also saw the same LLND. And she treated for something like 6 or 7 months...and she has been well for about 4 years now.

There are a few more..as well.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Hypatiac
New Member


Date Joined Mar 2018
Total Posts : 16
   Posted 4/9/2018 6:31 PM (GMT -6)   
Girlie said...
I'm sorry that you're having a rough time with this.

And, yes people do recover from it.


Here's a thread on some forum members who have gotten better:


/www.healingwell.com/community/default.aspx?f=30&m=3562412


I also know several people in my general location and their stories aren't in that thread.


Thank you very much Girlie, maybe because I am still in the stage of accepting it, I talked nonsense there and maybe even brought some negativity here. I regret for both writing it and drinking lots of wine meanwhile and breaking my very strict diet... But like you say, there are people out there recovers and none of them is by chance I guess. It requires time and dedication. It is a different kind of challenge for each one of of us. I do hope the best for all of us, even communicating here and exchanging knowledge is awesome. I guess people who had lyme 15 years ago they were not as lucky as we are now. Thanks again for your response, it did help.

Hypatiac
New Member


Date Joined Mar 2018
Total Posts : 16
   Posted 4/9/2018 6:37 PM (GMT -6)   
goshawk said...
People do recover I have read their stories and I have met people who have gotten better.

But.....it can take time and for some of us a long time.

I understand how you fell emotionally, these infections can wear you down.

We just have to keep trying to get better and keep moving forward.

I heard someone say "Hope is the best medicine".

Somedays its all we have.

Keep hoping for the best, and keep treating and you will get there.

Take care, Jo

Jo thank your very much for your kind and understanding response, I totally agree with you when I am calm now. I will do my best to beat these little creatures. Try to boost my health in every possible way mentally and physically, and most of all I will try not to bring any negativity here. I wish the best for all of us.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32667
   Posted 4/9/2018 7:23 PM (GMT -6)   
Hypatiac said...
Girlie said...
I'm sorry that you're having a rough time with this.

And, yes people do recover from it.


Here's a thread on some forum members who have gotten better:


/www.healingwell.com/community/default.aspx?f=30&m=3562412


I also know several people in my general location and their stories aren't in that thread.


Thank you very much Girlie, maybe because I am still in the stage of accepting it, I talked nonsense there and maybe even brought some negativity here. I regret for both writing it and drinking lots of wine meanwhile and breaking my very strict diet... But like you say, there are people out there recovers and none of them is by chance I guess. It requires time and dedication. It is a different kind of challenge for each one of of us. I do hope the best for all of us, even communicating here and exchanging knowledge is awesome. I guess people who had lyme 15 years ago they were not as lucky as we are now. Thanks again for your response, it did help.


No worries - this forum is great for support when we’re feeling overwhelmed by this nasty disease.

Just dig in for a fight and don’t give up
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Wisco woman
Regular Member


Date Joined Oct 2017
Total Posts : 66
   Posted 4/10/2018 1:04 AM (GMT -6)   
I'm not going to lie it's been a long painful journey ( that I'm still on) but I'm feeling much better than when I was first diagnosed. I am on month 15 of antibiotics if that says anything. This disease is horrendous but there is hope. As difficult as it may be you just have to ride the storm out. You got us any time you need help.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 4/10/2018 11:03 AM (GMT -6)   
Well, most of the healed people have moved on and are living their lives again. I am a person that is in remission or healed. I healed with herbs. My husband is healed and he healed with herbs also. I did Beyond Balance and Buhners. I really relied on a moderator of this forum (she no longer posts here and has moved on with her life), my common sense, intuition, a heck of a lot of positiveness and my faith.

There is no ONE way to cure lyme. It is a heck of a lot of trial and error. There is no timeline for curing lyme either. It will take as long as it takes.

I got a plan and I stuck with it. It was not fun. It was restrictive in many ways, but I wanted to be well more than I wanted carbs, wine, sport activities, etc. Every time I did something I should not, it put me back a few days. I had to be consistent.

I quit watching the news and only did positive, happy movies. It was depressing enough being sick.

Now, it is hard for me to come here because it breaks my heart to see so many hurting. It is ridiculous that so many must hurt in this day and age and there is no consistent treatment YET. -- there's my hope for everyone.

My lyme is not gone. My lyme is managed or in remission. I know that if I overdo things, I still will pay for it.

I hope this is helpful. My wish is that this forum gets less and less people. I hope awareness is brought to people so more do not have to suffer.

I think of my husband. No bite, no bull's eye. If I had not gotten lyme before him and got a blood diagnosis, we would have been to doctor after doctor trying to treat his tinnitus and aches and pains. I know there are still people out there that haven't a clue that they have lyme. They are just suffering and that makes me sad.

Healing hugs to all and I'll pop in once in awhile. I have an ailing Mom that I am spending a lot of time with now.

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4724
   Posted 4/11/2018 1:03 AM (GMT -6)   
im 85% the person i was

Missouri
Regular Member


Date Joined Sep 2017
Total Posts : 337
   Posted 4/11/2018 7:52 AM (GMT -6)   
I am pretty close to recovered I think. I have been off antibiotics for almost 3 weeks now, and my symptoms haven't started creeping back. Knock on wood.

People do get better

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32667
   Posted 4/11/2018 12:14 PM (GMT -6)   
Missouri - that's great!


You should do a remission post in a couple months so I can add it to our Success Stories thread.


Yay!!! This is such good news!
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

sandyfeet
Regular Member


Date Joined Mar 2018
Total Posts : 285
   Posted 4/11/2018 4:09 PM (GMT -6)   
So happy to hear this Missouri. Looking forward to reading a remission post. smile

85% sounds pretty wonderful too bluelyme.
Bulls eye rash August 2013
Started treating with Buhner herbs July 2017
Treating Borellia, Babesia and Bartonella as of November 2017

Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4429
   Posted 4/11/2018 4:24 PM (GMT -6)   
Hi Hypatiac,

I have been healed from chronic lyme for over 12 years so please don't lose hope! When time allows I try to post to help others.

Antibiotics didn't agree with me so the short version of my healing story is I bought Dr. Jernigan's book "Beating Lyme Disease" which has a "healing at home" protocol that I followed. It wasn't only taking his remedies but I incorporated a detox routine (detox baths, dry skin brushing, etc.), changed my diet, addressed my stress levels. There is more but that's the short version.

Thus I didn't see any doctors but self-treated with the help of the above mentioned book and that worked for me. I am also an avid researcher (always was and always will be).

That said, for the past couple of years to present I am a full time caregiver for my elderly Mom who has Alzheimer's so I'm a busy girl!

As Peteza said what works for one person doesn't mean it will work for everyone.

Hang in there okay?
Denise
12 years well ~ used Dr. Jernigan's protocol from his book about Biological Medicine (used Borrelogen, Microbojen and Neuro-Antitox).

I still detox even though healed and drink Green Vibrance. I come back to help others for others helped me when I was sick. Pay it forward! smile

http://javuviews.wordpress.com/2013/04/24/how-i-became-better-from-chronic-lyme

NW_Lyme_Guy
Regular Member


Date Joined Jul 2017
Total Posts : 33
   Posted 4/13/2018 1:04 AM (GMT -6)   
Yes, they're out there. Probably not on these boards though.i can only share from my own story, but I've been in treatment for almost three years. I started slowly and gradually built up. It was two years before i even had my 1st course of abx i dont know if ive recovered, but if it weren't from the ptsd due to the 2years of panic and Neuro symptoms, I'd probably say I was indeed recovered. It takes time and from what I understand you have to be patiently consistent with these buggers, so hang in there, you'll get better!

What?Lyme?Me?
New Member


Date Joined Apr 2018
Total Posts : 2
   Posted 4/13/2018 7:37 AM (GMT -6)   
I hope there are people out there that have been cured. I was diagnosed last night because I had a rash on my back that was a bit odd. I was immediately put on antibiotics which I'm not happy about. I just retired, I just hit the road to travel for the next 3 to 5 years. Now what is going to happen? I have no other symptoms other than the rash so my hope is this medication will rid me of the disease. My doctor did not do lab work because he felt the rash was significant enough for diagnosis. I wish all the best to each of you.

