Lymes? Please help!

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GLM
New Member


Date Joined Sep 2017
Total Posts : 10
   Posted 4/11/2018 3:13 PM (GMT -6)   
My anxiety is so bad right now. So nervous I have ALSor MS but could it be lymes?
Please read:

Symptoms are off and on and come and go and sometimes last for weeks but I do not notice any all of the time: this has been going on for over a year:

Pins and needles in feet hands arms R side of face and R side seems worse
Twitching random places and sometimes multiple times in one spot
Face flushing
Toes will be super cold
Stomach looked sun burnt for a couple days
Chronic hives bad for 4 months off and on. 3 huge hives on my inner thighs turned into bullseyes dermatologist told me to get tested for lymes. Primary doctor ran Elsa test. It came back negative. Then she refused to run western blot and told me If it happens again to get an autopsy
Mid afternoon almost everyday I get fatigued and feel like I’m getting sick and then it passes
Floaters worse at times
Everything seems to get worse around my period
Sometimes hot flashes
Wake up many mornings sore. Back sore
Joint pain
This year I’ve had shingles and influenza A
Abdominal pain or pressure
Sore boobs

Feedback please. Thank you for listening

GLM
New Member


Date Joined Sep 2017
Total Posts : 10
   Posted 4/11/2018 3:15 PM (GMT -6)   
VIEW IMAGE

My bullseyes I had. There were 3

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33893
   Posted 4/11/2018 3:59 PM (GMT -6)   
GLM - when you posted here awhile back, we suggested that you find a LLMD .

That is a bulls-eye rash, plus you had some bug bites and symptoms consistent with Lyme disease.


/www.healingwell.com/community/default.aspx?f=30&m=3911786

I think that was in September. Did you see a LLMD?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

The Dude Abides
Veteran Member


Date Joined May 2017
Total Posts : 1157
   Posted 4/11/2018 4:10 PM (GMT -6)   
GLM said...
My anxiety is so bad right now. So nervous I have ALSor MS but could it be lymes?
Please read:

Symptoms are off and on and come and go and sometimes last for weeks but I do not notice any all of the time: this has been going on for over a year:

Pins and needles in feet hands arms R side of face and R side seems worse
Twitching random places and sometimes multiple times in one spot
Face flushing
Toes will be super cold
Stomach looked sun burnt for a couple days
Chronic hives bad for 4 months off and on. 3 huge hives on my inner thighs turned into bullseyes dermatologist told me to get tested for lymes. Primary doctor ran Elsa test. It came back negative. Then she refused to run western blot and told me If it happens again to get an autopsy
Mid afternoon almost everyday I get fatigued and feel like I’m getting sick and then it passes
Floaters worse at times
Everything seems to get worse around my period
Sometimes hot flashes
Wake up many mornings sore. Back sore
Joint pain
This year I’ve had shingles and influenza A
Abdominal pain or pressure
Sore boobs

Feedback please. Thank you for listening


Hi, GLM:

I'm not a doctor, but I'm pretty sure you don't want an "autopsy."

(I know that was a typo, but I was hoping to give you a small laugh and set you at ease a bit.)

Those are some gnarly-looking rashes. To me, they sure look like bullseye rashes. But, again, I'm not a healthcare specialist.

Absent the Erythema Migrans (or, bullseye) rash, Lyme Disease is a clinical diagnosis, based on history, presentation, symptoms, and other factors.

But...

If one has the bullseye rash, then my understanding is that symptom alone is sufficient to receive a diagnosis of Lyme Disease, as no other condition is known to case the bullseye rash.

jemsekspecialty.com/erythema-migrans

You should find a Lyme-Literate Medical Doctor (LLMD), Lyme-Literate Naturopathic Doctor (LLND), Lyme-Literate Physician Assistant (LLPA), or other such Lyme-Literate specialist.

Generally, folks will make a new, separate post with a title like: "Looking for LLMD Near ______" and list your city and state or whatever geographical information. Such as: "Looking for LLMD Near Dallas, TX."

Best of luck,
The Dude

GLM
New Member


Date Joined Sep 2017
Total Posts : 10
   Posted 4/11/2018 4:11 PM (GMT -6)   
Thank you for replying again. I very much appreciate it. I have not and went to my yearly physical today and the doctor told me lymes is a fad. I was able to talk her into giving me the western blot test. I don’t have results yet. I will find an LLMD. After today I realized that I will never get the help I need from a general practice doctor. Sorry to bother you all again. My anxiety is just so bad. And last time I was not able to post the photos.

Thank you

The Dude Abides
Veteran Member


Date Joined May 2017
Total Posts : 1157
   Posted 4/11/2018 4:16 PM (GMT -6)   
It's no bother and your anxiety is understandable.

But, your "doctor" is wrong about Lyme Disease being a fad. In my younger days, I would have offered to tap dance on your doctor's windpipe. But, now, I suggest you just move-on and find a Lyme-Literate provider.

And, if that's the general attitude of your doctor (i.e. dismissive and uninformed), you might want to find a different doctor for your primary care, too. That's just my opinion.

Take care and check-in again with us.

The Dude

Missouri
Regular Member


Date Joined Sep 2017
Total Posts : 397
   Posted 4/11/2018 4:19 PM (GMT -6)   
It's not a fad. It's called an epidemic. I guess a silent one, since it is largely ignored. more than 300,000 new cases every year, and you don't see much on the news/ paper/ main yahoo page. Some doctors make make me really mad. Propagating ignorance like that... wow...

You need to be evaluated by an LLMD. Your bulls-eye + symptoms seem to be a slam dunk to me.

Not you trying to get into the super cool Lyme fad club as your doctor seems to think <--sarcasm.

Nobody wants to be in this club.

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 2023
   Posted 4/11/2018 4:55 PM (GMT -6)   
It sounds like you also may have bartonella.

GLM
New Member


Date Joined Sep 2017
Total Posts : 10
   Posted 4/11/2018 11:30 PM (GMT -6)   
Thank you everyone! And thanks Dude for making me laugh 😊
It is appreciated!!

G-Ju
Regular Member


Date Joined Apr 2018
Total Posts : 50
   Posted 4/12/2018 5:55 PM (GMT -6)   
http://ilads.org/ilads_media/physician-referral/

Go to this link, and fill in your information. ILADS.com will send you a list of Lyme Literate doctors in your area.

GLM
New Member


Date Joined Sep 2017
Total Posts : 10
   Posted 4/13/2018 1:43 AM (GMT -6)   
Thank you!
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