Sheeks175 said... Octobrsky13 said...
So maybe some of you can help answer my questions. I have an appointment with Dr. P's NP in late June, but I have some concerns over going to him.
1. In one of his videos on his facebook, he mentions that babesia is rarely chronic. This is particularly concerning to me, because I have been treating babesia aggressively for 5+ months and still have upper left squeezing chest pain (usually brought on by walking, but can be random.) and I have air hunger. I'm almost positive that the air hunger cannot be confused with bartonella, as sometimes babesia and bartonella symptoms overlap. I'm worried that if I go to him, he won't treat me for babesia and I will never recover or at least it will be extremely difficult.
2. I like the pulsing method, but with my concerns mentioned above I have started considering Dr J in DC. He treats all 3 B's and he treats babesia long term and he pulses. For those of you familiar with Dr J and Dr P how would you compare the two? What would you do if you were in my shoes?
It’s so hard to answer these things. I don’t know Dr. J so someone else can answer that. Dr. P does break ranks with some of the other high profile LLMD’s in certain things. I’ve had air hunger and intense chest pressure - it was pretty severe in the beginning and I’m certainly not near remission but I’m so much better on a relatively conservative protocol. Not because it’s what he chose for me but because I’m super sensitive to meds so have to be careful and have to go slow and stick to the meds I can tolerate. The Biomagnetic Pair practitioner that I see tells me I have Babesia (and Bart) but I have no idea since I’ve never tested positive for it and I have doubts about
muscle testing accuracy but who knows. I just know I’m not on a typical specific Babesia protocol and yet I’m so much better.
I don’t know his other prescribing staff but I do know that Dr. P is flexible and is committed to getting patients well and he has gotten a lot of very sick patients well. I saw the video you mentioned and he says that shortness of breath/air hunger can also be Bart. I’ve never heard that but I just know what my own experience has been with him. I can’t imagine that his other staff wouldn’t be as flexible as he is. If you aren’t improving with what is prescribed you would be in the driver’s seat as far as requesting a change.
Also, he did offer Mepron/Zith to me but I never took the combo so I don’t think you would need to worry that you won’t be treated with a Babesia protocol.
I hope this helps.
Thanks October. How is your chest pressure and air hunger now? Is it much better? Also, could you give me a link to the video you are talking about
? I re-watched the one that I mentioned and he doesn't say anything about
air hunger being bart. Thanks!
Sheeks, my air hunger and chest pressure are markedly better. There were times I felt like I could barely breathe and now I only get it occasionally and not nearly as intense as it was. Chest pressure also doesn’t happen every day and not as intense. These were two of my worst symptoms.
Dr. P doesn’t mention air hunger specifically in the video where he discusses symptom overlap (sorry I wasn’t clear about
that) but I had a conversation with him about
my symptoms and he said it “could” be Bart but he did offer Mepron/Zith to me. I did take Zith with Tetra and that combo seemed to work (with liposomal OOO) so I never pursued Mepron. I do know that I always have the option, though, if I should need it. That’s really the point I wanted to stress - he isn’t a “my way or the highway” type. You would always have input and the final decision is always yours and you wouldn’t be at risk of being dropped. I’m, of course, talking about
Dr. P himself but I would assume his other staff would follow suit.
I don’t want to try to influence yours or anyone’s decision regarding doctor choice because it is such a personal decision. I just want to be clear about
what my experience has been so that others can use that information as a guide. Anyone can always email me at any time if I can be of help.