Active spirochetes finally cultured in chronic patients

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BabsBunny
Veteran Member


Date Joined Mar 2017
Total Posts : 565
   Posted 4/17/2018 10:59 AM (GMT -6)   
Any chance the CDC and insurance companies will finally catch up?!
It took this long for John’s Hopkins to drag their feet into admitting we still have symptoms.. probably another 20 years before they acknowledge the cause.

Keep fighting, Loonies! We’ll show them who’s been crazy!
www.prweb.com/releases/2018/04/prweb15413734.htm
Lyme, Babesia, Bartonella. Symptoms began 5/2016, didn't start treatment until 9/2016. Slow but steady recovery.

*twitch twitch*

BlakeAlexander
Regular Member


Date Joined May 2017
Total Posts : 33
   Posted 4/17/2018 11:17 AM (GMT -6)   
This is a VERY big deal.

All 12 of the patients studied who had positive antibody tests had positive cultures for borrelia. That is remarkable.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33967
   Posted 4/17/2018 11:34 AM (GMT -6)   
Wow...thanks for posting this BabsBunny.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 1527
   Posted 4/17/2018 11:49 AM (GMT -6)   
this is the final published version of the preprint i shared with you guys a month ago. older discussion thread here
/www.healingwell.com/community/default.aspx?f=30&m=3989200

good news that they actually published it. keep em coming

sierraDon
Regular Member


Date Joined Aug 2016
Total Posts : 292
   Posted 4/17/2018 1:37 PM (GMT -6)   
Great news.

Question for the veterans, since i am new to this lyme and its politicalness. have studies like this been released/published before, only to have limited or little impact?

their seem to be a lot of studies going on now, some with a lot of potential (like the study led by Specter with JH, Tulane, etc.). tryin to get a feel what it would take for this gain acceptance. I assume that since lyme is so negatively engrained in modern medicine by the likes of CDC/IDSA that even if a breakthrough would happen, LLMDs would still be the first to know and utilize any cutting edge testing or treatment, meaning its still 10 or 20 years out. and maybe even further out for real treatments to get into the hands of PCPs

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33967
   Posted 4/17/2018 1:57 PM (GMT -6)   
I really don't see PCP's ever treating it. It's going to have to be a specialist.

There's too much to consider for the PCP to treat anything other than a recent infection IMO.

Same as cancer, heart disease...etc.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 1527
   Posted 4/17/2018 2:22 PM (GMT -6)   
sierraDon said...
Great news.

Question for the veterans, since i am new to this lyme and its politicalness. have studies like this been released/published before, only to have limited or little impact?


just watch this 13 mins interview
/www.youtube.com/watch?v=KCxA0Vmqb2o

it responds your question about the research trends and maybe does more than that.

sierraDon
Regular Member


Date Joined Aug 2016
Total Posts : 292
   Posted 4/17/2018 3:01 PM (GMT -6)   
thanks. yeah that was two years ago too, curious what compound he is referring to that he wouldnt divulge. he seemed to allude that whatever compounds were being evaluated would solve all the problems in the near term. I assume its something people are using now. interestingly he refers to the 10% too with PTLDS, wish that term was dropped

mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 1527
   Posted 4/17/2018 3:04 PM (GMT -6)   
sierraDon said...
thanks. yeah that was two years ago too, curious what compound he is referring to that he wouldnt divulge. he seemed to allude that whatever compounds were being evaluated would solve all the problems in the near term. I assume its something people are using now. interestingly he refers to the 10% too with PTLDS, wish that term was dropped


the compound is disulfiram. im not sure what happened to their in vivo/mice tests ... they have not published anything.

sierraDon
Regular Member


Date Joined Aug 2016
Total Posts : 292
   Posted 4/17/2018 3:04 PM (GMT -6)   
Girlie, i agree unless it turns out to be some really simple solution like a single drug, similar to the 2-3 weeks of doxy. otherwise, ID doctors will have to be educated and trained. either way, LLMDs will be first to know any new treatment approaches

Psilociraptor
Veteran Member


Date Joined Jul 2016
Total Posts : 1355
   Posted 4/17/2018 7:29 PM (GMT -6)   
If anyone has an answer to this is really like to know. But what did they attribute their success to? Many have tried and failed to culture borrelia hence why we are in this mess. I'm not denying it I just couldn't find a clear statement of why their methods were better than the previously failed attempts in the preprint.

Anyways, I disagree with Dr Stricker. This is very good news smile

mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 1527
   Posted 4/17/2018 8:25 PM (GMT -6)   
Psilociraptor said...
If anyone has an answer to this is really like to know. But what did they attribute their success to? Many have tried and failed to culture borrelia hence why we are in this mess. I'm not denying it I just couldn't find a clear statement of why their methods were better than the previously failed attempts in the preprint.

Anyways, I disagree with Dr Stricker. This is very good news smile


8 mL tubes of inoculated medium were filled to minimize the airspace present, thus providing a microaerobic environment, and incubated at 32 °C. Culture fluid was examined by darkfield microscopy for visible spirochetes weekly for up to 4 weeks. Cultures were concentrated by centrifuging the fluid at 15,000 g for 20 min, retaining the pellet and discarding the supernatant. For imaging, a small amount of culture pellet was resuspended in 50 μL 0.85% saline solution, washed and centrifuged again. The pellet was mixed with gelatin and then fixed with formalin for further staining.

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2474
   Posted 4/18/2018 9:45 AM (GMT -6)   
Despite being on years and years of abx, Kid#1 still tested positive for lyme bacteria in his blood via Advanced Labs test (they even take a picture of the spirochete and include in the lab report). It was then (plus not getting better on abx) where I started to really lose my trust in abx for this disease [for him!].

FWIW - now that he's been well for over a year, I would love to have him retested simply for analytical reasons. Unfortunately, with others in my family still in treatment (and money continually being drained), I can't afford such. But it would be definitely interesting to retest him now that he's been well!

This whole journey has been a real eye-opener for me personally.
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

Psilociraptor
Veteran Member


Date Joined Jul 2016
Total Posts : 1355
   Posted 4/18/2018 10:51 AM (GMT -6)   
Lol mpost I know how to find the materials and methods section. That doesn't include a discussion of why they were successful when others haven't been. What you listed is pretty basic and doesn't highlight anything that might explain their success since I'm sure everyone in the history of culturing borrelia has followed a similar protocol. The only thing I can come up with that is notably different is that they used genital secretions.

Healrom
Regular Member


Date Joined Nov 2016
Total Posts : 158
   Posted 4/18/2018 1:08 PM (GMT -6)   
Wow, great progress!

ChickenArise
Veteran Member


Date Joined Nov 2015
Total Posts : 1530
   Posted 4/18/2018 6:03 PM (GMT -6)   
mpost said...
sierraDon said...
Great news.

Question for the veterans, since i am new to this lyme and its politicalness. have studies like this been released/published before, only to have limited or little impact?


just watch this 13 mins interview
/www.youtube.com/watch?v=KCxA0Vmqb2o

it responds your question about the research trends and maybe does more than that.


Wow, catch what he says at the end. Jump to 12:16

Too subtle?

2014 Mold Sick,2015 Clinical Lyme and co.,2016 Morgellons,2017 Remission
YT: ClintFromNYtoVA2
Twitter: @ClintFromNYtoVA
Blog: www.fascinatingtimetobealive.blogspot.com/
" The path to disappointment is paved with expectations "

Post Edited (ChickenArise) : 4/18/2018 5:06:44 PM (GMT-6)


mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 1527
   Posted 4/18/2018 11:12 PM (GMT -6)   
he is talking about vancomycin which is intravenous and comsidered very strong abx for life threatening cases.

well.... the guy tried the whole US drug bank on borrelia and saw that nothing kills it, so he is aiming at best abx he could find in his tests.

when u know hands on how The Devil looks like, u dont want to take any chances...
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