Nic-have you checked your vitamin B-12 level? I’ve had some wicked mouth pain, including my tongue and inner cheeks. I also have some white lesions, ie Canker sores. I’ve NEVER had even one of these prior to Lyme (I’m of the REALLY chronic nature-tick bite in Connecticut 30 years ago, horribly exacerbated by two bites together in WI in about 2009. I was so sick I don’t even remember most of one year, and ended up in a cardiac arrest, life support, etc) And now, after finally being treated by a great LLMD in Seattle, this. My mouth feels just plain weird, as if my teeth are too big. Add extremely dry mouth to the picture! I’ve been beyond miserable. My LLMD ran blood work-and my Vitamin B-12 level came back markedly low. He is running another test to ensure I don’t have lack ‘intrinsic function.’ This means B-12 is not absorbed properly in the intestines-my identical sister has this genetic trait. If I’m not absorbing B-12 properly, it doesn’t do much good to take it orally; I start on B-12 injections in a few days.
In my research, I’ve found that, of course, Lyme patients often present with B-12 deficiency. It also causes some serious and signifant symptoms, many which mimic Lyme. Night sweats are also back with a vengeance!
Some have also linked a sore mouth to Bart.
I’m going to explore Vitamin B12 therapy first. If no help, I’ll ask to be evaluated again for Bart.
I hope this is helpful. It’s so much more miserable than it sounds. I feel discouraged also but we just have to find a way to keep going.