acarined and Lapis_29
Thank you for your responses. I have tingling, numbness, vibrations, and neuropathic pain in both hands and my feet very, very often. It is not constant, but I take a lot of Gabapentin (Neurontin) and even Topamax, which I am sure sort of keeps it at bay. My skin itches all the time, and at night, it's more of a Burning Itch. When I am outside in ANY SUNLIGHT, OR EVEN HEAT OVER 72 DEGREES(inside or outside) - and especially if I EXERT MYSELF AT ALL - my torso burns like fire. This is a sign that I MUST get to COLD WATER OR ICE to douse my body, or put ice on my head, chest, and back - or risk passing out where I am. I have passed out numerous times inside and outside. *** All of this really kicked up bad after I had been GOING OUT IN THE WOODS and photographing old barns & abandoned buildings; DIGGING AROUND IN OLD FARM DIRT for old bottles and war relics; and my FIRST SERIOUS, ABX RESISTANT RASH THAT LASTED 8 WEEKS came on the heels of a tick bite AND holding my daughter's baby pig for 45 minutes. (Ive long suspected that it had something to do with the PIG, because the rash was SO PROMINENT right where the pig was lying in the crook of my right arm... As I read more, though, I wonder about MYCOPLASMA, LYME, BARTONELLOSIS, AND P. FALCIPARUM MALARIA.)
***I have Lost my short term memory; ADHD; have horrible Depression; PTSD; Anxiety; BiPolar 2; and am completely Anti-social and easily Angered. I was NOT LIKE THIS BEFORE 2014.
I have hesitated to list every symptom I have, but suffice it to say that I have been researching my symptoms for 3 years, and my list matches all of these, PLUS Lupus, MS, Familial Mediterranean Fever Syndrome; Fibromyalgia; ++
My Doctor has, at different times from 2014-present, tested me (or referred me to specialists who have tested me) for MS, Lupus, and Porphyria. I currently have diagnoses for Fibromyalgia and Acute Intermittent Porphyria - mostly due to my INTENSE reaction to sunlight, I think.
I would be happy to post a FEW pics, if you would be interested in continuing to help (lab results, etc)?
I have been tested for HIV 1/O/2 Abs-Index Value <1.00 (<1.00); and HIV 1/O/2 Abs, Qual Non-reactive (Non-reactive) This test was done 4/26/2016, and was not the test that should have been ordered, per Labcorp. It was "outdated". I believe I have been tested for Malaria over the years, meaning any time since 2000 on. I have had several Malaria Relapses, in the 90's. I've been tested for almost anything my doctor could think of.... BUT PROBABLY NOT THINGS THAT WOULD BE "OUT OF THE BOX" - like Cytomegalovirus. I have looked at that some, myself...
I WOULD REALLY LOVE TO HAVE A DOCTOR OR SOMEONE WHO READS LABS HELP ME DECIPHER MY LABS.
My daughter is ANA positive for SLE, although I do not remember her Titer. She is also Double Stranded DNA Positive.
My mother has Sjogren's and Fibro.
Her mother had RA. My whole family on my mother's side has "some sort of debilitating Auto-Immune Disease or another".
My sister's son was born in Lithuania in 2008, and was given BCG (BOVINE) Polio Innoculation, and had such a severe RASH & COMPLICATIONS, that he nearly died at 2 days old. He was rushed to Prague, and with the help of the WHO, and then back at home, he was diagnosed with LUPUS VULGARIS & COMPLETE INTERLEUKIN 12 DELETION.
I have had NO GENETIC TESTING, BUT WOULD LOVE TO. I feel as though I am a perfect candidate to "Break this Chain". MY KIDS are all in their 20's - and sick, due to whatever I have passed on to them... And now, I have ONE PRECIOUS GRANDCHILD, who I want to spare the pain and hardship we are suffering, if possible.
I hope you can follow my rambling. I've re-read it a few times to try to make it make sense.