New member first time I have ever posted in a forum for any thing Have been sick now for 2mos and need help/ advice/ Was feeling lousy back in November noticed a rash on my chin and behind my ears, felt really tired achy joints and chronic head ache that lasted for a couple weeks then I got the flu. took abx zpac and went back to work in January. OK for about two weeks and then started to get migratory joint, muscle pain headache came back got chest pains . went to ER blood tests all good and later heart doc . did a stress test and no problems there. Heart doc also ran western blot for lyme( I live in a lyme hotspot) and tested negative, but ANA was positive at 1:50 Pain got worse and more symptoms: itchy scalp, hair loss teeth hurt. gas ,indigestion, stomach gut pain. Went to GP test for lyme blood,mets thyroid liver panel. negative for lyme . Blood and mets normal a couple things out of range. All symptoms kept getting worse, convinced GP to start me on 100mgDoxcy for 3 weeks. Went for my cancer scan (yeah I,m a real winner) more blood tests another Lyme test, No cancer(blessing still in remission) blood tests normal a couple out of range including ESR. Saw Rheumatolgist he said nothing is wrong stopped the Abx after 2and half weeks. Some of the symptoms seemed to be going way joint muscle pain not as bad no longer any pain in toes fingers sole and palms. After getting my gut pain gone from abx was feeling the best I had in months . That was3 weeks ago and now all the symptoms are back in full force. Muscle joint pain all over the place (sprained my ankle walking across the kitchen) including toes, fingers , sensitivity to temp, teeth ache itchy scalp hair loss, diarrhea, fatigue ,insomnia, headache. I think despite the negative tests I have lyme. I know lyme tests can give false negatives, any one out there have false negatives? Are there any special blood ?mets test that will help in a diagnosis? What is protocol for abx that I could "suggest" to my GP? I'm going to see a lyme specialist in NY that's really expensive does anyone have any experience with any Massachusetts? . Any advice comments would be really helpful Thanks again
Hi mvlad - welcome to our community.
Many people with lyme do get autoimmune markers show up (ANA is one that we see quite often happen with lyme patients).
I recommend that you get a Lyme test from Igenex. The Lyme WB IgM and IgG is $250.
You improvement on the abx...and then worsening a few weeks after your stopped also could indicate Lyme.
Also you live in an endemic region for lyme.
Yes, people on here have had false negatives.
You can start a new thread: "Looking for LLMD in Massachusetts."
In addition to members recommendations, you can email me and I'll see what I have listed for that State.
Only a LLMD should be seen to rule out Lyme disease.
Please ask any questions you have.