Severe headaches continue

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tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 4/11/2018 10:46 PM (GMT -6)   
Hi everyone, so I was getting hopeful for a couple days it felt like my headaches were getting a little lighter, they have always been better in the evening but I started MC Bar-1 a few days ago, but only a tiny bit, I put a drop in the water and drank half the glass. The past 2 evenings have been horrible! Severe headaches and a lot of pain in the forehead area, which I normally don't have as much of (normally it's more it the back and will move around). They are super intense and nothing relieves it. I'm not sure if this is what a migraine is like but it's taking me down! I also feel so irritatable (assuming because of the pain). Can a half drop cause a herx? Or could this just be part of the horrible ongoing flare I've been having? What's different is it's so bad in the evening where as before that's when I'd get a bit of a break. I feel everytime I get excited that I might be finally getting a break it comes back with intensity! I'm having my 4th brain MRI in 3 years tomorrow! Just feel like 😢

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32608
   Posted 4/11/2018 11:54 PM (GMT -6)   
tonya - what's in the MC Bar-1? Is it possible you're reacting to a herb?

...but then you still had the headaches after over a week off everything, right?


I don't know....this is very frustrating for you...I know...and I hope you get to the bottom of it soon.


How long were you off everything? was it two weeks?

I'm thinking you may need to take more time off...like a month or two. just so you can see what your baseline is.
Were headaches one of your symptoms prior to treatment...and they're just worse now?

I think the mri is a good idea...to put your mind at ease.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

ArtAngel
Regular Member


Date Joined Mar 2016
Total Posts : 320
   Posted 4/12/2018 12:07 AM (GMT -6)   
Can you find some one who does electrodermal screening (otherwise know as bioresonance). Naturopaths have these machines and even if they are not lyme literate (mine isn't) they are a lot of help in getting to the bottom of things for a relatively small layout - the cost of a regular naturopathic appointment.
I was getting pains in my liver and it would take too long to stop all treament and start it up again to eleminate the herbs and medicines that might be triggering it off. The EDS machine has a way of measuring your frequencies and you will get a read on what is happening, what your major infections are and where the major stressers are.
Most helpful of all they will name your allergies. It maybe something right out of the box like a smart meter that is effecting you. You may be getting allergic to just one supplement, or electromagnetic frequencies, it could be something as simple as a milk allergy that is causing your headaches.My naturopath has an Assyra machine I have absolute confidence in because I have learnt from experience to trust the results that come up.
Just look locally for someone and take in all the supplements you are taking and have them put on the machine to see if they will work compatibly with you or not.

MooseSafari
Regular Member


Date Joined Jan 2018
Total Posts : 78
   Posted 4/12/2018 12:54 AM (GMT -6)   
Tonyaraven, following your struggle and suffering is really heart-breaking, hope you will get good real soon.

I had some really horrible head-aches that re-occured quite randomly it seemed. Although I was eating a super-healthy diet I at last found out it was triggered by small sugar amounts from fruits like bananas and oranges, Cutting out all of them sugar-fruits seem keep the most horrible headpains at a distance in my case...And some other changes in diet have kept the head pressure at better bay too...
bet there is sure to be a way to get your headaches gone, just have to find it is the tricky part. Keep searching and we are all wishing you a quick and complete success...

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 4/12/2018 3:52 AM (GMT -6)   
Thank you everyone! Something just has to help me! I never used to have them at night and now I go to bed in tears and wake up in the middle of the night with it! I'm lying here at 2:50 just wishing I could take off my head! I was off everything for at least 2 weeks. I looked into the electrodermal screening after the last post you did artangel, but there is no one around here who does it. I have 3 children that I need to take care of and I find I'm becoming so beyond irriratable and short especially with my 6 year old, it's so unfair to them! I'm so scared! I just wish there was something that would give me relief so I could function!

10LymeB
Veteran Member


Date Joined Feb 2017
Total Posts : 675
   Posted 4/12/2018 9:52 AM (GMT -6)   
I had a migraine for a month. I still don't know what caused it. The trick with migraines is catching them early - for you, it's a bit late. All you can do is try to manage the symptoms. If you feel it's an herb causing the pain, cut back or stop for a bit and see if that helps. Give it a few days. Drink lots of water, rest. When I have REALLY bad ones, I drink Pedialyte for the dehydration.
*43 yo - Treatment started Nov. 2016 - Bitten by mosquito in Paris 2013
* SIBO (improved with diet)
* Candida (improved with diet and Nystatin)
* Lyme - Babesia - Bartonella
* Hashimoto's (improved with NatureThroid)
* EBV
* HHV6
* Tinea Versicolor (improved with Sporanox)
* IBS (improved with diet and BPC 157)
* Infusio Jan. 2018 (http://www.kristensimental.com/lyme-hub/)

