Babesia and Air Hunger

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garnet10
Regular Member


Date Joined Jul 2016
Total Posts : 32
   Posted 4/12/2018 2:20 PM (GMT -6)   
How long after starting treatment for Babesia did your air hunger resolve?

goshawk
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Date Joined Sep 2016
Total Posts : 2302
   Posted 4/12/2018 3:58 PM (GMT -6)   
I would think its different for everyone. I only had the air hunger occasionally and not severe. It just seemed to go away after about 5 months of treatment, but I wouldn't say the the Babesia went away in that same time.

Girlie
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Date Joined May 2014
Total Posts : 33963
   Posted 4/12/2018 4:27 PM (GMT -6)   
Mine actually went away before I treated Babesia...makes me wonder if mine was true air hunger ..or something else.
(mine would only happen at night during sleep.)
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

sandyfeet
Regular Member


Date Joined Mar 2018
Total Posts : 387
   Posted 4/12/2018 6:48 PM (GMT -6)   
Do you still have specific Babesia symptoms Girlie? Your LLMD wants to go after babesia again right (if I remember correctly)?

Mine presents as constant yawning and sometimes deep breathing sighing to get a breath. I only occasionally get a full on 'attack' of air hunger which is rather scary and lasts a few hours. It's become a major symptom now that I'm into my 6th month treating following Buhner any my only definite babesia symptom.

Goshawk - how long do you think it took you with Babesia?
Bulls eye rash August 2013
Started treating with Buhner herbs July 2017
Treating Borellia, Babesia and Bartonella as of November 2017

Girlie
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Date Joined May 2014
Total Posts : 33963
   Posted 4/12/2018 7:38 PM (GMT -6)   
sandyfeet said...
Do you still have specific Babesia symptoms Girlie? Your LLMD wants to go after babesia again right (if I remember correctly)?

Mine presents as constant yawning and sometimes deep breathing sighing to get a breath. I only occasionally get a full on 'attack' of air hunger which is rather scary and lasts a few hours. It's become a major symptom now that I'm into my 6th month treating following Buhner any my only definite babesia symptom.

Goshawk - how long do you think it took you with Babesia?


Well, i've changed LLMD's. So the clinic I go to now - they treat everyone for Babesia...

I don't know for sure - I have head pressure behind my eyes, still. I have POTS (which could be Bart or Babesia). My tinnitus is pretty much gone now.
I do have some sweating - generally in the morning when i first wake up...along with anxiety.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

sandyfeet
Regular Member


Date Joined Mar 2018
Total Posts : 387
   Posted 4/12/2018 7:48 PM (GMT -6)   
Sigh - everything could be bart eh? Girlie lol.

I’m glad to hear your tinnitus is gone - I took that as a bart symptom. Do you think it’s babesia? I only notice it when I’m up for hours. If only there was an easy and reliable way to know what was what. I don’t mind two steps forward two steps back or treatment limbo. But it’s hard to know what to treat. At one point I was sure bartonella was all in my head then I had the rash (thank you!). Then I thought I was sure babesia was under control but the air hunger is in my top three symptoms right now. It gets frustrating at times not knowing where you stand. Crypto no longer gives me any herx and yet air hunger remains and in fact gets stronger. Perhaps I’ve just scratched the surface. More sighs. Deep ones trying to get a breath lol.
Bulls eye rash August 2013
Started treating with Buhner herbs July 2017
Treating Borellia, Babesia and Bartonella as of November 2017

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33963
   Posted 4/12/2018 8:25 PM (GMT -6)   
Well, the tinnitus did get a bit better after bart treatment...and then even more better after Babesia treatment.
I stopped treatment for a month and the tinnitus continued to get better.


Could it be a delayed improvement from the bart treatment? possibly
Could it be improvement from babesia treatment? probably.


So, it's possible...or probable...lol. clear as mud.

Maybe mine wasn't true air hunger.....it only happened during the night in bed. Maybe a couple of times during the day...that's it.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Dahlias
Veteran Member


Date Joined Jun 2017
Total Posts : 518
   Posted 4/13/2018 5:15 AM (GMT -6)   
Girlie, could it have been asthma? My allergist says difficulty breathing from asthma tends to get worse at night because that's when the airways are narrowest. (She actually ruled out asthma as the cause of air hunger in my daughter in post because it never bothers her while sleeping.)

Sandyfeet, my daughter's air hunger sounds like yours. We're waiting for IGeneX results for her now.
"This too shall pass. It might pass like a kidney stone, but it will pass."

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 2041
   Posted 4/13/2018 8:55 AM (GMT -6)   
Dahlias said...
Girlie, could it have been asthma? My allergist says difficulty breathing from asthma tends to get worse at night because that's when the airways are narrowest. (She actually ruled out asthma as the cause of air hunger in my daughter in post because it never bothers her while sleeping.)

Sandyfeet, my daughter's air hunger sounds like yours. We're waiting for IGeneX results for her now.


The only definitive test for asthma is the methacholine challenge. If you got adult onset or new onset asthma-like symptoms and were diagnosed based on symptoms, then you may not have asthma. I had the challenge test and it was negative.

I had lots of yawning, sighing, couldn't get a satisfying breath, rigidity in the chest wall, significant rib tightness, waking up in the night not breathing and gasping for air, and more.

Everyone thinks only babesia causes air hunger and night sweats, but according to what you're reading from among various sources, bartonella can cause those symptoms too. I think there is a lot of overlap between bartonella and babesia.

Does anyone know which of the two is easier to detect via testing? Neither showed up on my DNA Connexions test and Labcorp tests were negative.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33963
   Posted 4/13/2018 11:08 AM (GMT -6)   
Dahlias said...
Girlie, could it have been asthma? My allergist says difficulty breathing from asthma tends to get worse at night because that's when the airways are narrowest. (She actually ruled out asthma as the cause of air hunger in my daughter in post because it never bothers her while sleeping.)

Sandyfeet, my daughter's air hunger sounds like yours. We're waiting for IGeneX results for her now.


No pretty sure not asthma - no wheezing - and it was so short lived - I would wake up with it and within a few minutes it would subside and I’d go back to sleep.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33963
   Posted 4/13/2018 11:13 AM (GMT -6)   
WalkingbyFaith said...
Dahlias said...
Girlie, could it have been asthma? My allergist says difficulty breathing from asthma tends to get worse at night because that's when the airways are narrowest. (She actually ruled out asthma as the cause of air hunger in my daughter in post because it never bothers her while sleeping.)

Sandyfeet, my daughter's air hunger sounds like yours. We're waiting for IGeneX results for her now.


The only definitive test for asthma is the methacholine challenge. If you got adult onset or new onset asthma-like symptoms and were diagnosed based on symptoms, then you may not have asthma. I had the challenge test and it was negative.

I had lots of yawning, sighing, couldn't get a satisfying breath, rigidity in the chest wall, significant rib tightness, waking up in the night not breathing and gasping for air, and more.

Everyone thinks only babesia causes air hunger and night sweats, but according to what you're reading from among various sources, bartonella can cause those symptoms too. I think there is a lot of overlap between bartonella and babesia.

Does anyone know which of the two is easier to detect via testing? Neither showed up on my DNA Connexions test and Labcorp tests were negative.


I did a pcr test at an unknown lab in Ontario - pcr urine and blood - positive for Bart.
Didn’t pick up Babesia - so not sure if I do have it.

It’s not a recognized lab but it wasn’t expensive so thought I had nothing to lose.

$125 per infection (for both urine and blood)
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Dahlias
Veteran Member


Date Joined Jun 2017
Total Posts : 518
   Posted 4/13/2018 12:56 PM (GMT -6)   
WalkingbyFaith said...
Dahlias said...
Girlie, could it have been asthma? My allergist says difficulty breathing from asthma tends to get worse at night because that's when the airways are narrowest. (She actually ruled out asthma as the cause of air hunger in my daughter in post because it never bothers her while sleeping.)

Sandyfeet, my daughter's air hunger sounds like yours. We're waiting for IGeneX results for her now.


The only definitive test for asthma is the methacholine challenge. If you got adult onset or new onset asthma-like symptoms and were diagnosed based on symptoms, then you may not have asthma. I had the challenge test and it was negative.


Not sure if that was directed to me. I definitely do and have since I was a kid. My daughter doesn't. I made a typo -- in post should have been in part. I just thought that was an interesting bit of information I hadn't known in 30 years of having asthma.
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