Amy K
New Member


Date Joined Apr 2018
Total Posts : 7
   Posted 4/13/2018 8:15 AM (GMT -6)   
I was just diagnosed with Lyme yesterday and need some advice. I am going to see an ID specialist next week but am hearing I need a Lyme Literate Dr?? Where do I find this info?? Please help... I am overwhelmed and scared. Started my doxy yesterday... In northern VA

Missouri
Regular Member


Date Joined Sep 2017
Total Posts : 337
   Posted 4/13/2018 8:33 AM (GMT -6)   
Sorry you are dealing with Lyme. Yes most likely you will need to see a Lyme Literate Dr to get the best chance of full recovery. Unfortunately, most ID docs will do 28 days of Doxycycline and declare you "cured" and dismiss you; even if your symptoms are progressing.

Some people are lucky and a few weeks of Doxy does knock the infection(s) into remission.

Not sure on the LLMDs in VA.

Girlie- Any recommendations?

multifacetedme
Veteran Member


Date Joined Jan 2016
Total Posts : 1586
   Posted 4/13/2018 11:50 AM (GMT -6)   
I was 95% symptom free and back to living life fully, and stress and not being diligent with my nutrition caused a relapse. It took around 1 1/2 years to get my health back and busted my savings. I think once you get it, it is something you have the rest of your life in that I don't think it is possible to get it all out of the system given the bacteria's adaptability.

I now have no savings, so, recovery will be a different sort of journey this time around.

Good nutrition
Core anti-bacterials
Detox
Watch my stress
Therapy for support
What tests I can get done covered by my insurance
In December of 2015. I thought I was dying. I began to research symptoms and began considering lyme in January of 2016 and the Horowitz Questionnaire convinced me to take immediate right action: changed diet, used Buhner recommended herbs, followed advice here. Today I feel GREAT and although I have some remaining symptoms, my health is basically back.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32667
   Posted 4/13/2018 12:00 PM (GMT -6)   
What?Lyme?Me? said...
I hope there are people out there that have been cured. I was diagnosed last night because I had a rash on my back that was a bit odd. I was immediately put on antibiotics which I'm not happy about. I just retired, I just hit the road to travel for the next 3 to 5 years. Now what is going to happen? I have no other symptoms other than the rash so my hope is this medication will rid me of the disease. My doctor did not do lab work because he felt the rash was significant enough for diagnosis. I wish all the best to each of you.


I hope you see this.

You need to be on antibiotics for a minimum of 6 weeks if all you have is the EM rash.

If you're taking doxy, it should be 200 mg twice daily.
You are fortunate - you caught it early - if it's just the rash you have...and your Dr. is correct - the rash is enough to diagnose.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32667
   Posted 4/13/2018 12:02 PM (GMT -6)   
Amy K said...
I was just diagnosed with Lyme yesterday and need some advice. I am going to see an ID specialist next week but am hearing I need a Lyme Literate Dr?? Where do I find this info?? Please help... I am overwhelmed and scared. Started my doxy yesterday... In northern VA



Welcome, Amy!

You can send me an email - and I'll check my list and send you some names/contact info.

Also, to get recommendations from members: Start a new thread: "Looking for LLMD in North VA"

Yes, you will want to be treated by a Lyme Literate Dr.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

What?Lyme?Me?
New Member


Date Joined Apr 2018
Total Posts : 2
   Posted 4/13/2018 1:42 PM (GMT -6)   
Girlie, how do you convenience the doctor to up my meds and extend treatment? All my medical care is at the VA Hospital as a Disabled Veteran.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32667
   Posted 4/13/2018 2:25 PM (GMT -6)   
What?Lyme?Me? said...
Girlie, how do you convenience the doctor to up my meds and extend treatment? All my medical care is at the VA Hospital as a Disabled Veteran.


What were you given...and what dosage? How long is your treatment?


Can you go to another Dr. outside of the VA Hospital - is that possible? (Sorry, I'm Canadian so I don't know how your system works for Veterans.)
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

The Dude Abides
Veteran Member


Date Joined May 2017
Total Posts : 1130
   Posted 4/13/2018 3:00 PM (GMT -6)   
What?Lyme?Me? said...
Girlie, how do you convenience the doctor to up my meds and extend treatment? All my medical care is at the VA Hospital as a Disabled Veteran.


Perhaps ask your doctor to review the International Lyme and Associated Disease Society (ILADS) website:

www.ilads.org

And, the ILADS Treatment Guidelines

www.ilads.org/lyme/treatment-guideline.php

It would probably be more likely that a doctor would listen to another doctor, versus listening to a patient.

Welcome to the forum, friend. As a fellow Veteran, I sincerely appreciate your Military service.
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