I am new. I found your site while doing my own research, which I seem to do hours and hours of (on the days that I can stay awake). I really wish I could focus long enough on one subject to study for some type of medical certificate, because I have a wealth of knowledge stored somewhere in my brain...and PC now.
I live in SC, have spent most of my life outdoors, and have been bit by many ticks (some very recently). I have never felt great... but in the last 3 years, I have been "Homebound", due to incapacitating Heat Intolerance (which sets off a flare). The FLARE then consists of Intense Skin Itching - primarily on my torso; Fever (101-102); extreme top side headache; Sore throat, left side earache, & mucous-y cough - for 2 days; Stomach Pain; Chest Pain; Swollen tongue, with small blisters in my mouth; RASHES that appear sometimes lightly on my arms and legs with just 5 minutes in the sun... and small water blisters that appear, if I am outside long enough to sweat in temperatures above 73 degrees. My body's thermostat quit working completely in 2014, along with my ability to think, and control my moods and emotions.
To me, this all sounds like a Lyme and Barts co-infection. However, getting a diagnosis in SC is beyond difficult.
Willing to travel, and ready to get well.
I suggest you find a LLMD and schedule an appt for an evaluation.
While you're waiting for your appt (it can take several weeks to get in), you can call Igenex and ask for a test kit...if you have a Dr. that will sign the lab req for you to get tested.
The best bang for your buck is the Lyme WB Igm and IgG for $250.
Take your results to the appt.
Alternatively, you can wait for the appt and do what the LLMD suggests re: testing.
We can help you find a LLMD - start a new thread: "Looking for LLMD in/neasr____" and fill in the blank with your
you can also email me and I'll check my list and see what I have for your
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi