Who has had hyperthermia at any of the clinics outside of the US?

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BeatingThisBeast
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Date Joined Jul 2017
Total Posts : 41
   Posted 4/15/2018 2:53 PM (GMT -6)   
Hello!

Wanting reviews, info, and anything else you’re willing to tell me about hyperthermia!

My husband and I both have Lyme. I have it worse. He has some symptoms but is still functional. I function but fluctuate between 50%-80%.

Some days I can only do a few things at home others I might be abele to get out of the house and have a pretty decent day. Mostly I feel I am neuro. Although I do have some joint pain here and there.

Girlie
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Date Joined May 2014
Total Posts : 32619
   Posted 4/15/2018 3:12 PM (GMT -6)   
One of our members (Evanston) took her daughter to Germany for Hyperthermia.

She reported that it helped her. We haven't had an update lately though.

I'll try to find the thread and post it here.


On the other hand, Yolanda Hadid didn't think it was a game-changer for her.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Post Edited (Girlie) : 4/15/2018 3:20:00 PM (GMT-6)


BeatingThisBeast
Regular Member


Date Joined Jul 2017
Total Posts : 41
   Posted 4/15/2018 3:16 PM (GMT -6)   
Ugh. That’s what makes it SO HARD!!

How do you justify spending that kind of money on something you don’t even know if it will work?!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32619
   Posted 4/15/2018 3:19 PM (GMT -6)   
/www.healingwell.com/community/default.aspx?f=30&m=3972618


The one thing that surprised me is it was reported (not sure in the above thread) that hyperthermia only treats lyme, not the co-infections.

I can't find the thread - where she was posting from the clinic.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

mpost
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Date Joined Feb 2015
Total Posts : 1522
   Posted 4/15/2018 3:47 PM (GMT -6)   

The Sal
Regular Member


Date Joined Feb 2017
Total Posts : 35
   Posted 4/17/2018 7:03 PM (GMT -6)   
I just sent my medical records and paperwork to the St. Georg Klinik.

In my research, I've talked to several people who have went there in the last few years and all of them I've spoken to have improved drastically. One is convinced she is cured, but admits it's way to early to tell for sure. I think she got back about 6 months ago.

They've told me I should hear back in about a week, so I'll know more then if I'm going to do this or not. I'm seriously considering it. I think I've stopped improving with antibiotics.

BeatingThisBeast
Regular Member


Date Joined Jul 2017
Total Posts : 41
   Posted 4/17/2018 7:18 PM (GMT -6)   
Good luck Sai!

Keep us updated! I’d love to hear if you do go how you do!

BeatingThisBeast
Regular Member


Date Joined Jul 2017
Total Posts : 41
   Posted 4/17/2018 7:28 PM (GMT -6)   
Our issue is my husband and I both have lyme.

My husband is for the most part asymptomatic. He has some symptoms but I know if we don’t start treating him soon it will get worse!

So in looking at st Georg Klinik for both of us it will be around $40,000!!! We only have about half of that right now.. so have to give it some time and keep saving! Just to go save our lives!!

It’s truly a crime that America doesn’t help people with Lyme more and there isn’t more funding for research! Ppl think we are crazy wanting to go over to Germany for treatment.. what other options do we have when i’ve tried everything America has to offer?!

Hoagie
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Date Joined Jul 2017
Total Posts : 614
   Posted 4/17/2018 7:57 PM (GMT -6)   
Have you looked into the Hansa clinic?

The Sal
Regular Member


Date Joined Feb 2017
Total Posts : 35
   Posted 4/17/2018 8:10 PM (GMT -6)   
It is crazy expensive, but it's to the point for me where I feel like it's time for my "Hail Mary." And this is it.

I also have a spouse with Lyme, but he is not at all as affected as I am. It doesn't seem to bother him much or even daily and I would say I'm like you, around 50-60% most of the time. Sometimes worse, sometimes better.

I don't mind spending the money if it's going to give me significant, life-altering improvement. But it's those uncertainties that worry me. I'm very scared to spend that kind of money and not get better. So I've done what I can and spoken to as many people as I can track down and listened to their experiences.

I wish you luck as you discern what you need to do. I know it's such a difficult decision to know what the right thing is to do. Unfortunately, until we find that silver bullet that cures everyone of Lyme, we just have to keep trying things. If I can be of help, let me know.

BeatingThisBeast said...
Our issue is my husband and I both have lyme.

My husband is for the most part asymptomatic. He has some symptoms but I know if we don’t start treating him soon it will get worse!

So in looking at st Georg Klinik for both of us it will be around $40,000!!! We only have about half of that right now.. so have to give it some time and keep saving! Just to go save our lives!!

It’s truly a crime that America doesn’t help people with Lyme more and there isn’t more funding for research! Ppl think we are crazy wanting to go over to Germany for treatment.. what other options do we have when i’ve tried everything America has to offer?!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32619
   Posted 4/17/2018 9:12 PM (GMT -6)   
So what do you all think about the fact that it’s only for Borrelia not the coinfections?


