Anyone seen SS in NJ?

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cppoly
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Date Joined Nov 2013
Total Posts : 345
   Posted 4/10/2018 11:17 AM (GMT -6)   
Any feedback would be appreciated.

Thanks

flowergal
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Date Joined Sep 2011
Total Posts : 457
   Posted 4/10/2018 1:06 PM (GMT -6)   
In Howell NJ?

Yes for several years. Integrative MD uses ABX and herbal protocols and supplements.
Late Lyme, few tick bites. Treatment July 2011, Doxy 9 days, Amoxc a month, cipro/zithromax 3 mnths, Mepron/zithromax, Doxy and Mepron, Tindamax & Sulfamethoxazole, A Babs. Currently on Abart 2014-2017 no abx. Reinfected July 2017 Bactrim/Doxy 9/12/2017 and A Bart. Down the rabbit hole again sad

cppoly
Regular Member


Date Joined Nov 2013
Total Posts : 345
   Posted 4/10/2018 1:32 PM (GMT -6)   
Yes Howell NJ. Ok great. Do you know what herbal protocol he uses? Do you recommend him?

physedgirl09
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Date Joined May 2017
Total Posts : 399
   Posted 4/10/2018 3:17 PM (GMT -6)   
I saw him for the past 10 months...just a warning, he doesn't speak very much and barely explains anything...it's like pulling teeth to get him to talk...nice guy tho....
I've since fired him and am going to the jemsek clinic in Washington dc on Friday...
He uses Byron white formulas

Who have you been seeing? Or have you not treated yet?
Symptoms since July 2016. Very mild: slight dizziness but nothing to call the doctor about.
February 2017=flu like symptoms; felt like i was dying from February to June. Tested positive for active EBV.
June 2017= tested western blot: reactive lgm 23 lgg 41 & 66
Started ABX treatment in June to present with llmd
functioning at about 70%. determined to get to 100%

ltc1225
New Member


Date Joined Dec 2017
Total Posts : 19
   Posted 4/10/2018 4:04 PM (GMT -6)   
Ive been going to SS since January he uses abx and detoxing methods, you just have to ask the questions you want answered because he's a quiet person, but he will be happy to help you with any questions you have.

i haven't seen much improvement after 3 1/2 months but still going with him

springsjean
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Date Joined Mar 2009
Total Posts : 2164
   Posted 4/10/2018 6:07 PM (GMT -6)   
No bedside manner AT ALL. I need to be able to communicate w my dr.
Prior moderator
Lyme, HME, HGE, bartonella. 4+ years undiag. despite 10 drs.
Current meds: neurontin, cymbalta, Prior meds: bactrim, doryx, amantadine, amox, minocycline, tetracy, roxithyromycin. IV refused by ins. Supplements: boluoke, alpha lipoic acid, AG immune, magnesium, milk thistle, resistant microbes, cats claw
FEELING GREAT THESE DAYS! Hang in there - it does get better.

physedgirl09
Regular Member


Date Joined May 2017
Total Posts : 399
   Posted 4/11/2018 5:27 AM (GMT -6)   
agree with springsjean 100%
Symptoms since July 2016. Very mild: slight dizziness but nothing to call the doctor about.
February 2017=flu like symptoms; felt like i was dying from February to June. Tested positive for active EBV.
June 2017= tested western blot: reactive lgm 23 lgg 41 & 66
Started ABX treatment in June to present with llmd
functioning at about 70%. determined to get to 100%

cppoly
Regular Member


Date Joined Nov 2013
Total Posts : 345
   Posted 4/11/2018 6:47 AM (GMT -6)   
Tough call... Ugh. I used Byron white formulas too without any success so if that's what he uses I feel like it might be a wasted trip. And I do want someone who is a communicator. Not sure what to do.

Dr. J in DC seems like the better choice???

I've seen two other LLMDs and spent over $10,000 with my last one so I'm looking for one LLMD to once and for all conclude/put to rest what I have or don't have.

physedgirl09
Regular Member


Date Joined May 2017
Total Posts : 399
   Posted 4/11/2018 9:10 AM (GMT -6)   
well Dr, J is well known so thats why im going to give him at try...the drive is 3 and a half hours so im leaving tomorrow after work and staying over so Friday ill be in DC when i wake up... the weather is also supposed to be gorgeous! and honestly his prices arent even bad compared to what other LLMD's charge.

But their are other LLMD's near streit that you can try... where in NJ are you located?
Symptoms since July 2016. Very mild: slight dizziness but nothing to call the doctor about.
February 2017=flu like symptoms; felt like i was dying from February to June. Tested positive for active EBV.
June 2017= tested western blot: reactive lgm 23 lgg 41 & 66
Started ABX treatment in June to present with llmd
functioning at about 70%. determined to get to 100%

cppoly
Regular Member


Date Joined Nov 2013
Total Posts : 345
   Posted 4/11/2018 10:00 AM (GMT -6)   
Well good luck this weekend!

There's no doubt seeing a LLMD is a significant investment. Dr. J 1st consult is $900, plus traveling expense, etc.

Dr. S in NJ is $350 for 1st consult.

I'm just trying to make good use of my money because I can't afford to make costly mistakes with LLMDs anymore.

I'm located in LI.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 4/11/2018 11:01 AM (GMT -6)   
cppoly said...
Well good luck this weekend!

There's no doubt seeing a LLMD is a significant investment. Dr. J 1st consult is $900, plus traveling expense, etc.

Dr. S in NJ is $350 for 1st consult.

I'm just trying to make good use of my money because I can't afford to make costly mistakes with LLMDs anymore.

I'm located in LI.


After initial consult - appts are less $$ (Dr J)

One thing to consider is frequency of appts - after the first follow up with Dr J - the appts are 3-4 months apart so that does cut down on money spent.
I was paying something like $160 for my monthly LLND appts.
Now I will be paying $390 every 3-4 months - so more reasonable
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

flowergal
Regular Member


Date Joined Sep 2011
Total Posts : 457
   Posted 4/11/2018 11:15 AM (GMT -6)   
I was seeing Dr. C in Mt Kisco, top of his field, epidemiologist etc. Talked a lot - had to go monthly....had very little progress after a year. Switched to Dr. S and he did mixed ABX with herbal support and go every other month. Also added acupuncture, sauna, meditation, green mix shakes, B12, D, Magnesium ....am not in remission but am stable for the last few years. No more abx just byron white & ADP. He also is supportive of Cannibis/hemp oil as it does help a lot of people.

I bring a list of questions/symptoms when I have them he is happy to answer and adjust meds. Plus his staff is warm and welcoming not so much with Dr. C but perhaps my own interpretation.

Good luck with your search for wellness.
Late Lyme, few tick bites. Treatment July 2011, Doxy 9 days, Amoxc a month, cipro/zithromax 3 mnths, Mepron/zithromax, Doxy and Mepron, Tindamax & Sulfamethoxazole, A Babs. Currently on Abart 2014-2017 no abx. Reinfected July 2017 Bactrim/Doxy 9/12/2017 and A Bart. Down the rabbit hole again sad
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