ArtAngel
Regular Member


Date Joined Mar 2016
Total Posts : 320
   Posted 4/12/2018 1:16 PM (GMT -6)   
When I first got lyme headaches were a part of everything. They were worse with a herx, worse with exhaustion and some foods were triggers.
I didn't have a lyme diagnosis and got little help from a naturopath. I did read a book that suggested gong on an elimination diet might work. In those days I wasn't taking too many supplements past a vitamin pill and probiotics.
With an elimination diet you cut out all foods known to trigger headaches. In my case they were foods high in amines and salycilates........the headaches were gone and I was on the friendly foods diet. I had always had ADD so it was that that gave me the clue where to look.
Later I went to a kinesiologist and miraculously he could removed the allergy. In 20 years of having lyme those allergies never came back. It was incredible because it meant I could take more herbs which I never could before.
The headaches got bad again as I became more sensitive to electromagnetic frequencies and again it was a kinesiologist that helped me and this time most of my issues went. And ofcourse I try to avoid staying on the computer too long or walking in front of a smart meter (which is mandatory in my state - you can't get them to removed it.)
For me there are some foods that trigger headaches and some supplements. Overtime I have had to work out some kind of elimination protocol to figure out what it could be.
First I take out all suspect supplements foods etc. If you are right you should be headache free in a few days. Headaches can start for me within hours of having that trigger food or whatever or within the next 24 hours. You can do an internet search to see which foods, supplements, meds...are known triggers for headaches. That may be the best thing you can do because it will narrow it down for you.
So once I am headache free I work through everything picking out my major suspects first. Once the headache starts I work out what was my trigger. If it is a bit unclear I stop it for a week and try it again next week. In small doses everytime because I would rather have a small headache that a major one.
It takes time and it is a process but this was what I have been doing until I came across electrodermal screening.
Headaches are not an issue for me these days but the whole thing was a learning curve.
I believe I have Mast Cell Activation Disorder. I am on the inflammation diet and I take the herbs. I did help with my energy a bit but there is still inflammation just the same. I have been back to the kinesiologist for help with allergies but it doesn't seem to work for me these days. Unfortunately I am still prone to allergies they are just different ones but this is what helped me.
I hope you find something that will help you too.
I wish you all the best. I can't imagine how hard it must be with a family to take care of.

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 4/12/2018 10:42 PM (GMT -6)   
Thanks 10lymeB and Art Angel! Today wasn't a rough one, I actually had an app with a fellow who also does muscle testing and all sorts of noninvasive healing techniques, he's been out of the office the past month and a half and I had so much hope that he could help! Well, I was wrong! He told me he doesn't think he can help me and I walked out of his office and fell apart! There's nothing like having hope in something only to be turned away! He said that by now the modalities that he's using should be helping me, but I still wish he could have tried to do something! He even charged me for the app but all we did was talk! Feeling extra lost and not sure where to turn! I had an MRI today so we will see if it's changed the last one had a larger amount of white area, not like ms though. Wonder if Lyme can cause that?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32608
   Posted 4/12/2018 11:17 PM (GMT -6)   
Tonya - i'm sorry that you had such a disappointment today with that practitioner.

so he was treating you already...but won't be continuing?

I can't believe he charged you for an appt...to tell you that he can't treat you...what an arse.
I know how that feels - sort of - while my LLND didn't actually say he couldn't help me...I had the feeling he had given up on me...and was disinterested in my 'case' for the past several months.

Yes, I think lyme can cause white areas on the brain.

Do you not feel supported by your LLMD?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Post Edited (Girlie) : 4/12/2018 11:20:44 PM (GMT-6)


tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 4/13/2018 7:55 AM (GMT -6)   
Hi Girlie, I really don't know about my llmd, I think he gets a little frustrated that it's so hard to treat me! We just can't get any momentum going with the protocol because I keep having these horrible flares or herxes! I might be able to see this neurologist at Stanford fro the lyme study group after all, I must admit though I'm a little nervous about that because if he ends up thinking this isn't Lyme then I have no idea what I will do!! As far as the guy I saw yesterday I've decided to send him a letter and tell him how disappointed I am. He could have at least treated me and then said if I don't see results this time then he doesn't feel he can help me, that would have stung a lot less!!

multifacetedme
Veteran Member


Date Joined Jan 2016
Total Posts : 1586
   Posted 4/13/2018 12:00 PM (GMT -6)   
I can empathize, my headaches are back. I found the first time around, they got better with treatment, and also, after a brain aneurysm repair.
In December of 2015. I thought I was dying. I began to research symptoms and began considering lyme in January of 2016 and the Horowitz Questionnaire convinced me to take immediate right action: changed diet, used Buhner recommended herbs, followed advice here. Today I feel GREAT and although I have some remaining symptoms, my health is basically back.
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