Congress Acts to Improve CDC and NIH Lyme Disease Programs

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goldengoose
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Date Joined Sep 2016
Total Posts : 97
   Posted 4/11/2018 10:36 AM (GMT -6)   
https://www.webwire.com/ViewPressRel.asp?aId=219152

Could this be really good news?

Missouri
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Date Joined Sep 2017
Total Posts : 336
   Posted 4/11/2018 3:12 PM (GMT -6)   
That is a well written letter/paper.

Good post!!!

goshawk
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Date Joined Sep 2016
Total Posts : 2112
   Posted 4/11/2018 3:13 PM (GMT -6)   
I sure hope so, its too bad we ave to wait until December 2018 to hear more from the working group on Lyme.

Thanks for this information and update.

take care

WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 1680
   Posted 4/11/2018 7:11 PM (GMT -6)   
This does sound like good news.

mudshark
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Date Joined Aug 2017
Total Posts : 119
   Posted 4/12/2018 5:24 AM (GMT -6)   
The article was certainly written by those with a comprehensive view of the true state of all things in the lyme world. It pulls no punches and even cites the conflicts of interests that exist on the CDC board with respect to patent ownership for what are proven to be ineffective and unreliable testing methods. Hopefully there is finally going to be some true oversight for the cave-man era medical establishment. Too bad it has to come to something like this.

"These directives also require CDC and NIH to submit detailed reports to help Congress gauge program effectiveness and determine future funding levels. In addition, CDC has been directed to establish performance indicators for Lyme disease and to justify funding disparities between Lyme disease and other less common vector-borne diseases, such as West Nile virus and Zika."

sandyfeet
Regular Member


Date Joined Mar 2018
Total Posts : 282
   Posted 4/12/2018 6:02 AM (GMT -6)   
Wow! That really summed things up! I did not know about the extent of the funding disparity or the conflicts of interest. Deep sigh.
Bulls eye rash August 2013
Started treating with Buhner herbs July 2017
Treating Borellia, Babesia and Bartonella as of November 2017

Octobrsky13
Regular Member


Date Joined Feb 2016
Total Posts : 178
   Posted 4/12/2018 6:57 AM (GMT -6)   
But then there’s this...

https://www.facebook.com/permalink.php?story_fbid=521702184890691&id=100011527417750

Missouri
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Date Joined Sep 2017
Total Posts : 336
   Posted 4/12/2018 7:20 AM (GMT -6)   
yuk. what the heck. I don't understand some of this friendly fire frrom within the Lyme community.

WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 1680
   Posted 4/12/2018 7:42 AM (GMT -6)   


Thank you for posting this, so we all get a true picture of the whole issue. Politics are never straightforward. Glad this Facebook post clarified this. I added the URL so folks can click on the link to read.

Octobrsky13
Regular Member


Date Joined Feb 2016
Total Posts : 178
   Posted 4/12/2018 8:09 AM (GMT -6)   
Missouri said...
yuk. what the heck. I don't understand some of this friendly fire frrom within the Lyme community.


I don’t understand it, either. I really thought he was one of the good guys. I also found a twitter post once exposing Global Lyme Alliance as having funded research that Gary Wormser participated in. What the heck is that about? We really need to question everything. With friends like these...

WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 1680
   Posted 4/12/2018 8:41 AM (GMT -6)   
My understanding of this is the person who distributed the notice about the Congressional directive wants the Lyme community to know they are "doing something" to push the government in the right direction but doesn't reveal to the Lyme community that these directives have little to any bearing on what will actually be done by the government agencies.

The Facebook lady is perturbed by that lack of disclosure and wants the Lyme community to understand the Congressional directive in proper context.
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