How will you be well if you’ve still got a couple nasty co’S?

I think if it was a sure thing most of us would go - even tho it’s thousands of $$ but it’s not.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Hoagie
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Date Joined Jul 2017
Total Posts : 614
   Posted 4/18/2018 12:11 AM (GMT -6)   
The doctors at Sanoviv said hyperthermia treats all coinfections except Babesia.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32619
   Posted 4/18/2018 12:19 AM (GMT -6)   
Hoagie said...
The doctors at Sanoviv said hyperthermia treats all coinfections except Babesia.


Is that Mexico, Hoagie?

So then you treat Babesia when you get home?

I’m pretty sure Evanston reported that the Germany clinic said they only do Lyme.
I don’t see how it would differ from place to place. I wish I could find the thread where she posted while she was at the clinic.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 1522
   Posted 4/18/2018 2:05 AM (GMT -6)   
just wanted to say that before u spend all $ on hyperthermia, you should try abx for at least a year or more... (i mean you should keep these crazy expensive and dangerous treatments like hyperthermia as last resort and not necessarily curative). i feel like people cling to hope especially because of the insane price. "Pay $50k and get cured.". It does not work like that ...

For example this lady went to the famous St. Georg clinic in Germany to do hyperthermia

This is her blog entry in April 2016 when she went there
daysofmylyme.com/germany-lyme-klinik/

This is a video blog post of her 3 months after the hyperthermia, when she had another lyme flare
/www.youtube.com/watch?v=IUrFsITIxiM

so do not expect to get "cured" with hyperthermia. Probably it helps a lot but it will not remove all your symptoms , but it may remove all your money, as the procedure is insanely expensive...

Anyway, better be informed than not ...

Post Edited (mpost) : 4/18/2018 2:10:05 AM (GMT-6)


1000Daisies
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Date Joined Apr 2016
Total Posts : 2438
   Posted 4/18/2018 8:34 AM (GMT -6)   
BeatingThisBeast said...
what other options do we have when i’ve tried everything America has to offer?!


When people say they have tried everything, I'm a bit (respectfully) doubtful. I got to that point too where I felt like I was running out of things to try, and my wonderful doctor kindly reminded me that we aren't even close to being out of options yet (eg use our creative thinking).

Maybe it would be helpful to list all the things you have tried.

Just off the top of my head (treating these things or treatment types):
Mold
Yeast
Viruses
Parasites
Pathogen infections (lyme, babesia, bartonella, mycoplasma)
Dental issues (amalgram fillings, etc)
BVT
HBOT (hard and soft chamber)
UVLrx
MCAS
Ozone
Myer's Cocktail, Vitamin C, IV nutrition
Heavy metals / chelation
Neuro-bio feedback
Methylation pathways (MTHFR, etc)
Genetic testings
HPU/KPU
Diet changes
Nutritional deficiencies
Abx - many variations/combinations
Herbals - many, many variations/combinations
Homeopathic remedies
FCT
...

Know I'm missing many others, but those are just off the top of my head of things to think about and/or options to try.

I have not met a single person who has done all of the above (although, quite frankly, we've done/explored most of them at some point between all of us).
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

Post Edited (1000Daisies) : 4/18/2018 8:37:37 AM (GMT-6)


1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2438
   Posted 4/18/2018 8:40 AM (GMT -6)   
But I definitely understand and can relate to the broken medical system here in America. I've lived it too. I understand the desperation too of feeling like you've run out of options.

It definitely is a puzzle for sure!

For these outside clinics (just like the clinics here in US), I have heard of varying positive/negative to both. Helps some, doesn't help others. Again, a difficult puzzle to solve...
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32619
   Posted 4/18/2018 10:48 AM (GMT -6)   
mpost said...
just wanted to say that before u spend all $ on hyperthermia, you should try abx for at least a year or more... (i mean you should keep these crazy expensive and dangerous treatments like hyperthermia as last resort and not necessarily curative). i feel like people cling to hope especially because of the insane price. "Pay $50k and get cured.". It does not work like that ...

For example this lady went to the famous St. Georg clinic in Germany to do hyperthermia

This is her blog entry in April 2016 when she went there
daysofmylyme.com/germany-lyme-klinik/

This is a video blog post of her 3 months after the hyperthermia, when she had another lyme flare
/www.youtube.com/watch?v=IUrFsITIxiM

so do not expect to get "cured" with hyperthermia. Probably it helps a lot but it will not remove all your symptoms , but it may remove all your money, as the procedure is insanely expensive...

Anyway, better be informed than not ...



Well, that was upsetting. I only watched some of it - her crying made me cry....

She mentioned her Lyme Dr. quitting on her...I wonder who that was?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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